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Pernicious Anaemia Society

32,082 members • 23,230 posts

All posts for January 2023

parietal cell antibody lab results

I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG value is 33.2 units and it said the standard range is 0.0-24.9 units. So it’s...

I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG va...

Purplegirl2

•1 year ago

7 Replies

My Vitamin B12 injections have just arrived

Just want to check they are OK as different brand from previous. These new ones are Pascoe hydroxocobalaminacetat 1500 ug. Does any body else use?

Just want to check they are OK as different brand from previous. These new ones ...

Hectorsmum2

•1 year ago

19 Replies

Shaking when I stretch…

I’m curious if others with PA have ever experienced this symptom: when I wake up in the morning and stretch, my muscles seem to shake for a few moments,...

I’m curious if others with PA have ever experienced this symptom: when I wake up...

Bellmore2089

•1 year ago

3 Replies

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pernicious anaemia on the telly!

good morning everyone. I hope you are all getting the help you need. Did you see the latest Downton Abbey film on the TV a few weeks ago? Lord Grantham wife...

good morning everyone. I hope you are all getting the help you need. Did you s...

Hedgehogs15

•1 year ago

6 Replies

Do l have Peripheral Neuropathy?

I am a diabetic, last 10 years on Metformin 500 mg twice daily with Glimipride 2mg. Now having hot sensations, tingling in the legs, some times fingers, and...

I am a diabetic, last 10 years on Metformin 500 mg twice daily with Glimipride 2...

ramkya

•1 year ago

2 Replies

Pernicious Anaemia is the worst

Hi Newbie here. Was diagnosed with PA this Sept gone after years of weird symptoms . Have congenital heart disease too and after having complex heart surgery...

Hi Newbie here. Was diagnosed with PA this Sept gone after years of weird sympto...

Sea-blue

•1 year ago

6 Replies

Tricky biopsy results

Greetings to all dear fellows. I received the dreaded biopsy results and my physician just touched on the lack of gastric dysplasia or malignancy but did not...

Greetings to all dear fellows. I received the dreaded biopsy results and my phys...

Matebele

•1 year ago

3 Replies

Hydroxocobalamin or Methycobal (Mecobalamin) for self-injections?

Hi, can anyone please tell me if it's safe to use Methycobal injection 500ug (Mecobalamin) for self-injections? I have only ever used Hydroxocobalamin 1000...

Hi, can anyone please tell me if it's safe to use Methycobal injection 500ug (Me...

pas250218

•1 year ago

5 Replies

B12 injection side effects

Has anyone noticed any side effects? I have a spotty forehead since injections. Coming from someone who has never struggled with spots even as a teenager, just...

Has anyone noticed any side effects? I have a spotty forehead since injections. ...

Hidden

•1 year ago

6 Replies

Folate Level 30

Hi everyone, I wondered if someone could give me some advice on my folate levels. I am self injecting every day. The doctor initially prescribed daily...

Hi everyone, I wondered if someone could give me some advice on my folate level...

DiNL

•1 year ago

15 Replies

Poor Sleep 😴

one of the symptoms of B12 deficiency is insomnia. While I’ve developed many mindfulness skills to manage this I still long for the luxury of being able to...

one of the symptoms of B12 deficiency is insomnia. While I’ve developed many mi...

Hidden

•1 year ago

26 Replies

An old but familiar story

A story of pernicious anemia and B12 deficiency I came across in the Washington Post archives, from the year 2000. I find now I read these stories and when...

A story of pernicious anemia and B12 deficiency I came across in the Washington ...

Technoid

•1 year ago

14 Replies

Big Step Backwards

Hi All Belated HNY and CNY. 🐇 Had family over for a long weekend and spent a day prepping, cooked a meal, went for a walk, lots and lots of talking over a...

Hi All Belated HNY and CNY. 🐇 Had family over for a long weekend and spent a...

Wwwdot

•1 year ago

30 Replies

raised b12 and ALT

Hi. I was wondering if you could give me some advice. I recently went for a blood test and my ALT is 53 and my B12 levels are quite high. I haven’t had any...

Hi. I was wondering if you could give me some advice. I recently went for a blo...

Kahil

•1 year ago

2 Replies

Locations for SC injection

Hi everyone. I've been self injecting into my roll of fat an inch either side of my belly button. Having upped to daily SI I'm wondering where else people...

Hi everyone. I've been self injecting into my roll of fat an inch either side of...

Sunnysidoop

•1 year ago

11 Replies

Neuropsychiatric symptoms of B12 deficiency

I came across an article that seems quite informative on the general topic of B12 deficiency, and especially on the topic of its neuropsychiatric symptoms. The...

I came across an article that seems quite informative on the general topic of B1...

WiscGuy

•1 year ago

18 Replies

Can pharmacists get suspicious...

I am amazed to find that I can get B12 injection stuff over the counter in Australia. However, we have very strict regulations here and I was wondering if they...

I am amazed to find that I can get B12 injection stuff over the counter in Austr...

2Thess2

•1 year ago

13 Replies

SI I forgot to clear the air before injecting (!) Air bubble question

Ermm I was tired this morning, and not fully focused when doing my B12 injection and forgot to clear the air before injecting. I only realised after. Google...

Ermm I was tired this morning, and not fully focused when doing my B12 injection...

pipple

•1 year ago

26 Replies

Assessing impaired balance in fibromyalgia

I have seen mention made here of fibromyalgia. I thought there might therefore be interest in the brief article linked here:...

I have seen mention made here of fibromyalgia. I thought there might therefore ...

WiscGuy

•1 year ago

12 Replies

how do you get PA

hi everyone This may sound like a stupid question but I was wondering what makes you get pernicious anemia? Also is anyone experiencing fatigue whilst still...

hi everyone This may sound like a stupid question but I was wondering what mak...

Becca2023

•1 year ago

23 Replies

High active b12 reading from monitormyhealth.com

Became very ill after years of stomach problems, exhaustion,hair loss tooth enamel loss, palpitations. Things really took a nosedive this October with non stop...

Became very ill after years of stomach problems, exhaustion,hair loss tooth enam...

Hidden

•1 year ago

10 Replies

ways to cope with low energy?

yesterday my lab results came back with 184pg/ ml and my doctor ordered b12 injections once a week for next month. I got an injection yesterday evening and...

yesterday my lab results came back with 184pg/ ml and my doctor ordered b12 inje...

Asb2

•1 year ago

9 Replies

Some Blood Results are in...? Hmmm,,...?

Hi Folks I had a range of tests this week, FBC, TSH, Liver function, Kidney function, Vit D, Potassium, and Folate. But no Active B12 or Active Iron or...

Hi Folks I had a range of tests this week, FBC, TSH, Liver function, Kidney...

Treesong2023

•1 year ago

17 Replies

Concerning advice about switch to oral B12

I was searching for something else when I came across this article from a GP practice in Devon area...

I was searching for something else when I came across this article from a GP pra...

Littlelodge123

•1 year ago

20 Replies

WHAT’S THE DIFFERENCE BETWEEN VITAMIN B12 DEFICIENCY AND PERNICIOUS ANAEMIA?

The above is the title of a webpage on the Home page of the PAS (first tab). However, like a Times article, the headline bears no relationship with the words...

The above is the title of a webpage on the Home page of the PAS (first tab). Ho...

BrianTheElder

•1 year ago

5 Replies

Pernicious anemia advice/ reassurance

Hello, I have had pernicious anemia/ b12 deficiency for 4 years and have been self injecting for 2.5 years. I have found injections every 3 weeks and 3 days...

Hello, I have had pernicious anemia/ b12 deficiency for 4 years and have been s...

ChloeW92

•1 year ago

7 Replies

AMAZON IS CLOSING DOWN their www.smileamazon.co.uk from February 20th

They will make a final donation of 6 months of total donations given during 2022. But donations still being made for sales made until February 20th Such a...

They will make a final donation of 6 months of total donations given during 202...

wedgewood

•1 year ago

11 Replies

Doctor put my b12 schedule on my records.

this week after a visit to the ED and changed symptoms related to my spine degenerative disease, I saw a different doctor at the practice, as she was going...

this week after a visit to the ED and changed symptoms related to my spine degen...

Scott-rock

•1 year ago

10 Replies

My B12 arrived from Germany:)

I received my B12 very quickly from Apotal. It was far more expensive than usual however, needs must! The use by date is December 2023, but hopefully if I have...

I received my B12 very quickly from Apotal. It was far more expensive than usual...

Hidden

•1 year ago

2 Replies

Doctors appointment next week what to discuss

Hi I live in the united states and wanted to know what I should discuss with my doctor next week. I am getting B12 injections every 4 weeks I think it is the...

Hi I live in the united states and wanted to know what I should discuss with my ...

Janeames

•1 year ago

5 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

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Providing advice on safe sources for self injection

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2023

parietal cell antibody lab results

My Vitamin B12 injections have just arrived

Shaking when I stretch…

pernicious anaemia on the telly!

Do l have Peripheral Neuropathy?

Pernicious Anaemia is the worst

Tricky biopsy results

Hydroxocobalamin or Methycobal (Mecobalamin) for self-injections?

B12 injection side effects

Folate Level 30

Poor Sleep 😴

An old but familiar story

Big Step Backwards

raised b12 and ALT

Locations for SC injection

Neuropsychiatric symptoms of B12 deficiency

Can pharmacists get suspicious...

SI I forgot to clear the air before injecting (!) Air bubble question

Assessing impaired balance in fibromyalgia

how do you get PA

High active b12 reading from monitormyhealth.com

ways to cope with low energy?

Some Blood Results are in...? Hmmm,,...?

Concerning advice about switch to oral B12

WHAT’S THE DIFFERENCE BETWEEN VITAMIN B12 DEFICIENCY AND PERNICIOUS ANAEMIA?

Pernicious anemia advice/ reassurance

AMAZON IS CLOSING DOWN their www.smileamazon.co.uk from February 20th

Doctor put my b12 schedule on my records.

My B12 arrived from Germany:)

Doctors appointment next week what to discuss

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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