Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,211 members • 23,379 posts

All posts for January 2023

First loading injection done!

I had my first loading injection yesterday morning, done by a local pharmacist. Around 3 hours after, I was exhausted and wired and all of my symptoms ramped...

I had my first loading injection yesterday morning, done by a local pharmacist. ...

Gecko22

•1 year ago

8 Replies

Examining the Diagnosis and Treatment Experiences of People Living With Autoimmune Gastritis and Pernicious Anemia

Publication date - yesterday. I haven't read it all but it looked to be relevant and potentially of interest. And is open access. Note that it...

Publication date - yesterday. I haven't read it all but it looked to be relevan...

helvella

•1 year ago

12 Replies

Tees Valley B12 deficiency treatment guidelines

Through a Freedom of Information request to the North East and North Cumberland ICB, I have learned that Tess Valley is currently developing local guidelines...

Through a Freedom of Information request to the North East and North Cumberland ...

Budsa

•1 year ago

1 Reply

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SI Help and Info

Hi All My preps continue...not buying anything yet though...just getting ready.. A few questions on SI if you dont mind. The advice / experience on using...

Hi All My preps continue...not buying anything yet though...just getting ready...

Treesong2023

•1 year ago

9 Replies

Jaundice?

Hi everyone, I got diagnosed with a b12 deficiency and have had 6 b12 shots as part of my loading doses. I have noticed my skin turning yellow on the palms of...

Hi everyone, I got diagnosed with a b12 deficiency and have had 6 b12 shots as ...

bchase

•1 year ago

10 Replies

b12 deficiency symptoms

morning everyone Just wondering if anyone else experienced issues with eyes/eyelids? I have had many neurological symptoms, many of which have reduced. Im...

morning everyone Just wondering if anyone else experienced issues with eyes/ey...

Dancers1

•1 year ago

17 Replies

How long does it take?

I have been given Hydroxocobalamin injections (loading dose) over Xmas. I haven't noticed any difference in my health so far. I still have extreme fatigue,...

I have been given Hydroxocobalamin injections (loading dose) over Xmas. I haven...

BrianTheElder

•1 year ago

29 Replies

Genetic variants relating to b12 absorption, metabolism and status.

An article from 2018 that demonstrates the complexity of the b12 pathway and the numerous faults/variants that can reduce its uptake. For anyone interested...

An article from 2018 that demonstrates the complexity of the b12 pathway and the...

MorningMist

•1 year ago

4 Replies

is active b12 a better indicator than free b12

hi all my recent total b12 test came in at 468 (range 179-2000) so just 17% through range. I take sublingual b12 drops daily, a vitamin b complex tablet and...

hi all my recent total b12 test came in at 468 (range 179-2000) so just 17% th...

Knackeredandcross

•1 year ago

22 Replies

Nervousness

Does anyone here with PA/B 12 deficiency suffer with neurological effects such as mini anxiety attacks. Never experienced anxiety or sporadic nervousness...

Does anyone here with PA/B 12 deficiency suffer with neurological effects such a...

25092

•1 year ago

54 Replies

Uti’s

I suddenly developed an allergic reaction to penicillin. Then a few years later I kept on having reoccurring water infections. The doctors can only give me 2...

I suddenly developed an allergic reaction to penicillin. Then a few years later ...

msjalien

•1 year ago

17 Replies

Interesting Video About B12

This video has nothing to do with pernicious anemia but towards the end of the video it talks about B12 curing canker sores. I thought it was interesting...

This video has nothing to do with pernicious anemia but towards the end of the v...

MoKayD

•1 year ago

4 Replies

Ready Teddy ...

Tomorrow I have my GP appointment, in response to the nerve conduction study showing I have nerve damage in my feet. This is in addition to my old friends,...

Tomorrow I have my GP appointment, in response to the nerve conduction study sho...

Treesong2023

•1 year ago

20 Replies

Reactions to Antibiotics and unable to treat UTI/Prostatitis

Hello all, I'll try to keep this as short as possible! Background: Vegan since 2012, vegetarian from 2007. I stopped multivitamin that contained 160 mcg of...

Hello all, I'll try to keep this as short as possible! Background: Vegan sin...

Whoa182

•1 year ago

16 Replies

WHEN ORDERING FROM AMAZON ,PLEASE USE www.smile.amazon.co.uk AND CHOOSE THE PERNICIOUS ANAEMIA SOCIETY AS YOUR CHARITY .

The Society has benefitted by over £1,000 already “ Every littje helps “ . Thank you .

The Society has benefitted by over £1,000 already “ Every littje helps “ . Tha...

wedgewood

•1 year ago

4 Replies

Support groups

Hi does anybody know if there is a b12 deficiency/ Pa support group in Liverpool that I can physically attend? I don't have Facebook I would really benefit...

Hi does anybody know if there is a b12 deficiency/ Pa support group in Liverpool...

Hidden

•1 year ago

2 Replies

Weak and Skin Burning

I have PA. I had covid three times last year. I was settled on B12 H every couple of months for years but got the old neurological symptoms back after...

I have PA. I had covid three times last year. I was settled on B12 H every coupl...

Blais

•1 year ago

24 Replies

Recent blood results

Can anyone help with results. Iron 10.22 ( range 6_26) Tibc 71 range 41-82 CRP 1.1 range 0-6 Ferritin 97.02 range 20-200 Tsh 2.9 Vitamin D 20 ( range 50-150)...

Can anyone help with results. Iron 10.22 ( range 6_26) Tibc 71 range 41-82 CRP 1...

Happyxx

•1 year ago

3 Replies

Diagnosed with b12 deficiency not pernicious anemia so far.

Wondering if anyone suspects covid vaccine and b12 deficiency. I have tinnitus b12. speech impairment headaches last about 2 minutes also transulent zig zags...

Wondering if anyone suspects covid vaccine and b12 deficiency. I have tinnitus b...

Janeames

•1 year ago

26 Replies

Suspected B12 deficiency and about to start SI

Hi everyone, I’ve had ID anaemia (microcytic hypochromic) for over 20 years and was told by a GP many years ago that this was due to malabsorption. I’ve had...

Hi everyone, I’ve had ID anaemia (microcytic hypochromic) for over 20 years and ...

Gecko22

•1 year ago

33 Replies

Anyone ordered from Apohealth

Hi,Has anyone ordered B12 Depot from Apohealth, are they reliable. Their price for the Pascoe brand seems reasonable and with free delivery but I've only used...

Hi,Has anyone ordered B12 Depot from Apohealth, are they reliable. Their price f...

Adsypadsy

•1 year ago

25 Replies

B12 test

Hi I fear I've been deficient for many years, digestion issues for 20 years, always exhausted hair loss, teeth enamel worn away. stuttering dizziness memory...

Hi I fear I've been deficient for many years, digestion issues for 20 years, alw...

Hidden

•1 year ago

7 Replies

worried about high levels

Good morning everyone. It has been a while, and I had asked for blood tests before I went and had some private B12 injections, as my own Doctor had stopped...

Good morning everyone. It has been a while, and I had asked for blood tests bef...

maclin232

•1 year ago

4 Replies

Anyone tried "Auto-Injector" for B12 self shot

I am scared of self injecting myself weekly B12 shot, currently I am spending lot of money going to clinics to get it. Any one tried Auto-Injectors for self...

I am scared of self injecting myself weekly B12 shot, currently I am spending l...

Maan2020

•1 year ago

10 Replies

Relationship between B12 and folate levels to hearing impairment

An interesting article relating hearing impairment to B12 and folate levels: https://academic.oup.com/ajcn/article/69/3/564/4694205 An abstract on a similar...

An interesting article relating hearing impairment to B12 and folate levels: ht...

WiscGuy

•1 year ago

12 Replies

Gas Stoves and B12 Deficiency Question

Here in the US the dangers of gas stoves has been all over the news recently. I wondered if these gasses might impact B12 levels and found this: One...

Here in the US the dangers of gas stoves has been all over the news recently. I...

MoKayD

•1 year ago

4 Replies

My GP wants me to have blood tests...

During a recent appointment for a colonoscopy my GP has insisted I go in for blood tests. However my procedure and outcome for the colonoscopy were fine, but...

During a recent appointment for a colonoscopy my GP has insisted I go in for blo...

Hidden

•1 year ago

7 Replies

husband now si every other day

i posted recently about the problems we were having getting regular B12 injections for my husband. He has neurological symptoms and neuropathy. Gp would not...

i posted recently about the problems we were having getting regular B12 injectio...

Helsan

•1 year ago

23 Replies

Yellow-blue blindness: a B12 deficiency symptom ?

I have had problems with deteriorating eyesight in recent years, especially during dark winter evenings. Lately, it seems worse. I can't paint in the...

I have had problems with deteriorating eyesight in recent years, especially duri...

Cherylclaire

Forum Support•1 year ago

15 Replies

unwanted body hair

I was recently diagnosed with pernicious anemia and I’ve been getting unwanted body hair on the chest and stomach and neck, my doctor said the anemia can cause...

I was recently diagnosed with pernicious anemia and I’ve been getting unwanted b...

Becca2023

•1 year ago

9 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2023

First loading injection done!

Examining the Diagnosis and Treatment Experiences of People Living With Autoimmune Gastritis and Pernicious Anemia

Tees Valley B12 deficiency treatment guidelines

SI Help and Info

Jaundice?

b12 deficiency symptoms

How long does it take?

Genetic variants relating to b12 absorption, metabolism and status.

is active b12 a better indicator than free b12

Nervousness

Uti’s

Interesting Video About B12

Ready Teddy ...

Reactions to Antibiotics and unable to treat UTI/Prostatitis

WHEN ORDERING FROM AMAZON ,PLEASE USE www.smile.amazon.co.uk AND CHOOSE THE PERNICIOUS ANAEMIA SOCIETY AS YOUR CHARITY .

Support groups

Weak and Skin Burning

Recent blood results

Diagnosed with b12 deficiency not pernicious anemia so far.

Suspected B12 deficiency and about to start SI

Anyone ordered from Apohealth

B12 test

worried about high levels

Anyone tried "Auto-Injector" for B12 self shot

Relationship between B12 and folate levels to hearing impairment

Gas Stoves and B12 Deficiency Question

My GP wants me to have blood tests...

husband now si every other day

Yellow-blue blindness: a B12 deficiency symptom ?

unwanted body hair

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