Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for November 2022

B12 Test

I would like to get my B12 tested again using private Active B12 test. Last jab 2 weeks ago and take supplements. Would this be ok?

I would like to get my B12 tested again using private Active B12 test. Last jab ...

smg1950

•1 year ago

3 Replies

Doctor says it’s just stress

I am in bad shape and not getting better as I thought I solved it. Meat eater so non-vegan/vegetarian Early July I began to wake up daily around 3:30am with...

I am in bad shape and not getting better as I thought I solved it. Meat eater s...

Tarkettjim

•1 year ago

9 Replies

Liposomal B12

Does anyone know about this form of B12? is it more effective than standard B12 supplements? would it be an alternative to injections?

Does anyone know about this form of B12? is it more effective than standard B12...

Vonni7

•1 year ago

4 Replies

Want to take advantage of all our features? Just log in!

Questions & Advice for a newbie please!

Hi all, I've been investigating possible causes of long-term fatigue. My symptoms & PA risk factors are listed below. I'm currently waiting on results for the...

Hi all, I've been investigating possible causes of long-term fatigue. My symptom...

Spiralizer

•1 year ago

4 Replies

IFAB testing guidelines per Mayo clinic laboratory website

I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be...

I found this IFAB test guideline. I found a few things pretty interesting. This ...

EllaNore

•1 year ago

15 Replies

Advice please

I have 8 weekly injections at GP & si in between when needed. I have two queries first are there any hints on si to make it easier? I have si about 20 times &...

I have 8 weekly injections at GP & si in between when needed. I have two queries...

Monbretia

•1 year ago

11 Replies

Something to fill your heart with love

I thought maybe a little bit of pure love would be good for us all. This is so heartwarming it brings tears to my eyes. They saved a little chimpanzees life by...

I thought maybe a little bit of pure love would be good for us all. This is so h...

EllaNore

•1 year ago

16 Replies

Folate

I’m wondering if anyone can advise me. I’ve been having injections of Hydroxycobalamin every 8 weeks for years and have been fine. About 6 weeks ago I had a...

I’m wondering if anyone can advise me. I’ve been having injections of Hydroxyco...

Blais

•1 year ago

14 Replies

I'm very confused. Please Help with tests results - I would be so grateful - thank you!

Hello everyone, I hope to find a little clarity. I'm afraid this is a long post. I'm so sorry. And with my brain these days, I will try to make things clear...

Hello everyone, I hope to find a little clarity. I'm afraid this is a long post...

EllaNore

•1 year ago

93 Replies

Horribly dismissive Dr!

just wanted to share my experience at the GPs today somewhere I know people will understand…. Went today for a non-B12 issue but it wasn’t my usual dr so I...

just wanted to share my experience at the GPs today somewhere I know people will...

LauraJane2

•1 year ago

24 Replies

B12 supplements over injections

Good science on the superiority or at least the equality of supplements over injections, and yet injections seem overwhelminly prevalent. This is a source of...

Good science on the superiority or at least the equality of supplements over inj...

cyclingNut

•1 year ago

51 Replies

Extremely low Folates but B12 through the roof.

I’ve spent years suffering with extreme fatigue and insomnia. I’m severely depressed to the point of suicide because the life I’m living is no life. I live...

I’ve spent years suffering with extreme fatigue and insomnia. I’m severely depre...

MaryBr3

•1 year ago

32 Replies

Folic Acid

Hi, I have been having B12 injections for 20 years (every 10 wks), but last year started fainting and having really bad palpitations, I actually pased out...

Hi, I have been having B12 injections for 20 years (every 10 wks), but last ye...

Mioe

•1 year ago

11 Replies

B12 Study

I don't really understand what this study is showing so I thought I'd post it here and see what smarter members make of it...

I don't really understand what this study is showing so I thought I'd post it he...

MoKayD

•1 year ago

6 Replies

Low Ferritin

Hello everyone,Any advice please? I have had my blood tests results back, they say the following.. Serum ferritin 6ug/L [23.0- 300.0] below low reference...

Hello everyone,Any advice please? I have had my blood tests results back, they s...

Pheebs93

•1 year ago

15 Replies

Trying to get diagnosed for b12

Hi all, I have a friend who suspects she is b12 defficient, she is finding this site a bit difficult to get round, she would like some info on links to the...

Hi all, I have a friend who suspects she is b12 defficient, she is finding thi...

Mioe

•1 year ago

9 Replies

4th time lucky: an interesting appointment

This might not make a lot of sense to anyone who didn't see my last post about angular cheilitis, but if you are interested, have a look (photo attached)....

This might not make a lot of sense to anyone who didn't see my last post about a...

Cherylclaire

Forum Support•1 year ago

7 Replies

Advice for my daughter please - possible PA?

Sorry for the long post and lack of test results but I’d be grateful for some advice on next steps My daughter has Hashimotos thyroid disease and is treated...

Sorry for the long post and lack of test results but I’d be grateful for some ad...

Jacs

•1 year ago

12 Replies

Little Update

Hello beautiful people I self inject and have since 2018. My MRI is wonderful Seen Neuro yesterday first time. He wants to do electric conducts on my body...

Hello beautiful people I self inject and have since 2018. My MRI is wonderful ...

Sunshine1932

•1 year ago

20 Replies

B12 deficient - just wanted to share

Hi all, I just wanted to share my story as I've had so many thoughts and concerns rattling around my head these past couple of weeks that I don't know if I'm...

Hi all, I just wanted to share my story as I've had so many thoughts and concer...

TheDukeOfDogs

•1 year ago

4 Replies

The possible beneficial effect for the treatment of peripheral neuropathy of two neuroactive steroids, progesterone and pregnenolone

I was researching pregnenolone on the internet and came across this article. It may be of interest to anyone struggling with neuropathy. Pregnenolone is...

I was researching pregnenolone on the internet and came across this article. It ...

Lunario

•1 year ago

3 Replies

B12 Relationship with Folic acid

After advice or information, is folic acid levels effected by b12 injections? Does folic acid level drop because you are injecting B12? what is the...

After advice or information, is folic acid levels effected by b12 injections? D...

Vitali-ep

•1 year ago

1 Reply

Has anyone found another place to test MMA please? Viapath via St Thomas are not offering it anymore. Has anyone tried the pinprick version?

Hi, Really disappointed on contacting Viapath (through St.Thomas Hosp) to hear they are no longer offering the MMA test. I was diagnosed with functional b12...

Hi, Really disappointed on contacting Viapath (through St.Thomas Hosp) to hear...

Jo5454

•1 year ago

4 Replies

apologies for strange question !

hi lovely people Hope you don’t mind me posting again but you’re always so helpful … I still have elevated B12 (have done for 3 years ) and Gp said no idea...

hi lovely people Hope you don’t mind me posting again but you’re always so hel...

Tiggywoos

•1 year ago

6 Replies

ATROPHIC GASTRITIS

I usually just manage with paracetamol for pain relief as anti inflammatory meds are not allowed My GP has prescribed Tramadol as I have hip pain has anyone...

I usually just manage with paracetamol for pain relief as anti inflammatory meds...

davina70

•1 year ago

15 Replies

B12 Deficiency / PA & Sjorgen's

Is there a link between low B12 and Sjorgen's? Anyone dealing with both of these as well as low Ferritin/Iron? I have an appointment in two weeks with a...

Is there a link between low B12 and Sjorgen's? Anyone dealing with both of thes...

lambuth_eagle

•1 year ago

5 Replies

Nutrition

All of us with B12 deficiency are by default interested in nutrition, if only the small slice involving B12. People who are interested in general in the...

All of us with B12 deficiency are by default interested in nutrition, if only th...

WiscGuy

•1 year ago

2 Replies

Netherlands to ban laughing gas from January

An interesting item on BBC news : BBC News: Netherlands to ban laughing gas from January: https://www.bbc.co.uk/news/world-europe-63634557

An interesting item on BBC news : BBC News: Netherlands to ban laughing gas ...

Polaris

•1 year ago

11 Replies

Dentist

I am to have a tooth extracted. What anethsthetic can I have. I'm in pain so if they only have the one to avoid, how much and in what way will it affect me...

I am to have a tooth extracted. What anethsthetic can I have. I'm in pain so if ...

3rdNettydoon

•1 year ago

31 Replies

peripheral neuropathy causes!

How do we know which disease is causing it? To cut a long story short , I have been seen by a neurologist to investigate the peripheral neuropathy from my...

How do we know which disease is causing it? To cut a long story short , I have ...

Scott-rock

•1 year ago

7 Replies

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(75)

All things Pernicious Anaemia Society(75)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2022

B12 Test

Doctor says it’s just stress

Liposomal B12

Questions & Advice for a newbie please!

IFAB testing guidelines per Mayo clinic laboratory website

Advice please

Something to fill your heart with love

Folate

I'm very confused. Please Help with tests results - I would be so grateful - thank you!

Horribly dismissive Dr!

B12 supplements over injections

Extremely low Folates but B12 through the roof.

Folic Acid

B12 Study

Low Ferritin

Trying to get diagnosed for b12

4th time lucky: an interesting appointment

Advice for my daughter please - possible PA?

Little Update

B12 deficient - just wanted to share

The possible beneficial effect for the treatment of peripheral neuropathy of two neuroactive steroids, progesterone and pregnenolone

B12 Relationship with Folic acid

Has anyone found another place to test MMA please? Viapath via St Thomas are not offering it anymore. Has anyone tried the pinprick version?

apologies for strange question !

ATROPHIC GASTRITIS

B12 Deficiency / PA & Sjorgen's

Nutrition

Netherlands to ban laughing gas from January

Dentist

peripheral neuropathy causes!

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive