Can anyone tell me if they get a trickling feeling in their head not sure if this could be related to b12
Trickle : Can anyone tell me if they... - Pernicious Anaemi...
Trickle
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Prettywoman73
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Yes ive had it It's a neurological symptom.Very weird feeling
Also numbness across face and nose
Tight skull
Heavy 'sticky ' eyelids
Skeletal Pains especially above my ears
Tinnitus
All sorts in my head and skull. Pains
Hi and thankyou for replying Yes I get similar, have you been to the doctor, I’m too scared to go
I finally got a telephone ent appt.As had 'head' symptoms prevalent from the start 2018.
Did have a head Ct
2 subsequent brain MRis
Have never had any explanation or answers apart from possible cerebellar damage from late diagnosis of b12.
By a late Neurologist in 2020.
The trickling sensation went .
No idea when
Difficult as such an array of symptoms over that time span.
I would see a doctor if its possible.
Masks are worn.
Hand washing ect.
I believe lower risk than many other environments if 1:1 and can wait outside if preferred before going in .
You will most likely receive a telephone consultation anyhow.
Yes! After injection like crawling creepy sensation, goes after a while. (I assume this is nerves being stimulated).
I get strange sensations in my head and have had CT and MRI scans but don"t know if B12 related or not . Best wishes😀
Hi,
Yes, I can relate to that feeling.
I used to feel spiders were crawling all over me. Look up "formication" which I think is the medical name for that sensation.
I also used to get the sensation that cold water was trickling down my spine.
These strange sensations probably come under the medical term "paraesthesia".
They may be a sign that nerves are being affected by something and can sometimes be associated with peripheral neuropathy (damage to peripheral nerves) so please talk to your doctor.
I am sorry that you feel scared to go to your GP.
Have you had a bad experience with your doctors? I had some very difficult experiences trying to get my B12 deficiency diagnosed and treated.
You could seek support from PAS.
PAS (Pernicious Anaemia Society)
Based in Wales, UK. Has some members in other countries.
pernicious-anaemia-society....
There is a helpline number that PAS members can ring.
Some UK forum members have been helped by person who runs B12 Deficiency Info website.
UK link about changing GPs
nhs.uk/common-health-questi...
Symptoms of B12 Deficiency
pernicious-anaemia-society....
b12deficiency.info/signs-an...
b12d.org/admin/healthcheck/...
Next link mentions symptoms of B12 deficiency and folate deficiency
cks.nice.org.uk/topics/anae...
Symptoms list (from B12 Institute netherlands)
b12-institute.nl/en/symptom...
Symptoms of Peripheral Neuropathy
nhs.uk/conditions/periphera...
Peripheral neuropathy can be associated with B12 deficiency and sometimes with folate deficiency.
I am not medically trained.
Hi thanks for that information, I don’t get the feeling in my skin it’s just the trickling water sensation in my head , but I also having problem with my left ear, so don’t know if it’s related again thanks
I do remember you stating you were on 3 monthly injections in another post.
If you have neurological symptoms, UK treatment suggests injections every 2 months.
BNF Hydroxocobalamin
bnf.nice.org.uk/drug/hydrox...
See Point 1 and Point 5 in links below if you think your B12 treatment is inadequate.
Letters to GPs about B12 deficiency
b12deficiency.info/b12-writ...
NICE guidelines Neurological Referrals
NICE Quality Statement on Neurological Referrals
Local CCG/Health Board may have a local policy on referral to neurology.
Next link explains when patients with B12 deficiency should be referred to a haematologist and gastro enterologist.
Yes, mine is down the back of the left side of my neck, occasionally elsewhere on scalp. I used to get the 'cold water down back' feeling that Sleepybunny mentions and the formication - like ants crawling all over the skin. I had a lot of other weird neuro symptoms over many years, but they have changed over time as I have made changes, including going gluten free (for another reason). Now diagnosed with Small Fibre Neuropathy and still a work in progress. If possible I'd try your GP for a neuro referral. My neuro says that some/all of my issues could have been gluten related but testing not available to confirm. I know that methyl B12 and methylfolate supplementation drastically improved some symptoms for me, but family have a strong history of deficiency and PA. The gluten issue had made all my nutrient levels very low. Best wishes
Hi - this may be the “pins & needles” feeling common in B12 deficiency. It’s one of the first symptoms I noticed. Later it moved to my hands along with a burning sensation in my arms. Hope this helps. 😊
Hi SigNi Thankyou for replying , if it’s pins and needles feeling would it actually feel like a trickling sensation because I don’t know , yes sometimes I get the tingling in my fingers and my feet, all the replies help Thankyou so much
Yes, I do think it could feel that way. I had it sporadically on my scalp. Interestingly, it faded away as the numbness in my hands and feet became worse. I also have other deficiencies-b vitamins, d, mangan, and omega 3. All of these can cause overlapping or similar symptoms- it’s good to know if you have other deficiencies & what is causing it all. Wishing you luck in sorting it out. 💗
I think it's related to B12 deficiency as I have been suffering this ever since I was diagnosed over 14 years ago only mine is a tingling burning sensation at the back of the head (which is most of the time) and when I'm due an injection I get it on my back and soles of feet. These had subsided over time but since I had covid plus the covid injections it seems to have come back with a vengeance
Hi angie47Thankyou for replying , it worries me when this happens, I also get like a pinsand needles or tingling sensation at the side near the bottom of my back, I also had covid and I feel that these symptoms have only started coming since I contracted the virus, I have ne er felt right since I had it, but trying to see a doctor is such a task, thanks again
As I said I've had this sensation for some time and covid triggered the symptoms I get when I need a B12 injection I did report that to the NHS when I had my first covid injection
Hi, yes I get weird noises in my head it’s really hard to explain but is like an electric shock noise if that makes sense! It’s not all the time just now and again, I think it’s classed as tinnitus and is a symptom I believe .
I am in US was diagnosed with Macrocytic Anemia on 2/17/21, which I now realize that I had since 2019 and was never told and Pernicious Anemia in March 2021. I have had issues with the left side of my neck, they say it's disc issues, I say it's a combination of muscular and nerve issues. I also believe, yes, I probably do have disc issues, since this has severely aged me! Several months ago, it felt like I had worms wiggling around inside my brain/neurons misfiring maybe - I am not sure how to describe. The biggest issue I have now besides being easily startled (by thought, sight, sound with screaming and/or slowed speech when I am trying to think of what I am trying to say), is burning and stinging in various places inside my brain. I have had an MRI which didn't reveal SACD. I was told the nerve issues may go away after a year, which I am waiting patiently for.
