Neuro Opthalmologist: Just wondered if... - Pernicious Anaemi...

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Neuro Opthalmologist

Nackapan profile image
4 Replies

Just wondered if anyone had seen one?

If so did you get any help from it?

I thought they offered vestibular rehabilitation or understood the brains part with sight?

Hence thd neuro title

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Nackapan profile image
Nackapan
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Hamayeshguy profile image
Hamayeshguy

If you mean visual blurriness and double vision yes I'm experiencing the same. Mine was started four years ago but last September worsened due to megaloblastic symptoms started in couple of months all common megaloblastic symptoms gone but I'm still struggling with visual disturbances and other symptoms. But exercise to somehow fixed my symptoms like burning feet dizziness vertigo numbness in hands and feet. Sweating and palpitation at midnight and also insomnia. My visual problem diminished but come and go. Still blurred vision and somehow double vision. My problem mostly is with my muscles and vision. I found that the new symptoms are related to local blood pressure dropping due to vascular smooth muscles relaxing and cause blood volume not fit for oxygenating feet and hands and as week brain so external stimulant I mean exercise for having better blood circulation fix this problems so I focused on blood circulation improvement it mean as soon as wake up in the morning till late night I try to walk fast and exercise like light stretching and some muscle resisting exercises and some mixed exercises. But I found in my diet I have to eliminate carbohydrates and instead add some saturated fats from good sources to help myelin sheath repair faster by oligodendrocytes which I'm not sure have function for non CNS nerves. But I'll try and see along with other nutrients.

Nackapan profile image
Nackapan in reply to Hamayeshguy

My visual isturbsnces started way before my b12 deficiency diagnosis. Now I know Al connected. Since b12 treatment my prescription went down again.

Text disappears ftom the right as I read.

Reading a book impossible.

This screen okay most of the time.severak other things.

I wad interested to see if anyone had benefitted from seeing a neuro opthmologist .

My eyes are healthy. Have had them checked several times.

It's the messaging/ nerves .

Ad yiu say pethaus circulation.

Also artifical light sensitivity which gives bad tinnitus snd stagger walk and general head pains. So really not co.fkrtake to do anything much.

TV is a very occasional treat. Every few months I try a little but mostly listen.

It was a definite noeven trued black and white. Used to love 'strictly ' so a real nuisance

palmier profile image
palmier

Not exactly an answer to your question, but recently I came across the term "gluten ataxia" and thought of you. It seems that unexplained balance problems have been correlated to gluten sensitivity by a neurology professor in Sheffield:

Dr. H has conducted extensive research into gluten ataxia, having first described the condition in the 1990s after seeing a number of patients with unexplained balance and coordination problems. He began systematically testing these patients for gluten sensitivity using antigliadin antibodies and found a very high prevalence of antibodies in patients with ataxia, suggestive of a heightened immune response to gluten but not necessarily to a diagnosis of celiac disease.

theglutensummit.com/team/ma...

Maybe a long shot but thought it might be of interest to you.

More about gluten and neurological conditions:

coeliac.org.uk/healthcare-p...

The most common cause of ataxia with no previous family history was gluten ataxia (25%).

NICE guidelines recommend that serological testing for coeliac disease should be considered in people with unexplained neurological symptoms, particularly peripheral neuropathy or ataxia.

(Important to remember though, as for IF antibodies, test for gluten antibodies may give false negatives.)

Maybe just one more thing to rule out?

Nackapan profile image
Nackapan in reply to palmier

Thanks. I'd had coeliac ruled out.

But as yih say false negative in alot of tests .

Literally food for thought.

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