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Pernicious Anaemia Society

31,966 members • 23,107 posts

All posts for November 2019

Oily Skin - B12 Deficiency symptom...

Hi, Has anyone had suddenly oilier skin as a symptom of low b12/folate? I’ve done a bit of research of b12 deficiency symptoms and can’t find this one? Thank...

Hi, Has anyone had suddenly oilier skin as a symptom of low b12/folate? I’ve don...

Sarahlouise1980

•4 years ago

6 Replies

Blood results query

Why is it so difficult to get blood result readings over the phone? It’s infuriating! Low iron and recommended to take iron 400 mg a day which I think is a...

Why is it so difficult to get blood result readings over the phone? It’s infuri...

Twink1

•4 years ago

4 Replies

FED UP!!

So depressed & fed up of being ill 😢 my eye sight is getting worse, I’m sooooo tired all the time .... yes I keep going back to my GP (f**k knows why) he’s...

So depressed & fed up of being ill 😢 my eye sight is getting worse, I’m sooooo ...

Queeniz

•4 years ago

9 Replies

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Does insomnia get better?

I am kind of surprised that I am not reading about agitation and insomnia as a major side effect of B12 or B vitamins in general. I think that is how I ended...

I am kind of surprised that I am not reading about agitation and insomnia as a m...

EiCa

•4 years ago

10 Replies

Gastroenterologist

I was referred by my GP to a hemotologist . The hemotologist ran a peristalsis cell antibody test. No results yet. She also said I should see a...

I was referred by my GP to a hemotologist . The hemotologist ran a peristalsis ...

CW12

•4 years ago

9 Replies

Pain in arm after B12

Hi folks, Saw a post about pain in the arm after detoid injection in arm. Experienced severe pain. Could you contact me? I think its Nacapan but cant find it...

Hi folks, Saw a post about pain in the arm after detoid injection in arm. Experi...

EVMD

•4 years ago

4 Replies

Help Needed

Having some weird symptoms, severe headache, dizziness type symptoms. Also suffering from vegus nerve irritation which is causing palpations. These were bloods...

Having some weird symptoms, severe headache, dizziness type symptoms. Also suffe...

Thompson36

•4 years ago

9 Replies

Good News

Saw G.p .She had made a mistake on the notes!! No apology but asked if I got the injection yesterday. No explanation or understanding of symptoms I described...

Saw G.p .She had made a mistake on the notes!! No apology but asked if I got the...

Nackapan

•4 years ago

19 Replies

B-12 Deficiency Article

I came across this B-12 deficiency article today,...

MoKayD

•4 years ago

11 Replies

Gp wants to see me to 'review' my injections..

I was given the 6 loading doses of b12 back in august, 4 weeks later i told my gp that the symptoms were back but she told me i have to wait until my next...

I was given the 6 loading doses of b12 back in august, 4 weeks later i told my g...

Jessicarod

•4 years ago

13 Replies

Prescription charge yes or no??

On NHS, if you pay for prescriptions, do you have to pay for loading injections as well as quarterly injections? I got charged for my quarterly prescription.

On NHS, if you pay for prescriptions, do you have to pay for loading injections ...

JetPlane

•4 years ago

10 Replies

Anxiety and B12 shots

Hi, I've been having bad anxiety for quite a while and it seems to worsen after I self inject. At first I thought it was because I was only starting to inject...

Hi, I've been having bad anxiety for quite a while and it seems to worsen after ...

Heidiv

•4 years ago

14 Replies

Positive test for Lupus.

Hi all, I posted recently about a positive test for Lupus, and my GP, ignoring it. Well a quick update. I had a phone call today from the surgery with an...

Hi all, I posted recently about a positive test for Lupus, and my GP, ignoring i...

Mannequin18

•4 years ago

2 Replies

Treated for low B12 and now low folic acid

I was told I was B12 deficient at the end of June and was given the 6 loading doses and I’m now receiving 3 monthly injections for B12 deficiency. I went back...

I was told I was B12 deficient at the end of June and was given the 6 loading do...

Yogijo

•4 years ago

6 Replies

Have flu, is extra B12 shot a good idea or not?

I usually get a flu shot (preservative-free for safety) but I waited too long this year and caught the flu. It's been four days of fevers and exhaustion and...

I usually get a flu shot (preservative-free for safety) but I waited too long th...

genesurf

•4 years ago

10 Replies

Newly diagnosed

Hello All, I have been diagnosed with PA the one where my body attacks the intrinsic factor. This is all new to me. I am 35 and finally all of my symptoms seem...

Hello All, I have been diagnosed with PA the one where my body attacks the intri...

Drimmer

•4 years ago

14 Replies

Loading injections

Can anyone point me the direction of where it tells my doctor what treatment I should of received following my low b12 result please in the uk? I was told my...

Can anyone point me the direction of where it tells my doctor what treatment I s...

JetPlane

•4 years ago

13 Replies

Subcutaneous injections

Am now going to look into sc injections to do at home. Can't be at the mercy of the sugery after the second time this has happened. Does anyone get theses...

Am now going to look into sc injections to do at home. Can't be at the mercy of...

Nackapan

•4 years ago

25 Replies

B12 injection refused

Saw the Gp last Friday. She didn't mention the b12 test done at same time as folate. In consult said I could have the b12 injections when I need them.( I...

Saw the Gp last Friday. She didn't mention the b12 test done at same time as fo...

Nackapan

•4 years ago

10 Replies

Adverse reactions to b12 injection therapy?

I'm probably deficient in b12 as I have many of the relevant symptoms (including neurological) so I started b12 injection therapy in the advice of my Doctor....

I'm probably deficient in b12 as I have many of the relevant symptoms (including...

Shajarin

•4 years ago

3 Replies

Newly diagnosed PA brain fog

Hello, newly diagnosed PA. I have had brain fog as long as I can remember and have always felt disconnected. I assume this is the PA? Will it ever go away? I...

Hello, newly diagnosed PA. I have had brain fog as long as I can remember and ha...

Drimmer

•4 years ago

4 Replies

Diagnosis

In July I was feeling unwell with extreme fatigue, dizziness, pins & needles, breathlessness & palpitations. Blood tests showed B12 137 n190 - 660 folate 3.7...

In July I was feeling unwell with extreme fatigue, dizziness, pins & needles, br...

Sinclair12

•4 years ago

13 Replies

Gp review after b12 stopped

Hello 👋 I need some advice please. My gp practice carried out a generic review of b12 patients back in July and they decided I could no longer have b12...

Hello 👋 I need some advice please. My gp practice carried out a generic review...

Twinklesthecat

•4 years ago

38 Replies

How to schedule b12 injections with Iron & folate supplements?

I'm probably deficient in b12 so I started b12 injection therapy. After initiating the therapy the blood count test showed mild decrease in iron level so I...

I'm probably deficient in b12 so I started b12 injection therapy. After initiati...

Shajarin

•4 years ago

2 Replies

Going to doc - advice?

Hello, I am going to my doctor to ask them to review my medical history and diagnosis of pernicious anaemia. I know doctors do sometimes miss the diagnosis so...

Hello, I am going to my doctor to ask them to review my medical history and diag...

MariaMe

•4 years ago

2 Replies

b12 makes me ichy

i take chewable tablets 1.000 mg but i get ichy on hands and neck my b12 is 259 180-900] is the normall . can i raise with meat and...

i take chewable tablets 1.000 mg but i get ichy on hands and neck my b1...

weazle74

•4 years ago

4 Replies

B12 & mannosse binding pectin deficiency??

Hi does anyone have any knowledge of B12 injections with Mannosse Binding Pectin deficiency, can it help? Would there be any negatives to trying B12? Not sure...

Hi does anyone have any knowledge of B12 injections with Mannosse Binding Pectin...

5576

•4 years ago

1 Reply

New test results are in

Family doctor - tested b12 with a result of <50 (undetectable?) and referred to neurologist due to neuropathy symptoms Neurologist - 2 more b12 related...

Family doctor - tested b12 with a result of <50 (undetectable?) and referred to ...

BethCam

•4 years ago

2 Replies

Result of blood test and ECG: no hyperthyroidism due to B12 confirmed.

I got the results from the blood test and ECG done last Friday. My ECG was normal 😊 and so was my tsh: 1.41 mU/L. Because the tsh is in the range, the lab...

I got the results from the blood test and ECG done last Friday. My ECG was norma...

Seahorse76

•4 years ago

2 Replies

How to correctly monitor/retest b12 with injection treatment?

So after about 2 months of weekly IM b12 injections (that started with a one week loading dose time frame), I saw my dr to ask to test folate, b2, magnesium,...

So after about 2 months of weekly IM b12 injections (that started with a one wee...

Raiinbow

•4 years ago

8 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2019

Oily Skin - B12 Deficiency symptom...

Blood results query

FED UP!!

Does insomnia get better?

Gastroenterologist

Pain in arm after B12

Help Needed

Good News

B-12 Deficiency Article

Gp wants to see me to 'review' my injections..

Prescription charge yes or no??

Anxiety and B12 shots

Positive test for Lupus.

Treated for low B12 and now low folic acid

Have flu, is extra B12 shot a good idea or not?

Newly diagnosed

Loading injections

Subcutaneous injections

B12 injection refused

Adverse reactions to b12 injection therapy?

Newly diagnosed PA brain fog

Diagnosis

Gp review after b12 stopped

How to schedule b12 injections with Iron & folate supplements?

Going to doc - advice?

b12 makes me ichy

B12 & mannosse binding pectin deficiency??

New test results are in

Result of blood test and ECG: no hyperthyroidism due to B12 confirmed.

How to correctly monitor/retest b12 with injection treatment?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive