Recovery

[CW12]

Did any one have an initial b12 level of around 230 low 200s.

What were you neurological symptoms ?

How long before you started to feel better?

We’re you treated with loading doses. How often are you treated?

[Leils]

Yes I was about 200 in July. Neuro symptoms are pins n needles in hands and feet, memory loss, balance issues etc etc

[CW12 in reply to Leils]

Thanks for responding. How are you feeling now?

[CW12 in reply to CW12]

Also we’re you giving loading shots. How often were you treated

[AirAl]

Hi CW12. Mine was <60. I had pins/needles in hands and legs, finger numbness, severe fatigue, depression, and MS Hug. I did methyl injections twice a week for about 6 months then went to once a week thereafter. My symptoms were almost entirely gone by about 14 months. It can take longer I've read here, even years. My advice would be DO NOT UNDERDOSE your injections. I self-inject for cost reasons (about $2/shot for me compared to $27/shot through a doc).

[CW12 in reply to AirAl]

Thank you for responding and the advice

[Ryaan]

My level dropped to about 120 with the same symptoms mentioned above.

I had weekly injections only without loading doses and all symptoms went after 3 months so maybe it’s an individual thing.

Make sure your Folate and iron levels are good and it’s also worth maintaining your Vitamin D.

[Lorna12345]

Did any of you had muscle twiches (not cramps)?

[CW12 in reply to Lorna12345]

Yes I had twitching

[Lorna12345 in reply to CW12]

When were you diagnosed?do you still have twiches?

[CW12 in reply to Lorna12345]

That was my initial symptom. Thumb twitching that lasted two weeks. Now slight pins and needles and some weakness. I was diagnosed in August. I have had 2 injections. No loading shots

[Hidden in reply to CW12]

Could you describe your weakness for me? I have noticed that my right leg and also arm have a sort of burning sensation that comes and goes, the sort of burn you get when you are exercising and the muscle is fatiguing. If I’m exercising and doing strength training, my right arm fatigues significantly faster than the left. I also had B12, diagnosed at 170. I’ve been trying to determine if it’s a B12 issue or otherwise. My MRIs and EMG tests were normal.

[CW12 in reply to Hidden]

It felt like a shakiness. As if I didn’t have full strength. Kind of a burning sensation

[CW12 in reply to Hidden]

170 is very low. Mine was 230... I also had a clean MRI

[Hidden in reply to CW12]

Sounds like a bit like what I am experiencing. Did you have it in both limbs or was it more predominant on one side? Thanks for answering, I know this is an older thread.

[CW12 in reply to Hidden]

I was only on one side... right side

[janepurser]

Hiya CW12,

I had a reading of 110 and had previously developed a head tremor (over several years which I don't notice but everyone else does). I'd seen my GP about the head tremor he previous year and once diagnosed with Pernicious Anaemia she said B12 injections would help.

In addition to head tremor my memory is now very poor (it used to be razor sharp), I do experience puns & needles in my arms and hands and also mouth and tongue. I do get twitching in my legs.

I've been self injecting for two years now every other day and haven't noticed any discernible difference to any of my symptoms. I'll still inject in the hope I do.

Cheers

Jane

[MissPinBG]

So my B12 was 96, I experience a little fatigue but mainly neuro symptoms...tingling/numbness including in my face, muscle twitches, shakiness, occasional dizziness, poor memory. My Dr seems to think that whilst a lack of B12 can do some strange things, some symptoms might not be caused by the deficiency so I have been referred to a Neurologist. I have had 6 loading injections of B12 but been prescribed the tablets as my intrinsic factor test came back negative. I only finished my loading doses last week and am yet to feel any different. All a bit worrying but I think the anxiety probably makes my symptoms worse!

[CW12 in reply to MissPinBG]

Wow your dr seems uniformed . Your b12 is extremely low and causes the symptoms you have, however it is smart to further investigate. Recovery is slow . And yes anxiety make neurological symptoms worse... did for me.