Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for May 2019

*Please help with posting first order

Hello All @ Health Unlocked, I would appreciate any help, I am trying to purchase B12 online, I am on the 'www.mycare.de' site filling out the form and...

Hello All @ Health Unlocked, I would appreciate any help, I am trying to purch...

_Rose

•5 years ago

19 Replies

Can you have PA, inability for cells to access b12 if ok active b12 levels.

I have hypothyroid, Hashimoto’s, fibromyalgia and insulin-dependent diabetes and for last 15 months worked my way thru lots of protocols to try to get rid of...

I have hypothyroid, Hashimoto’s, fibromyalgia and insulin-dependent diabetes and...

Judithdalston

•5 years ago

2 Replies

How to use the term "Pernicious Anaemia" correctly

Over time, old medical terms (such as Alzheimer's dementia) take on a new meaning as research makes new findings. I wonder about Pernicious Anaemia as...

Over time, old medical terms (such as Alzheimer's dementia) take on a new meanin...

Cetus

•5 years ago

14 Replies

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Is there any association with B12 deficiency and sensitivity to oxalates?

I was diagnosed with B12 deficiency last year, and taking 1,000 mcg sublingual methyl B12 since then has been a miracle. Lately I think I have discovered a...

I was diagnosed with B12 deficiency last year, and taking 1,000 mcg sublingual m...

annielou19

•5 years ago

6 Replies

PA on "This Morning" Alert!

Just watching "This Morning" and heard Dr Chris will be discussing PA or B12 deficiency shortly and signs to look for! Must be worth watching and hope someone...

Just watching "This Morning" and heard Dr Chris will be discussing PA or B12 de...

Catsgalour

•5 years ago

6 Replies

If you miss an injection of B12 do you have to start again with the loading dose?.

Hi all,I have PA. I did not receive my B12 when I should have. Will I have to start injecting from scratch, or would it be ok to just carry on with them? I...

Hi all,I have PA. I did not receive my B12 when I should have. Will I have to st...

Mannequin18

•5 years ago

7 Replies

Muscle/nerve spasm on upper lip

Okay so it's hard not to attribute everything to low b12, but there's a new twist to my recurring teeth aching.....I have muscle spasms in my right cheek that...

Okay so it's hard not to attribute everything to low b12, but there's a new twis...

Ashweb901

•5 years ago

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Acne with B12 loading dose

Hi all, I have recently been diagnosed with B12 and folic acid deficiency and have just had my loading dose of 6 injections, after the first 4 my skin has...

Hi all, I have recently been diagnosed with B12 and folic acid deficiency and ha...

Lion3

•5 years ago

2 Replies

Has anyone become sensitive to hydroxo?

I've been stepping up my self injections following a relapse and I've injected on 14 of the last 17 days; whilst my legs feel better, my headache and backache...

I've been stepping up my self injections following a relapse and I've injected o...

expatkerry

•5 years ago

11 Replies

Vit D & B12 low/borderline. Ferritin Very low, Iron deficient

Hi, I have been struggling to get myself out of the low/borderline/deficient levels. I am taking a cocktail of Preg Omega Plus supplements, as well as VitB12,...

Hi, I have been struggling to get myself out of the low/borderline/deficient lev...

powderpuffgosh

•5 years ago

13 Replies

50mcg B12 Hard to Find Online for the US

I'm trying to find some 50mcg b12 online somewhere for US delivery. Seems like retailers only want to sell the higher concentration stuff. Lowest I found was...

I'm trying to find some 50mcg b12 online somewhere for US delivery. Seems like r...

lownskater52

•5 years ago

1 Reply

Tinnitus after beginning supplementation?

Hey everyone, Has anybody had an experience of getting tinnitus after beginning b12 supplementation? As a quick reminder, I'm vegan and my level was 159 when I...

Hey everyone, Has anybody had an experience of getting tinnitus after beginning ...

lownskater52

•5 years ago

7 Replies

B12 reading 103

I have low B12 reading of 103. My diet is good but I am on PPI's. My doctor is refusing injections and saying I must take 3 50mcg tablets (150mcg) a day for 3...

I have low B12 reading of 103. My diet is good but I am on PPI's. My doctor is r...

Hidden

•5 years ago

11 Replies

Q

There has to be something wrong with me, I get b12 injections once every 8 weeks ok? But I feel great after it, no side effects but it does disappears after a...

There has to be something wrong with me, I get b12 injections once every 8 weeks...

Monkeyman58

•5 years ago

6 Replies

Symptoms are creeping back

Long story short...I started supplementing in Feb, after believing I was b12 deficient. My level was 238 and I had several neurological symptoms. After being...

Long story short...I started supplementing in Feb, after believing I was b12 def...

Awil

•5 years ago

13 Replies

Confused

Can anyone please advise as I'm totally confused ! For many years have had constant pins and needles first in legs only now also in arms and fingers. Also...

Can anyone please advise as I'm totally confused ! For many years have had cons...

Caroline50

•5 years ago

8 Replies

Should my sister take b12 pills?

Hello! My sister has been quite unwell for a number of years, she had some tests done a couple of years ago by her GP which included Serum B12 and came out...

Hello! My sister has been quite unwell for a number of years, she had some tests...

Sick-and-Tired

•5 years ago

4 Replies

Blood tests

Hello. Go advised me to take 400mcg folic acid daily as level 9. Now above range!! So have cut back. Is it best to stay mid range? Also told to take iRon...

Hello. Go advised me to take 400mcg folic acid daily as level 9. Now above range...

Nackapan

•5 years ago

1 Reply

Do your teeth hurt

My Dr stopped my B12 about 4 months ago as level had come up she said. Now my face, lips tingle and all my teeth hurt. I get out of breath easily and I’m so...

My Dr stopped my B12 about 4 months ago as level had come up she said. Now my fa...

Maggie29

•5 years ago

28 Replies

Self injecting and Hypokalaemia

Hello! I self inject weekly, but have come across a B12 group on Facebook which states that self injectors should be cautious due to Hypokalaemia. Does anyone...

Hello! I self inject weekly, but have come across a B12 group on Facebook which ...

Sophieelizabeth

•5 years ago

8 Replies

Neuropathy question.

Hello all. Had a letter today after seeing the really nice Neurologist around 3 weeks ago. I managed to get a cancellation appointment to have the nerve tests...

Hello all. Had a letter today after seeing the really nice Neurologist around 3 ...

Ritchie1268

•5 years ago

2 Replies

How long until I feel well from injections and is it okay to inject IM daily?

Has anyone tried daily intramuscular injections in order to get their levels up to prepare for an important event? I have a week of exams running from 22 May...

Has anyone tried daily intramuscular injections in order to get their levels up...

Unlocked1224

•5 years ago

1 Reply

2 weeks since last B12 injection and I feel awful

Hello! I have a follow-up question. I went with 5 weeks of weekly B12 injections and I started to feel better. My doctor now started me on monthly injections...

Hello! I have a follow-up question. I went with 5 weeks of weekly B12 injections...

HBerry

•5 years ago

3 Replies

Does methylfolate rise histamine in the body.

Hi for the last couple of years I have been suffering with cold urticaria (I break out in hives when out in the cold, or even cold water on my hands can cause...

Hi for the last couple of years I have been suffering with cold urticaria (I bre...

lucylocks

•5 years ago

2 Replies

B12 Level 260

Hi again, I've been nagging my 26 yo daughter to have b12 levels checked as she's showing symptoms, my twins were diagnosed a couple of years ago. Her level...

Hi again, I've been nagging my 26 yo daughter to have b12 levels checked as she...

Hidden

•5 years ago

14 Replies

Signs you are due a B12 injection?

For those of you that take vitamin B12 injections regularly, what signs does your body give you that indicates you are due a shot? I have been having B12 shots...

For those of you that take vitamin B12 injections regularly, what signs does you...

Starlight1976

•5 years ago

18 Replies

Advice please

Hi all, after feeling elated that I had come clean to GP about SI and him agreeing to support me, I held off injecting until having blood tests yesterday by...

Hi all, after feeling elated that I had come clean to GP about SI and him agreei...

Hidden

•5 years ago

4 Replies

Still feeling bad

Hi everyone, I posted recently about my recent poor blood count, reoccurring macrocytosis, breathlessness etc after scaling down my self injections. Almost 2...

Hi everyone, I posted recently about my recent poor blood count, reoccurring mac...

expatkerry

•5 years ago

3 Replies

B12 Supplement Approx Half Life?

Hey everyone, From my research, I've found the approximate b12 half life to be 6 days. This would mean every 6 days from the day of supplementation, only half...

Hey everyone, From my research, I've found the approximate b12 half life to be 6...

lownskater52

•5 years ago

7 Replies

Pretty sure I have Hypokalemia due to aggressive b12 supplementation

Hey everybody, I just wrote a post about my weird CBC blood test results (...

lownskater52

•5 years ago

4 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2019

*Please help with posting first order

Can you have PA, inability for cells to access b12 if ok active b12 levels.

How to use the term "Pernicious Anaemia" correctly

Is there any association with B12 deficiency and sensitivity to oxalates?

PA on "This Morning" Alert!

If you miss an injection of B12 do you have to start again with the loading dose?.

Muscle/nerve spasm on upper lip

Acne with B12 loading dose

Has anyone become sensitive to hydroxo?

Vit D & B12 low/borderline. Ferritin Very low, Iron deficient

50mcg B12 Hard to Find Online for the US

Tinnitus after beginning supplementation?

B12 reading 103

Q

Symptoms are creeping back

Confused

Should my sister take b12 pills?

Blood tests

Do your teeth hurt

Self injecting and Hypokalaemia

Neuropathy question.

How long until I feel well from injections and is it okay to inject IM daily?

2 weeks since last B12 injection and I feel awful

Does methylfolate rise histamine in the body.

B12 Level 260

Signs you are due a B12 injection?

Advice please

Still feeling bad

B12 Supplement Approx Half Life?

Pretty sure I have Hypokalemia due to aggressive b12 supplementation

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