Advice please: Hi all, after feeling... - Pernicious Anaemi...

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Advice please

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Hi all, after feeling elated that I had come clean to GP about SI and him agreeing to support me, I held off injecting until having blood tests yesterday by which point I felt exhausted. I injected as soon as I got home. This morning I felt drugged. I've had to sleep all day and still feel spaced out. I've been lying here thinking what a lonely illness this is, no-one seems to really understand :( My question is should I inject again in a day or so, could this reaction be caused because my levels have become too low? I've been managing well with bi weekly injections and even been running 5km 5 days a week. My blood pressure was also up yesterday which seems to also link to low b12 levels in me. Sorry for the long post.

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Nackapan profile image
Nackapan

Alot of exercise !! May that have caught up with you?

I tried a longer walk today (usually 10mins round the block)

15-20 mins with lots of benches to sit on. To my shock on return so weary and then felt ill with a headache. Painkillers and slept. Not had to sleep in the day for a long time.

All relative I suppose. No rhyme or reason at times. So how long didn't you inject before blood tests ?

in reply to Nackapan

Hi Nackapan, I haven't injected for a month. You're right about exercise, I don't have to inject as much if I'm not running but it keeps me sane. I lost my Dad suddenly 18 months ago and it's been such a hard journey. I chose to run rather than go on anti depressants. I'm sorry you're so shattered today too, thanks for your reply.

Nackapan profile image
Nackapan in reply to

Oh I can relate to that. My dad died suddenly some years ago. The only thing that kept me sane was that it was kinder for him. Yes you give into overdrive. Running definitely better than pills.

I hope a month is long enough not to skew blood results . A month a long time on your regime and stress levels.

I'm trying to have 2 weekly . I've got to that gap slowly. I'm now not sure if enough. But I wanted to know the impact of the injection with a bigger gap if that makes sense.

It is si diffucult advising family. True when no back up /understanding from medics. Try not to stress about it . Give your advice . That's all you can do. Stress uses b12 too!

Take care

in reply to Nackapan

He collapsed when I was living abroad so am dealing with a lot of guilt and regret. He was the most selfless man and the only person I ever felt truly accepted and loved me without judgement. I know he'd hate for me to feel sad so I'm trying not to be.

I hope not too. It will be interesting to see what my levels are.

I sometimes can't make 2 weeks and other times go 3. Hopefully your body will tell you before you have a crash like I have. So much administration for all of you living with this and still making time to reply on here.

Thanks for your kind words and encouragement. I really needed them today. Love to you ♥️

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