Still feeling bad

[expatkerry]

Hi everyone, I posted recently about my recent poor blood count, reoccurring macrocytosis, breathlessness etc after scaling down my self injections. Almost 2 weeks of self injecting (every day for 9 days then every other day) and the breathlessness has resolved, also, unexpectedly, my gastric issues have shown signs of improvement which is a bonus. However I still feel like I've been run over by a truck every morning (insomnia still a big problem), I'm spacey and I always seem to have a background headache just waiting to explode not to mention the lower back pain. I know I'm impatient and it's early days, but can someone please reassure me that the signs are good?

[Nackapan]

You have had improvements and that is to luring in its self getting there. I'm pleased for you. The symptoms you have described in have although I did sleep better now. I used the very same expression 'being hit by a truck'

I find myself being grateful for a headache rather than migrain.

As long as there is improvementa however small continue im trying to take every day as it comes.

Easier said than done I know and very frustrating. I've never experienced a condition like this which appears to have no pattern.

I find it reassuring that my very symptoms are expressed by others on here, whilst doctors stare blankly at you or keep insisting you are depressed. We are all trying to find the best regime for us to get the most repair and some quality of life back.

I'm told it takes time. I'm 7 months in and like you wondering how long and how much more patience do I have to find. Sounds like you doing well with si.

I feel for you and really hope your life improves.

[expatkerry in reply to Nackapan]

Thank you so much for reassuring me. The side of this that has you so anxious is rearing its ugly head and got me fretting this is something the doctor has overlooked. For me mornings are the worst it takes me to midday to start feeling semi normal.

[Nackapan in reply to expatkerry]

The only thing that gets me out in the morning is to get my B12 injection at the surgery! Hope you get some better sleep soon