Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,244 members • 23,423 posts

All posts for March 2019

Symptoms and time of day

Hi again, second post. Does anyone notice that their neurological symptoms get worse at certain times of the day? My tingling for instance isnt there when I...

Hi again, second post. Does anyone notice that their neurological symptoms get ...

bzvvvd

•5 years ago

10 Replies

Any reasonable place for someone in the US to order Hydroxocabalamin?

I went to order today from one of the German sites which was right in line with what my out of pocket cost here is with a prescription, but then they added the...

I went to order today from one of the German sites which was right in line with ...

Nanc72

•5 years ago

2 Replies

Thank you

Thank you clivalive for the information about prescriptions. I've been concerned about my B12 injections as gone from every other day to weekly at present....

Thank you clivalive for the information about prescriptions. I've been concerned...

Nackapan

•5 years ago

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Can someone help me understand my results?

I have been reading posts for the past year trying to get my head around the wealth of info without much success. To give you some context, I failed to pass...

I have been reading posts for the past year trying to get my head around the wea...

Mrsell

•5 years ago

3 Replies

Pernicious Anaemia?

Hi there, I have a question about pernicious anaemia. I recently had a series of blood tests and was told that I had low levels of calcium and a folate...

Hi there, I have a question about pernicious anaemia. I recently had a series of...

arch060583

•5 years ago

7 Replies

Vitamin D Vs Depression

I've just recieved a phone call from the GP office and my vitamin D levels are low again. At first my vitamin B12 levels were low and I took B12 supplements...

I've just recieved a phone call from the GP office and my vitamin D levels are l...

Cubies

•5 years ago

21 Replies

Advice required

Hi I have recently been switched to two monthly b12 injections. I have suffered liw b12 for many years and recently tested positive for pareital cell...

Hi I have recently been switched to two monthly b12 injections. I have suffere...

Sandra_Holmes_R

•5 years ago

1 Reply

Serum vitamin b12 1077 ng/l serum folate 3.7 ug/l

37 year old male. For past year have attended my doctors surgery feeling unwell, extreme fatigue, bone/joint/limb/pain had bloods done on every occasion doctor...

37 year old male. For past year have attended my doctors surgery feeling unwell,...

Cobkingkat

•5 years ago

5 Replies

The dangers of Vitamin B12 deficiency - more tickets

https://imaginebelfast.com/events/the-dangers-of-vitamin-b12-deficiency/ More tickets for this meeting due to massive demand.

https://imaginebelfast.com/events/the-dangers-of-vitamin-b12-deficiency/ More ti...

fbirder

•5 years ago

4 Replies

A PA, newbie.

Hi everyone, I was diagnosed with PA in December last year, when will I feel like my old self....does anyone know? I'm 67 yrs old.

Hi everyone, I was diagnosed with PA in December last year, when will I feel lik...

Mewsmom

•5 years ago

4 Replies

Experience with cyanocobalamin injections? What’s too much?

Hi everyone, I was wondering if anyone had experience with cyanocobalamin injections? How much is too much? I’ve been dealing with B12 deficiency now for...

Hi everyone, I was wondering if anyone had experience with cyanocobalamin inject...

Jcallag02

•5 years ago

11 Replies

Feeling rubbish after injection

Hiya, I managed to get the dr to give me the B12 every 8 weeks, instead of 12 weeks. Just had my second 8 weekly one, and while I didn't feel so bad in the run...

Hiya, I managed to get the dr to give me the B12 every 8 weeks, instead of 12 we...

H212312

•5 years ago

6 Replies

Gasritis non erosive

Via endscopy 27th feb 19 diognosed gasritis non erosive, also had 6biopsies taken 2 of from 3 places, any tips advise learning

Via endscopy 27th feb 19 diognosed gasritis non erosive, also had 6biopsies tak...

Lottie45

•5 years ago

2 Replies

Empowered by first SI

I just wanted to say thank you to all you lovely, helpful and supportive people and this forum. I have just giving myself my first b12 injection. I was a...

I just wanted to say thank you to all you lovely, helpful and supportive people ...

VMITCHELL78

•5 years ago

15 Replies

Treatment for b12 related acne

Hi everyone, I developed severe acne after my third booster shot and 6 weeks on it’s not gotten any better - each day I get 3/4 new spots which are either red...

Hi everyone, I developed severe acne after my third booster shot and 6 weeks on ...

Hidden

•5 years ago

35 Replies

Try Magnesium.

It's around 4-5 years that I have muscle fasiculations on and off in different muscles of my body like in my leg or around my eye. I searched about it and...

It's around 4-5 years that I have muscle fasiculations on and off in different m...

Mamabear1350

•5 years ago

11 Replies

How do I find a qualified person to give me Self Injection training?

I am about to start self injecting with B12. Does anyone have any suggestions on how to find training for this from a suitably qualified person? I live in the...

I am about to start self injecting with B12. Does anyone have any suggestions on...

cynic1946

•5 years ago

14 Replies

WARNING: Spate of Inappropriate Personal Messages Being Sent to Female Members Across Multiple HU Fora: Do Not Respond - Report (as below).

Hi All Just to make you aware...multiple HU fora are reporting that inappropriate personal messages are being sent to female members. These messages often...

Hi All Just to make you aware...multiple HU fora are reporting that inappropriat...

Foggyme

Administrator•5 years ago

5 Replies

Self injecting question.

I'm all ready to go for my first attempt at self injecting, I feel really nervous but the nurse showed me how to do it 3 times so I'm relatively confident...!...

I'm all ready to go for my first attempt at self injecting, I feel really nervou...

Sheebee

•5 years ago

3 Replies

Labs now showing anemia???

Please excuse my ignorance. I have PA, and had a CBC done on February 18, (with other tests) but no iron. All the labs were in normal range, except for the...

Please excuse my ignorance. I have PA, and had a CBC done on February 18, (with...

Nanc72

•5 years ago

10 Replies

haematologist appt update : for increase in B12 injections

Result 😀 After feeling v tired , foggy thinking, depressed etc & being on 1 x 3 monthly shots from being diagnosed with PA last year. I asked my GP to...

Result 😀 After feeling v tired , foggy thinking, depressed etc & being on 1 x...

Vitb

•5 years ago

3 Replies

B12 test

I believe I am b12 deficient from my symptoms and a low normal level of 238. I've been supplementing 5mg of b12 for the last month and seen great improvement....

I believe I am b12 deficient from my symptoms and a low normal level of 238. I'...

Awil

•5 years ago

1 Reply

My experience of ordering B12 1mg/1ml Hydroxocobalimin March 2019

Hi everyone, Firstly this information is given to you by a totally non medically qualified person. I was diagnosed by an NHS doctor with B12 deficiency a...

Hi everyone, Firstly this information is given to you by a totally non medicall...

cynic1946

•5 years ago

20 Replies

B12 injections wearing off after 6 weeks

Hello..I am after some advice please. I am new to this whole PA/b12 deficiency. I was diagnosed the beginning of the year and received my loading dose...

Hello..I am after some advice please. I am new to this whole PA/b12 deficiency. ...

leasparkles

•5 years ago

18 Replies

Vitamin b12 Supplements making me feel like s***?

Hi,i'm a 20 years old male who had been diagnosed with a vitamin b12 deficiency over a month ago,iv'e had symptoms for about 6-7 years but have recently...

Hi,i'm a 20 years old male who had been diagnosed with a vitamin b12 deficiency ...

JhonnyBoy

•5 years ago

3 Replies

BIT OF A WEIRD ONE - BUT DID ANYONE SUFFER FROM EARLY CATARACTS?

I HAD BOTH EYES OPERATED ON IN MY 40'S, VERY EARLY FOR CATARACTS. WONDER IF THIS COULD BE CONNECTED TO PA IN ANY WAY. I KNOW MALNUTRITION CAN AFFECT THE EYES,...

I HAD BOTH EYES OPERATED ON IN MY 40'S, VERY EARLY FOR CATARACTS. WONDER IF THIS...

e66--

•5 years ago

9 Replies

Depression Vs Vitamin Deficiency

I used to wake up feeling extremely fatigued, no amount of sleep would give me any energy, I would feel as tired waking up as I did falling asleep. Until one...

I used to wake up feeling extremely fatigued, no amount of sleep would give me a...

Cubies

•5 years ago

12 Replies

Life is a living hell, crippling fatigue and brain fog

23, Male, Caucasian, 5'10, 165 lbs Hello all, I'm sure many of you can relate to my story so here goes. My health has felt like it’s been in the crapper...

23, Male, Caucasian, 5'10, 165 lbs Hello all, I'm sure many of you can relat...

Zheshi

•5 years ago

27 Replies

I'm new here and hoping someone can explain 3 year olds 'unusual' blood results. Could it be pernicious anaemia?

Hello, hoping for a little guidance/information please. My 3 year old grandson recently had a blood test that came back with some 'abnormal results' (doctor's...

Hello, hoping for a little guidance/information please. My 3 year old grandson r...

Ryansdaughter

•5 years ago

5 Replies

Unbelievable

G.p said to try and get onto 3 monthly injections now!! She was the one than reinstated every other day ! So thought the one to see. It was agreed by...

G.p said to try and get onto 3 monthly injections now!! She was the one than re...

Nackapan

•5 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2019

Symptoms and time of day

Any reasonable place for someone in the US to order Hydroxocabalamin?

Thank you

Can someone help me understand my results?

Pernicious Anaemia?

Vitamin D Vs Depression

Advice required

Serum vitamin b12 1077 ng/l serum folate 3.7 ug/l

The dangers of Vitamin B12 deficiency - more tickets

A PA, newbie.

Experience with cyanocobalamin injections? What’s too much?

Feeling rubbish after injection

Gasritis non erosive

Empowered by first SI

Treatment for b12 related acne

Try Magnesium.

How do I find a qualified person to give me Self Injection training?

WARNING: Spate of Inappropriate Personal Messages Being Sent to Female Members Across Multiple HU Fora: Do Not Respond - Report (as below).

Self injecting question.

Labs now showing anemia???

haematologist appt update : for increase in B12 injections

B12 test

My experience of ordering B12 1mg/1ml Hydroxocobalimin March 2019

B12 injections wearing off after 6 weeks

Vitamin b12 Supplements making me feel like s***?

BIT OF A WEIRD ONE - BUT DID ANYONE SUFFER FROM EARLY CATARACTS?

Depression Vs Vitamin Deficiency

Life is a living hell, crippling fatigue and brain fog

I'm new here and hoping someone can explain 3 year olds 'unusual' blood results. Could it be pernicious anaemia?

Unbelievable

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