B-12 Deficiency: I have been treated... - Pernicious Anaemi...

Pernicious Anaemia Society

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B-12 Deficiency

Shashapoo
Shashapoo

I have been treated for years for B-12 Deficiency, with both injections and supplements by mouth. Recently my MD checked my level and it was elevated to about 1200 if I remember correctly. She asked me to stop; which I did, but with questions as I have always heard that the level will indicate high if on supplementation. I have been off for about 11 weeks; and am experiencing, malaise, heart palpitations, depression. I really questioned this to her assistant; but never got an answer back. What are your thoughts?

4 Replies

I'm assuming you do not live in the UK using the term MD, so your rules may be different. Of course your B12 will be high. Check the pinned post on the right "Stitching B12 Tekort"

The 'experts' will be along tomorrow to help I expect.

My thoughts are that you know more than they do and go back on your jabs ASAP before you get long term damage from the deficiency.

My thoughts are that you know more than they do and go back on your jabs ASAP before you get long term damage from the deficiency.

Unless it’s an active B12 test, your results are showing what is floating around your body, not what is actually available for use at a cellular level. Any supplementation will/should increase the results, which is why there is no real benefit retesting once you have started taking tablets/injections. Can I suggest you read the book ‘Could it be B12?’ By Sally Pacholok or books by the Pernicious Anaemia society in the UK. If your symptoms are returning and they weren’t there with treatment, seems to me you need treatment. I am not medically trained but have a B12 deficiency myself, which I’ve only managed to get treatment for as a result of lots of personal research. Sadly, the medical profession do not seem to have sufficient knowledge or training on B12 deficiency, in the UK at least. Hope you can get what’s right for you.

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