Appreciate some advice: Hi again I... - Pernicious Anaemi...

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Appreciate some advice

clairemallen123 profile image
2 Replies

Hi again

I normally SI once a week and for 18months this has worked well

Recently had to wait for B12 to arrive and struggled during the wait and found I needed to SI on alternate days for a week to top up

Now I have a swollen sore tongue and can’t work out what had caused it

I’ve taken a multi vit and folate daily during this time

So have I taken too much folate or not enough or is it something else ?

Any advice would be much appreciated

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clairemallen123
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deniseinmilden profile image
deniseinmilden

Hi!

Ahhhh - what a pain! (And literally!). I have had odd mix ups and have found it hard to get the balance back to feel well again.

My experience is that it is possible to get it all back but it takes time and lots more supplementation than I feel should be required!

Too little folate does give you a sore tongue, too much doesn't. Do you have any other symptoms which possibly point towards being low in folate?

Folate has a wide safety margin and if it was me I would try increasing the folate for several days and see if things improve.

I know I am always surprised by how much I need to correct things once the deficiency symptoms of something appear and for me it can take weeks on a high level before everything comes back together and I can return to more reasonable supplementation levels again.

It's a horrible feeling when things go wrong and you have my sympathy. Take heart though - there's a good reason for the problem and with enough supplements you should be OK again in time.

clairemallen123 profile image
clairemallen123 in reply to deniseinmilden

Thank you so much

I don’t have any other symptoms of high folate but I do have some of the lesser symptoms I had when b12 was low like post nasal drip and tight feeling in throat

I think I will continue b12 on alternate days for a while along with folate

It’s so frustrating when everything was going well I’m worried for some reason the b12 is not working like it used to

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