It’s so helpful to have a forum like this
I wasn’t diagnosed with PA but as I was always exhausted my doctor recommended supplementing with methyl b complex which I took for 3 months and then started getting SEVERE Pins and needles twitching and numbness, sharp stabbing jolts all over which then had me go to 2 neurologists and a brain scan and nerve studies tests. All of which were completely normal.
The neurologist asked if I took supplements and I said just the methyl b which he told me to stop so I did due to my then high b6 levels (which can cause peripheral neuropathy)
So I stopped taking them and felt better but my dr then suggested to start supplementing with just b12 and methylfolate which I did and the symptoms all returned!
So she said to have b12 injections instead and oh my goodness that was 2 weeks ago and I have had 3 in that time and now the peripheral neuropathy is so intense and scary as it’s getting worse and I don’t know what to do.
Probably stop all supplementation! But may I ask if anyone else has had this kind of strange situation before?
Thanks so much