Hearing loss

[Sandra_Holmes_R]

Hi, has anybody else suffered hearing loss due to low b12/PA.

I had a late diagnosis, after years of low b12 over the years I have been told this has apparently damaged my hearing severly.. is this possible?

[wedgewood]

Yes , it happened to me . I have been diagnosed with P.A. and had been having various symptoms before diagnosis . You can be affected by B12 deficiency in any part of your body where there are nerves . B12 is needed to form the protective myelin sheath that surrounds the nerve . Tinnitus can also be caused by B12 deficiency /PA . I’ve had no more deterioration since I started self-injecting , but haven’t had any improvement . ( 3 monthly injections did not keep symptoms at bay , and GP would not allow more regular ones . )

[Singoutloud]

I was diagnosed with PA 3 years ago this December and been on 8 weekly injections since. I also have autoimmune hypothyroidism that I treat myself. During that time my hearing has deteriorated to the the point that I have just been issued with hearing aids. They did an MRI scan but found nothing and consultant dismissed me. I will be raising this with PALS as they not addressed the cause or the 24/7 tinnitus & balance issues. Ive also had severe joint pain in hands and xrays have also shown damage to my ankles. Possibly arthritis according GP. He's sending me to see an ankle specialist for orthotics (he never sees the bigger picture🤔) Don't know for sure but feel that both hearing and joints are linked in some way to both of my autoimmune conditions.

[deniseinmilden]

It's perfectly possible. I did a bit and mine has come back with daily SI and lots of supporting supplements.

If I get the balance of the supporting supplements (a broad spectrum multivitamin and mineral supplement plus extra folate, potassium, magnesium and iron) wrong then my hearing goes along with all the other symptoms coming back - but is OK once everything is working again.

[annmarierodnes]

I didn't connect hearing loss with B12 deficiency. Certainly my doctors haven't made the connection either and I have been using hearing aids for 3 years now. I do have tinnitus which is getting worse even though I SI every other day. Starting doing this as I couldn't cope on 3 monthly injections and was getting very scared. Thank goodness for this forum as it gave me courage and all the information and support I needed. My docs know that I SI and I do try to keep lines of communication open. Still waiting to see neurologist - been on the waiting list since April when I ended up in A&E. Feet are always burning so head to toe nerve damage! I try not to despair. Lucky to have a supportive family and all of you. Many thanks.