Firstly, apologies for the rambling post, but it really helps to write things down sometimes. I’m new and found my way here through the PAS webpage, as I was researching causes for low B12. I visited my GP in November as I was suffering with some digestive problems and was feeling very tired for no apparent reason. She immediately suggested I had IBS, but sent me for blood tests anyway, which came back saying I had low B12 (how low, I still don’t know). Apparently, the results of a previous blood test I had a year ago had also come back with low B12, but nobody bothered to tell me at the time. So, after a phone call with my GP, I was referred for the intrinsic factor blood test and booked myself in for the six B12 loading doses. I had these in mid-December, but I managed to come down with a bad cold in the second week, so it was very hard to tell if I felt any more energised. I haven’t felt much different in the weeks since.
It’s now been nearly two months since I had my IF test, my results still aren’t back, and I’m starting to get quite anxious to know what they say. I’m worrying because the GP/nurse told me if I had my injections I’d feel back to normal, which I don’t, and obviously I’ve since read so many people’s stories (which perhaps I shouldn’t), about tests coming back negative or people feeling that one dose every three months isn’t enough and they’re having to order from abroad to self-inject.
I don’t have a plethora of symptoms, just the tiredness and digestive issues mainly. I wake up feeling very tired, even when I’ve had plenty of sleep, and the exhaustion is sometimes so overwhelming I fall asleep at work (mightily embarrassing) or have to pull over on the drive home because my eyes are closing. This is at odds with a relatively active lifestyle, in which I feel fine running or snowboarding or renovating our house – I only notice the exhaustion when I’m not active. I can barely survive a car journey, a meeting or a movie without nodding off. I’m 32, so I’d like to think that’s not my age creeping up on me just yet.
Obviously, I still don’t know whether I have PA, but I don’t fall into any of the other categories for the main causes of low B12 (unless I have some undiagnosed digestive condition), and my mum tells me I had a great grandma who died of PA in the early 1960s, so I’m already feeling like it’s a foregone conclusion. I’ve suffered with anxiety for over 10 years (although this has greatly improved in the last couple), so I don’t know whether this might be another factor, but I’m probably getting ahead of myself and starting to think the worst of everything. Unfortunately fairly typical for me.
Can anyone offer any advice or reassurance?