Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for September 2017

B12 deficiency after 2 years

Hi All I was diagnosed as b12 deficient around two years ago. Before the injections I had multiple symptoms but soon they, more or less, came down to one...

Hi All I was diagnosed as b12 deficient around two years ago. Before the injecti...

Alfabeta

•7 years ago

5 Replies

Finished my 7 loading B12 still feel ill

Hi guys so I have finished my 7 loading jabs I asked to see another doctor as I felt the other wasn't really listening the other doctor says I have to go back...

Hi guys so I have finished my 7 loading jabs I asked to see another doctor as I ...

MissD1503

•7 years ago

5 Replies

Advice on Doctor strategy

Hello all you wonderful people! I joined the forums a few weeks back when I discovered I had a B12 deficiency and doctor made an emergency appointment for me...

Hello all you wonderful people! I joined the forums a few weeks back when I disc...

Hidden

•7 years ago

32 Replies

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What now?

I have just had my follow up appointment with the practice manager following the dreadful appointment with the initial doctor that diagnosed B12 deficiency....

I have just had my follow up appointment with the practice manager following the...

Nicoleflower81

•7 years ago

15 Replies

Nerve pain

I was officially diagnosed with P.A. last year and started jabs in the November. I had had symptoms of P.A. for 25 years previously, so was pretty 'damaged'....

I was officially diagnosed with P.A. last year and started jabs in the November....

topazrat

•7 years ago

2 Replies

Help with test results please

I have a number of the symptoms for PAS but as I have a number of other medical conditions, including hypothyroidism, I am now getting very confused. I have...

I have a number of the symptoms for PAS but as I have a number of other medical ...

Dbe447

•7 years ago

4 Replies

SubQ vs. IM

Hi I have been self injecting SubQ since June of 2016. It has been effective. I had neurological involvement but did not start out with the typical loading...

Hi I have been self injecting SubQ since June of 2016. It has been effective. ...

pslmt

•7 years ago

3 Replies

Advice needed and some support

I've been diagnosed with pa had loading doses and was initially put on 3 monthly injections and then successfully argued with GP for 2 monthly. I Si alongside...

I've been diagnosed with pa had loading doses and was initially put on 3 monthly...

Amesbury

•7 years ago

5 Replies

Other Autoimmune diseases and PA

Hi all I've been PA diagnosed for a year now and have 8 week injections (could do with more frequent ones but it was a fight to get 8, I don't think many GP's...

Hi all I've been PA diagnosed for a year now and have 8 week injections (could d...

chloeg91

•7 years ago

6 Replies

What am I asking my New GP for?

I had problems with the Gp who diagnosed me and have decided to try another gp in the practice rather than bang my head against a brick wall any longer. I see...

I had problems with the Gp who diagnosed me and have decided to try another gp i...

Pingo

•7 years ago

7 Replies

Safe to mix and inject?

Hi Everyone. Quick question. Greatful for any advice. Is this powder safe to mix with sterile saline and inject? Thank you in advance. Ship

Hi Everyone. Quick question. Greatful for any advice. Is this powder safe to mix...

ShipChef

•7 years ago

14 Replies

Advised to come to this thread by thyroid uk diagnosed with megaloblastic anaemia

I was put on ferrous sulphate and folic acid. Will dig out my exact results all I remember is it's non iron deficiency anaemia (I think that's what they said)...

I was put on ferrous sulphate and folic acid. Will dig out my exact results all ...

Leomad

•7 years ago

3 Replies

B12 and Folate results

I was advised to contact your site , I am Lizlee I have Hashimotos Thyroiditis and paid for private Tests including B12 , Folate and iron the results after 3...

I was advised to contact your site , I am Lizlee I have Hashimotos Thyroiditis a...

lizlee

•7 years ago

4 Replies

B12 deficiency and bruising

I have been having B12 injections for approx.15 months at 12 week intervals, recently increased to 10 weeks intervals. After a conversation with my GP, she has...

I have been having B12 injections for approx.15 months at 12 week intervals, rec...

scadman

•7 years ago

4 Replies

B9 levels if they are low can they cause myelin scarring?

When I was 1.5 yrs old I was in hospital for 5 days with iron deficiency anemia. Can this cause damage to your myelin on your brain and spinal cord? Because...

When I was 1.5 yrs old I was in hospital for 5 days with iron deficiency anemia....

toph

•7 years ago

2 Replies

b12 levels, advice please.

Hi Have been directed here from Thyroid UK site to ask for advice. Recently had blood tests done by Blue Horizon, mainly to look at my thyroid function. My B12...

Hi Have been directed here from Thyroid UK site to ask for advice. Recently had ...

Googlie

•7 years ago

6 Replies

Looking for B12 administrator in Brighton UK area/ or to self-inject and need sources. Also iron advice pls!

Hi, I have ME/CFS, fibromyalgia and am hypothyroid (for which I've recently been self-prescribing T3 - in addition to the T4 from my GP - and have seen a great...

Hi, I have ME/CFS, fibromyalgia and am hypothyroid (for which I've recently been...

Abi-Abster

•7 years ago

12 Replies

Interesting post related to standard setting

This isn't specifically PA related but it does show that there are GPs out there who are trying to influence and improve the guidelines and move them away from...

This isn't specifically PA related but it does show that there are GPs out there...

Gambit62

Administrator•7 years ago

9 Replies

To those who responded to my first post worrying about my wife's v. B12 def.

Thank you, all who responded; sincerely! I want to write back, but I have poor concentration, energy, and lethargy problems which...I am struggling now to...

Thank you, all who responded; sincerely! I want to write back, but I have poor c...

Blake55

•7 years ago

6 Replies

Help with blood results

Hi these are my 42 yr old brothers blood results . He complains of aches and pains in body . Extreme tiredness at times . Weakness and agitation and low mood ....

Hi these are my 42 yr old brothers blood results . He complains of aches and pai...

Andypandy30

•7 years ago

12 Replies

New here

Hi This is my first post on HealthUnlocked, I had my first B12 injection 3 months ago due to low B12, how many would I need to get rid of all my symptoms...

Hi This is my first post on HealthUnlocked, I had my first B12 injection 3 month...

Violet34

•7 years ago

19 Replies

Low ferritin level?

Originally posted on the thyroid forum but got no replies :-( Anyone here care to comment? I’ve recently had some blood tests done by the GP and my ferritin...

Originally posted on the thyroid forum but got no replies :-( Anyone here care ...

seamail57

•7 years ago

2 Replies

Feedback please

Ferritin 21 (30 - 400) Folate 1.8 (2.5 - 19.5) Vitamin B12 196 (190 - 900) Do these look ok thanks taking 5mg folic acid

Ferritin 21 (30 - 400) Folate 1.8 (2.5 - 19.5) Vitamin B12 196 (190 - 900) Do t...

Shannak

•7 years ago

5 Replies

PeeGee

I am new here and would like some Info if possible I have P A and get injections every 12 weeks which does not seem often enough as I am completely washed out...

I am new here and would like some Info if possible I have P A and get injections...

petergormley

•7 years ago

7 Replies

B12 on "tap"

Came across this a few weeks back while in the US in a shopping mall!

Hidden

•7 years ago

4 Replies

B12 Deficiency - Pernicious Anaemia

I was diagnosed 6 weeks ago, although, my blood results have flagged this up for over 3 years now, its has caused irrepairable damage to me, the nervous...

I was diagnosed 6 weeks ago, although, my blood results have flagged this up for...

Rhub

•7 years ago

26 Replies

How oftwn do you get a jab in USA

Hallo I'm planning to ho to California next year and am wondering how often ussually you get a jab there is it 3 months or one month

Hallo I'm planning to ho to California next year and am wondering how often ussu...

Ela1

•7 years ago

11 Replies

Help with these blood tests please

hi was told to write on this page with some help regarding some of my blood tests results that are relevent to my iron levels if someone could help or tell me...

hi was told to write on this page with some help regarding some of my blood test...

leanneward4993

•7 years ago

3 Replies

Iron deficiency anaemia affecting B12?

I've heard about low iron levels directly affecting B12, can anyone shed any light on this? I was diagnosed Coeliac five years ago and PA two years ago. Since...

I've heard about low iron levels directly affecting B12, can anyone shed any lig...

Monty71

•7 years ago

7 Replies

Hair loss

Was just wondering if anybody else who lost a lot of hair ever regained the hair they had before? Just because I used to have really thick long hair, but it's...

Was just wondering if anybody else who lost a lot of hair ever regained the hair...

mdoh1918

•7 years ago

13 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2017

B12 deficiency after 2 years

Finished my 7 loading B12 still feel ill

Advice on Doctor strategy

What now?

Nerve pain

Help with test results please

SubQ vs. IM

Advice needed and some support

Other Autoimmune diseases and PA

What am I asking my New GP for?

Safe to mix and inject?

Advised to come to this thread by thyroid uk diagnosed with megaloblastic anaemia

B12 and Folate results

B12 deficiency and bruising

B9 levels if they are low can they cause myelin scarring?

b12 levels, advice please.

Looking for B12 administrator in Brighton UK area/ or to self-inject and need sources. Also iron advice pls!

Interesting post related to standard setting

To those who responded to my first post worrying about my wife's v. B12 def.

Help with blood results

New here

Low ferritin level?

Feedback please

PeeGee

B12 on "tap"

B12 Deficiency - Pernicious Anaemia

How oftwn do you get a jab in USA

Help with these blood tests please

Iron deficiency anaemia affecting B12?

Hair loss

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