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Pernicious Anaemia Society

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All posts for March 2017

Advice please

Just got my surgery to give me copies of my last few blood test results as I was curious to see if it show my b12/iron dipping for a long time or suddenly and...

Just got my surgery to give me copies of my last few blood test results as I was...

mand82

•7 years ago

12 Replies

Well what do you think

So had a B12 diagnosis in January of B12 114 had six B12 loading doses, felt great and then after 3 weeks started to feel poorly again with all the...

So had a B12 diagnosis in January of B12 114 had six B12 loading doses, felt gre...

MandyPandy

•7 years ago

8 Replies

need some help AGAIN, THANK YOU ALL , I AM VERY GRATEFUL FOR FINDING YOU ALL:)

ITS BEEN A STUGGEL HER WITH DRS. TRYING TO FIGURE OUT BY B12 MY D AND SOME OTHERS AND JUST GETTING TO THE BOTTOM OF WHY I FEEL LIKE OUT DO JUST OUT OF THE BLUE...

ITS BEEN A STUGGEL HER WITH DRS. TRYING TO FIGURE OUT BY B12 MY D AND SOME OTHER...

kimandken

•7 years ago

18 Replies

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B12 level of 93

My daughter has just been given her result for B12 and its 93. I was just wondering if this is quite low. She has a range of sypmtoms, including extreme...

My daughter has just been given her result for B12 and its 93. I was just wonder...

Formidablelady

•7 years ago

15 Replies

Thank you for accepting me....I hope the things I have learned here may help a diagnosis AT LAST !

Oh ...I could weep for joy discovering this forum and PAS! I seem to have the same concerns and problems as so many people struggling to get a diagnosis. I...

Oh ...I could weep for joy discovering this forum and PAS! I seem to have the s...

Jesswoozer1

•7 years ago

4 Replies

Please help - not sure how to proceed following blood results

Hi there, I have had hypothyroid symptoms for years, requested 3 blood tests over the last approx 7 years but was told that I was borderline and therefore...

Hi there, I have had hypothyroid symptoms for years, requested 3 blood tests ov...

CB1990

•7 years ago

2 Replies

Body temp so hot

hi all does anyone with b12 defficiency have sweats day and night my body gets soo hot.

hi all does anyone with b12 defficiency have sweats day and night my body gets s...

kyanah

•7 years ago

3 Replies

Pernicious anaemia and vitiligo

Hi there, I am currently experiencing various symptoms, and my blood showed that I have borderline low B12. I had the loading doses of Vit B12 which improved...

Hi there, I am currently experiencing various symptoms, and my blood showed tha...

boris09

•7 years ago

1 Reply

MTHFR - high homocysteine and b12 in blood

My nutritionist gave me methyl folate and brought the homocysteine down thankfully. I wonder if anyone is in the same boat and taking methyl b12. My symptom is...

My nutritionist gave me methyl folate and brought the homocysteine down thankful...

Bonniepun

•7 years ago

5 Replies

Filter needles for self injecting

Hi Folks, I'm after a bit more advice - now I've decided to SI I'm nervous about using. The correct procedure regarding needles. I've already been given some...

Hi Folks, I'm after a bit more advice - now I've decided to SI I'm nervous about...

Ree2705

•7 years ago

6 Replies

SI Does Really Help ... Thank God!

Hi Everyone, Just wanted to say how much this site has helped me and after almost a lifetime of PA problems I finally gave up on asking for more injections...

Hi Everyone, Just wanted to say how much this site has helped me and after almo...

Catsgalour

•7 years ago

6 Replies

help to si

I have done my 2nd si I am losing some b12 as cant draw up correct the needle I use is 29g all in one with syrnge so could anyone plz help get it rite I draw...

I have done my 2nd si I am losing some b12 as cant draw up correct the needle I ...

Lucieb01

•7 years ago

11 Replies

Thank you for all your replies

So many replies - thank you all for your information, suggestions and observations. To those who mentioned Thyroiditis, I have had auto-immune thyroiditis for...

So many replies - thank you all for your information, suggestions and observatio...

glacommare

•7 years ago

1 Reply

Me again. Still no further forward.

Wrote to my Neurologist to ask for help with my GP. He wrote back saying to get my B12 checked again. So just got results and "No Action Required". Told to...

Wrote to my Neurologist to ask for help with my GP. He wrote back saying to get...

lorrilang

•7 years ago

3 Replies

Still tired a year after b12 treatment and 3 monthly injections.

hi I was wondering does anyone still get very tired with b12 defficiency even after having it for a year .i don't feel the same as before I had this horrible...

hi I was wondering does anyone still get very tired with b12 defficiency even af...

kyanah

•7 years ago

14 Replies

Advice on B12 levels

Hi Im new here and the Thyroid UK suggested I post with regard to my last B12/folate level. I went back to the doctors at the weekend to discuss latest...

Hi Im new here and the Thyroid UK suggested I post with regard to my last B12/f...

Duffy26

•7 years ago

6 Replies

Next GP appointment

Hi everyone, I went to St Thomas' hospital for an active B12,MMA, Folate and Homocysteine tests to try and get an definitive answer, these are the results. Lab...

Hi everyone, I went to St Thomas' hospital for an active B12,MMA, Folate and Hom...

Cali25

•7 years ago

6 Replies

low b12 within normal range but low, d is low as well . having test and have a few questions

i wrote a post a while back and now i have more questions. i had to beg my dr to test me for low B 12 . she gave me a very hard time because my iron was good...

i wrote a post a while back and now i have more questions. i had to beg my dr to...

kimandken

•7 years ago

2 Replies

How long to recover from 'not-anaemia'?

Hi there, new to the forum and have been reading some posts from users here since being found to be B12 deficient. I was having serious issues with fatigue,...

Hi there, new to the forum and have been reading some posts from users here sinc...

ecp-swuk

•7 years ago

15 Replies

b12 injections reaction? return of old symptoms? another deficiency?

Hi So a couple of years ago i was unwell with depression anxiety rage mental confusion, tachycardia, difficulty regulating tempreture, shaking as a result....

Hi So a couple of years ago i was unwell with depression anxiety rage mental con...

Numsky

•7 years ago

9 Replies

End of my tether...

My GP won't have it that my daughter may have a problem with B12. She has ALL, and I mean ALL of the symptoms of PA. She is increasingly ill, unable to go to...

My GP won't have it that my daughter may have a problem with B12. She has ALL, a...

dorigen66

•7 years ago

6 Replies

Will levothyroxine affect b12 deficiency tests?

Hello there! I've finally managed to get my doctor to look into B12 deficiency as a possibility for my symptoms (Hooray!) and I'm paying for an MMA screening...

Hello there! I've finally managed to get my doctor to look into B12 deficiency a...

BartelbySamsa

•7 years ago

2 Replies

I don't think I have PA but I would appreciate the benefit of your advice please?

Hello, the lovely people on the Thyroid board sent me here 😊 After an elevated (subclinical) TSH I've had normal results in the lower end of the range (and...

Hello, the lovely people on the Thyroid board sent me here 😊 After an elevated ...

Sedgie

•7 years ago

24 Replies

PA and weight loss

Hi, can you tell me if weight loss ALWAYS accompanies PA or is it possible to have PA and be overweight. I am deficient in B12 and have suspected autoimmune...

Hi, can you tell me if weight loss ALWAYS accompanies PA or is it possible to ha...

glacommare

•7 years ago

14 Replies

Not to easy....

I posted a H A P P Y message last week after I received a copy of a letter from the neurologist saying I should have 3x a week.... etc...etc. So, I saw gp...

I posted a H A P P Y message last week after I received a copy of a letter from ...

jillc39

•7 years ago

11 Replies

Drawing -especially for Beginner1 and Clivealive

Hope this cheers you up, Beginner1 and hope it's corny enough for you, Clive !

Cherylclaire

Forum Support•7 years ago

11 Replies

At our wits end. Advice welcomed .

18 year old was diagnosed with B12 deficiency a year ago - was just offer a 100 blood test reading. Also folate,ferritin and vit d deficiency . After much...

18 year old was diagnosed with B12 deficiency a year ago - was just offer a 100...

jujon

•7 years ago

14 Replies

An update from my post last week re: cfs

Hi, thank you for your help earlier in the week. Just an update from my appointment with my gp yesterday. He is still set on cfs but is prepared to rule some...

Hi, thank you for your help earlier in the week. Just an update from my appoint...

KJP723

•7 years ago

36 Replies

Why are all B12 supplements Methylcobalin and not Hydroxocobalamin ?

Hi I'm in uk and was just checkiing for oral B12 on Amazon UK. They all say Methylcobalamin as supposed to Hydroxocobalamin which is the only form licensed in...

Hi I'm in uk and was just checkiing for oral B12 on Amazon UK. They all say Meth...

Ryaan

•7 years ago

10 Replies

Genetic PA

I've been told that there is a proven link to genetics for PA - my father had PA, I have PA and my 18 yr old son is now going thru testing without much luck...

I've been told that there is a proven link to genetics for PA - my father had PA...

SarahFerguson

•7 years ago

18 Replies

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2017

Advice please

Well what do you think

need some help AGAIN, THANK YOU ALL , I AM VERY GRATEFUL FOR FINDING YOU ALL:)

B12 level of 93

Thank you for accepting me....I hope the things I have learned here may help a diagnosis AT LAST !

Please help - not sure how to proceed following blood results

Body temp so hot

Pernicious anaemia and vitiligo

MTHFR - high homocysteine and b12 in blood

Filter needles for self injecting

SI Does Really Help ... Thank God!

help to si

Thank you for all your replies

Me again. Still no further forward.

Still tired a year after b12 treatment and 3 monthly injections.

Advice on B12 levels

Next GP appointment

low b12 within normal range but low, d is low as well . having test and have a few questions

How long to recover from 'not-anaemia'?

b12 injections reaction? return of old symptoms? another deficiency?

End of my tether...

Will levothyroxine affect b12 deficiency tests?

I don't think I have PA but I would appreciate the benefit of your advice please?

PA and weight loss

Not to easy....

Drawing -especially for Beginner1 and Clivealive

At our wits end. Advice welcomed .

An update from my post last week re: cfs

Why are all B12 supplements Methylcobalin and not Hydroxocobalamin ?

Genetic PA

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive