Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,226 members • 23,393 posts

All posts for February 2017

Update on bloods after visit to Doctors

Hi, would just like to give you all an update regarding my blood results, Made an appointment with my GP today to discuss my blood results, she all the results...

Hi, would just like to give you all an update regarding my blood results, Made a...

Hidden

•7 years ago

12 Replies

Recommend a UK haematologist?

Hi there, hope you're all still doing ok! I'm looking into possible issues with anemia as my ferritin levels are quite low: Serum ferritin level 21 ug/L [23.0...

Hi there, hope you're all still doing ok! I'm looking into possible issues with ...

BrecklandRanger

•7 years ago

2 Replies

Low ferritin, vitamin d deficiency and 'grey area' B12

I've just had the results of Friday's blood tests back (the IFA test is not back yet, but I had that shortly after my B12 injection so I don't know if that...

I've just had the results of Friday's blood tests back (the IFA test is not back...

rebs48

•7 years ago

11 Replies

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Anyone else been told their heart is slow?

Had my pre-op for rotator cuff injury and given an ECG. Told I am fine except for "sinus bradycardia" - a slow heart. As far as I know, the op is still going...

Had my pre-op for rotator cuff injury and given an ECG. Told I am fine except f...

Cherylclaire

Forum Support•7 years ago

4 Replies

B12 injections

Is anyone a member/ obtain B12 ampules from/or know anything about Dr Joseph Chandy and his charitable group B12d? I found the site and emailed him for advice...

Is anyone a member/ obtain B12 ampules from/or know anything about Dr Joseph Cha...

LynneG

•7 years ago

17 Replies

B12 Def treatment but not better could it be my thyroid or am I looking for things that aren't there?

So I've been counting down the days to my first 3 monthly b12 jab after loading doses in November had it 2 weeks ago and although things have improved I am...

So I've been counting down the days to my first 3 monthly b12 jab after loading ...

Clare184

•7 years ago

4 Replies

B12 deficiency and MCV values?

Hi, I have been self medicating for a B12 deficiency for around 10 months (was 254 before I started) with reasonable success (Jarrow B12 5000mcg sub lingual...

Hi, I have been self medicating for a B12 deficiency for around 10 months (was 2...

seamail57

•7 years ago

3 Replies

Pernicious anaemia

Hiya I'm on folic acid daily for folate deficient anaemia, along with loads of other medications. I've started going to the toilet a lot more frequently and...

Hiya I'm on folic acid daily for folate deficient anaemia, along with loads of o...

Hidden

•7 years ago

13 Replies

so angry

I spoke to a gp from my practice today, regarding my bh results done 9th jan 17, whi ch are b12 203 that has come down from 398 in 4weeks she told me they...

I spoke to a gp from my practice today, regarding my bh results done 9th jan 17,...

Lucieb01

•7 years ago

9 Replies

When academics have fun with EBM...

jimh111 posted the link to this paper on the TUK forum. It's quite an old one, but worth reading for the belly laughs. That's how it affected me anyway....

jimh111 posted the link to this paper on the TUK forum. It's quite an old one, b...

Hillwoman

•7 years ago

3 Replies

Blood results advice please

I have had an underactive thyroid for 10 years + and am currently on 100mg of levothyroxin, and have just had my first blood results for B12 and Folate B12153...

I have had an underactive thyroid for 10 years + and am currently on 100mg of le...

Yvostick

•7 years ago

3 Replies

Nitrous oxide and nitrox

Hello, lovely people, I wonder if you can help where Google has failed? I understand that those of us with a B12 deficiency are well advised to steer clear of...

Hello, lovely people, I wonder if you can help where Google has failed? I under...

spacey1

•7 years ago

7 Replies

Well that was a result!!

My b12 result a few weeks ago was 127 I went to the gp today and he told me I need to start loading doses asap! I went in with a list of symptoms in my head...

My b12 result a few weeks ago was 127 I went to the gp today and he told me I ne...

rachel35a

•7 years ago

10 Replies

Struggling

Hi, me again, been a while since I had a bit of a rant on here. Does anyone else find themselves struggling in the days/week before another B12 injections?...

Hi, me again, been a while since I had a bit of a rant on here. Does anyone else...

Moosey

•7 years ago

5 Replies

Does it matter if you don't alternate sites.

Hi lovely people. Does it matter if I do not alternate arms when I inject my disabled brother who has M.S and b12 problems. After jabbing his good arm and...

Hi lovely people. Does it matter if I do not alternate arms when I inject my dis...

Marymary7

•7 years ago

18 Replies

Please advise

I have posted before . I had feet and hands dumbness p, pins and needles for months, years probably. Although my first B12 was 422? I without checking paper...

I have posted before . I had feet and hands dumbness p, pins and needles for mon...

Gcart

•7 years ago

1 Reply

Suffering from PA for long

I am suffering from PA for some years now. It got undetected(rather not diagnosed properly) for long and finally became very weak and end up with severe...

I am suffering from PA for some years now. It got undetected(rather not diagnose...

mahesh104

•7 years ago

17 Replies

Triobe - any experiences?

Hi, Just tried to renew my prescription for my B12 injections, and my doctor has given me a prescription for Triobe instead. I am in Norway, I have had no...

Hi, Just tried to renew my prescription for my B12 injections, and my doctor has...

jamesstott

•7 years ago

10 Replies

My B12 levels have decreased significantly, but why?

Hello everyone. I'm a 19 year old male. Not too long ago my blood test showed RF latex test > 450, which I have read indicates advanced disease. I've read a...

Hello everyone. I'm a 19 year old male. Not too long ago my blood test showed RF...

WK1010

•7 years ago

4 Replies

Why is B12 not rising???

A quick question...anyone have any thoughts. My autistic daughter has pernicious and has been taking methylcobalium sublingual drops daily since September...

A quick question...anyone have any thoughts. My autistic daughter has pernicious...

Lorstor

•7 years ago

16 Replies

Blood results any help would be appreciated

Hi been very unwell for the last 12 months on lots of medication for pain relief, went to the doctors in February 2016 due to a pain in my rib, X Ray done...

Hi been very unwell for the last 12 months on lots of medication for pain relief...

Hidden

•7 years ago

8 Replies

Has anyone with confirmed P.A. seen an Endocrinologist ? and was it any use ?

Hi all, just a quick request, my G.P. is arranging an appointment to see an Endocrinoligist. GP gave me ( reluctantly ) 5 jabs over 5 weeks as loading dose (...

Hi all, just a quick request, my G.P. is arranging an appointment to see an Endo...

Barry1955

•7 years ago

5 Replies

Any link with b12 and high tryptase results

Recently went to hospital for allergy testing as doctor thought my swollen face and lips were due to allergy to pantoprazle. No reaction to injections on arms...

Recently went to hospital for allergy testing as doctor thought my swollen face ...

Robson957

•7 years ago

1 Reply

B12d.org - last newsletter

Well, was filing old emails this morning and noticed that the last email from B12d actually had an email attachment which was the newsletter. Not PAS but know...

Well, was filing old emails this morning and noticed that the last email from B1...

Gambit62

Administrator•7 years ago

2 Replies

Eye pain

Just curious - I am wary of the fact we can attribute so much to low b12, however, I have PAS, low ferritin and Folate, occipital neuralgia; to name but a few...

Just curious - I am wary of the fact we can attribute so much to low b12, howeve...

Ree2705

•7 years ago

15 Replies

Suggestions for doctors appointment on Monday...

Hi Feels a bit odd posting this as I’m now an admin here but here goes anyway! Sorry it’s horribly long… A bunch of background… Was diagnosed with PA a year...

Hi Feels a bit odd posting this as I’m now an admin here but here goes anyway! S...

taka

Administrator•7 years ago

27 Replies

Swollen neck problem

Last week I told you I had v swollen and sore neck, you advised to see a health professional ,gp dentist. Saw dentist who sent me max fax at LRI lots of...

Last week I told you I had v swollen and sore neck, you advised to see a health...

Poorlysic

•7 years ago

2 Replies

Blood results

Just wondering if anyone can help me? Had these done just before Christmas. Serum vitamin B12 152 (170-300) Ferritin 10 (15-300) Folate 1.7 (3-23) I've had my...

Just wondering if anyone can help me? Had these done just before Christmas. Ser...

greenbexy

•7 years ago

8 Replies

Hi,

Hello, I have had my first B12 jab, my GP just said my levels were low, he did not mention PA so might there be some other cause?

Hello, I have had my first B12 jab, my GP just said my levels were low, he did n...

Hidden

•7 years ago

12 Replies

B12 Patches and B12 Sprays

I have PA, I have just ordered patches and sprays to use aswell as 8 weekly injections by nurse. I'm wondering if these will help or am I wasting my time and...

I have PA, I have just ordered patches and sprays to use aswell as 8 weekly inje...

SarahFerguson

•7 years ago

7 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2017

Update on bloods after visit to Doctors

Recommend a UK haematologist?

Low ferritin, vitamin d deficiency and 'grey area' B12

Anyone else been told their heart is slow?

B12 injections

B12 Def treatment but not better could it be my thyroid or am I looking for things that aren't there?

B12 deficiency and MCV values?

Pernicious anaemia

so angry

When academics have fun with EBM...

Blood results advice please

Nitrous oxide and nitrox

Well that was a result!!

Struggling

Does it matter if you don't alternate sites.

Please advise

Suffering from PA for long

Triobe - any experiences?

My B12 levels have decreased significantly, but why?

Why is B12 not rising???

Blood results any help would be appreciated

Has anyone with confirmed P.A. seen an Endocrinologist ? and was it any use ?

Any link with b12 and high tryptase results

B12d.org - last newsletter

Eye pain

Suggestions for doctors appointment on Monday...

Swollen neck problem

Blood results

Hi,

B12 Patches and B12 Sprays

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