Today I received a copy of a letter from the haematologist I saw a few weeks ago.
I was very pleased because he did listen and did do a lot of blood tests and in his letter to my doctor he said "I WOULD BE VERY GRATEFUL IF YOU WOULD ARRANGE FOR HER TO HAVE A PERIOD OF WEEKLY INJECTIONS FOR THE NEXT 8 WEEKS"!!! It was seeming that we were actually getting somewhere until at the end of the letter he went on to say that he did not think that this would make any difference to me medically but it would be revealing to know if the symptoms would resolve with such an amazingly high B12 dose.
He then went on to say that of course the most common cause of these symptoms is hyperventilation and it may be worth me trying breathing into a paper bag!!
Why did he have to spoil it I could cry. May be hyperventilation should be the no.1 symptom on the list because after all everyone who asks for more frequent injections has it according to their GP.
Sorry for being cynical.
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pugdogs10
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Sorry to hear that. All i could suggest is you dutifully go and have your 8 jabs. Having firstly listed every symptom you have then make a progress chart to see if there is in fact an improvement as the weeks go on. After the jabs take the list to your gp and discuss what has happened. Who knows, it might give you a leg up.
Oh dear! I know just how you feel!! I've been struggling to breath for weeks now, and it's getting worse. But never mind, there's always a paper bag or even better, re-breathing exercises (for someone who always used to do yoga)!
Excuse me while I shout: WHAT IS THE MATTER WITH THESE PEOPLE.
If any of these medics suffered from B12 deficiency or PA, you can be sure that they'd be injecting on a daily basis.
So, no, I'd say you're not being cynical...its just the triumph of experience over hope!
I'm fast coming to the conclusion that I'm going to have to do what so many here do - get learning and get injecting! Currently doing the former and approaching the latter!
I hope the weekly injections work a bit of magic for you. Perhaps if your GP can see an improvement he/she can be persuaded to let you have your B12 more often (it's very cheap, does you no harm etc etc).
I read somewhere in these posts that someone advised keeping a symptom log so that you have a record to take to your GP so you can show patterns of improvement (and decline, when 'the 12' is withheld).
Thank you so much for your reply... sometimes you just need to hear from someone who knows how you feel. To be honest I already started self injecting later on the same day I saw the haematologist and had the blood tests. I had waited 6 weeks to see him and couldn t wait any longer at the end of the day you have to think of your own health.
So.... For the next 8 weeks I will be having my weekly injections at the surgery instead of doing it myself, I do actually feel much better already and just being able to help myself makes such a difference. I wouldn t have been able to do it without the people on this website who have given me so much help and advice. Thank you so much and I will let you know how I get on.
Sounds to me your haematologist is using you as a guinea pig - what a blooming cheek.
Still, maybe both he and your doctor will learn something (when you cartwheel into their offices a picture of health) that might be useful for the next patient along presenting the same symptoms, so pat yourself on the back for that.
Hello Clive...have read many of your posts and helpful replies, it is so nice to hear form you. You are right raising awareness is the reason I am doing all this... I know my experience is so much better than some other peoples and I am hoping that at the end of my period as a "guinea pig" my GP will put me on weekly injections ( I have offered to do my own injections) then it will have been worthwhile. Not sure about the cartwheels though I am 71 next week..I have been on injections for 11 years and I am pretty sure that my symptoms started a long time before that... ut any improvement will be good. Best wishes.
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