Hi there. Does anyone with this condition feel it gets worse if you stop B12 supplements?
I am hypothyroid, have coeliac, lichen sclerosis and undifferentiated connective tissue disease (UCTD - I post on the lupus site too).
My GP was asked by the consultant to give me injections but she was a bit reluctant to do so as she said 'they are very potent.' On testing both my B12 (b12 only just in range after supplementing) and my vitamin D were deficient.
So for the last few years I have supplemented with sublingual sprays and losenges and the GP now wants me to stop for a month to have my levels tested.
Two weeks in and I already have many symptoms (tingling, numbness, painful tendons etc) but the lichen sclerosis us the worst it's been since being diagnosed 7 years ago.
Does anyone have any evidence that B12 deficiency can make this condition worse?
Appreciate any thoughts,