Hi I have to thank clivealive for replying to my last post and
can say I definitely identify with some of the things you mention plus many others things.
I had to call my GP today because the latest thing is feeling severely dehydrated, though I drink plenty water and my skin has suddenly become rough and dry especially on my lower legs and my feet are cracking. No cream helped. I can watch the fine skin bits lifting up off my legs. They feel sore too though no rash. The last few nights I've woken up several times because my tongue is almost stuck to the roof of my mouth. She's prescribing me some different cream and I've to check again for blood sugar problems though I've never had problems in that area before. Though I feel dehydrated I'm also bloated and not passing much urine!!
While on the phone with her she referred to my recent letter to her. She's still not wanting to try B12 injections even as a trial until she has sought advice from more expert persons especially an Endocrinologist as it is "not something they do at their Practice" and it will incur extra expense for them ie I think she means it has to be justified. I know it is a inexpensive treatment which if successful would actually save them time and money. However I said does that mean you want me to see an Endo to which she said yes! The first time I saw one was in 2003 when I first experienced the 'strange' overwhelming tiredness like nothing I'd felt before. He gave me a strange look and dismissed me with a "we all get tired" and that was that. So my faith in them is yet to be restored.
However I will go along with it as I'm wondering if my GP is concerned she could be missing something more serious and would rather they agreed with the B12 treatment first. I think that is possibly what she was trying to say.
What bemuses me somewhat is I've had numerous serious neurological symptoms for years and have been re-referred to my last Neuro again, with an appointment next week, but even the reference to these on the new guidelines, of which she (GP) now has a copy, don't seem to help them join the dots.
After all that what I want to know is whether anyone thinks an Endocrinologist is the way to go and could be helpfull in diagnosing possible B12 deficiency as in absorption problems. Has anyone been diagnosed this way?
I'm going to push the trial injections idea with the neuro too.
In an ideal world these people would talk to each other- but they don't.
I've rambled on a bit but I'm very tired and hope it all makes sense but you are all always so helpful and reassuring.