Hi....My question is quite complicated. I was diagnosed with B12 deficiency 5 years ago after having health problems for years that had become progressively worse. I'd had neurological symptoms since my mid twenties, but by 28 I had a full year of getting really bad with it, I had every symptom under the sun that you can possibly get for pernicious anaemia. I also had idiopathic angioedema, and stomach problems. I was never diagnosed with intrinsic factor antibody and no cause was ever found for my deficiency...Coeliac disease was something that was looked into...but that never came up in a test either. I was prescribed B12 injections along with folic acid and iron and within three weeks of having loading doses I felt amazing! All of my symptoms disappeared. After about 3 months my injections ran down and I was back to square one. I had my 3 monthly injection and felt better for a few days, but that was it. The GP's then told me I didn't need them any more as they couldn't prove I couldn't absorb B12 and that I was never that low anyway. My level was 154 and I felt like I was drunk, I had dry skin, sore lips and tongue, burning hands and feet, no energy, mind racing, memory problems, you name it...I felt horrendous. I knew I wouldn't get anywhere on the NHS so I took to self injecting...ordering online from Goldpharma. I ordered hydroxycobalamin and began injecting every other day. Pretty soon I felt fantastic again. I did this for over two years and didn't think to stop...that's when I began having swelling in my stomach and a salty taste in my mouth, head pressure, memory and speech problems, problems with balance and co-ordination and symptoms much worse than when I had B12 deficiency. I was really scared as I genuinely thought I was dying. I stopped injecting as I heard it can deplete your pottasium levels in high doses after a long period of time, and my symptoms were similar to that...within a few weeks, these symptoms thankfully disappeared and I felt well again for 5 months. Then the B12 deficiency symptoms came back, so I gave myself 4 injections, one every other day....my low pottassium symptoms came back and then after a month I felt well again, for another 4 or 5 months. Then April this year...all of my symptoms started to come back, I also have symptoms consistent with Candida overgrowth.....I got progressively worse throughout April, so gave myself 6 B12 injections one every other day (like loading doses) again...but I don't feel better at all...I feel just as bad, if not worse. I have no energy, can't think clearly, have a sore tongue, the whole of my body feels dry and sensitive especially my lips, hands and feet which have a burning sensation....I feel horrible and don't want to be stuck like this forever....I really don't know what to do...any suggestions, I would be really grateful!
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