Hi having failed to get anywhere with GP referred Haematologist, whom they referred me to twice and she did not even bother to phone and talk to me let alone see me to discuss my symptoms, I have now obtained a private referral to both a haematologist and orthopaedics (because I asked for an MRI of my spine) . Saw haematologist last night and he seems very knowledgeable about PA but he stated that none of his patients require more frequent treatment than every 4 weeks...... I was a bit shocked by that, given the amounts people give themselves on the forum! He seems to think I have other things going on and said that not all of my symptoms were B12 related although they are all quoted on PAS site, I did not argue, I just want to move forward. He is going to do the other tests including Homocysteine and MMA (I think) and he wants to do a brain scan and look for other deficiencies, so happy for him to do that. He did say he thinks I do need the B12 but that is not the only problem I have. I have to make myself go 2 weeks without any B12 so he can do tests and see what is happening at cell level so that is good (I think). He is using NHS services for as much as possible (I have limited funds) including the brain MRI. I am 4 weeks into treatment for Vit D deficiency and there is a marked improvement in my levels of fatigue and also been taking a multivit to help the B12 but think I am not getting enough folate and perhaps other vits. so hopefully he will sort all that out. I will keep forum posted as any info on decent Dr's is a good thing, and although I am a bit wary of the thought of a reduction in B12, he seems very thorough and clued up so willing to go with it.
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