Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for September 2014

Should the Neurologists take charge?

What the title really should read is 'should b12 deficiency be re-classified as a neurological illness?' We have the situation at the moment where once the...

What the title really should read is 'should b12 deficiency be re-classified as ...

•10 years ago

B12

I would like to try injectable B12 as I am just above the lower limit and my GP won't prescribe it. I have very bad tinitus in my left ear and I read that low...

I would like to try injectable B12 as I am just above the lower limit and my GP ...

•10 years ago

B12 deficiency - when to test

Hi, I've been suffering with a list of symptoms as long as my arm that the doctors haven't diagnosed a cause for so I had a hair sample test and it...

Hi, I've been suffering with a list of symptoms as long as my arm that the doct...

•10 years ago

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Sublingual B12

Can anyone tell me which sublingual B12 spray to buy and what dosage please? And which make is reliable?

Can anyone tell me which sublingual B12 spray to buy and what dosage please? And...

•10 years ago

New here and some B12 questions/could this be it?

Hey all, So for about a year I've had a mystery illness that pretty much no one has been able to figure out. At first I thought it was my liver but I had some...

Hey all, So for about a year I've had a mystery illness that pretty much no one ...

•10 years ago

Results are back.....

....and as I feared they appear to be normal. B12 - 605 Folate - 11.2 Intrinsic factor is not back yet. I'm booked in to see a different doctor to my usual...

....and as I feared they appear to be normal. B12 - 605 Folate - 11.2 Intrinsic...

•10 years ago

Numbness

Does anyone out there have numb patches of skin? I am B12 deficient and also hypothyroid along with coronary heart disease issues. Recently I've developed a...

Does anyone out there have numb patches of skin? I am B12 deficient and also hyp...

•10 years ago

Help with my symptoms:

I am self injecting, but not quite sure on some points. 1. My loading doses were 1mg 1ml daily. 2.I have been self injecting now for 2 weeks, and still give...

I am self injecting, but not quite sure on some points. 1. My loading doses wer...

•10 years ago

cousin hospitalised with Pernicious Anemia

Hi All, It has been a while, mainly because I have been feeling so rotten. I thought I would share this with you all, as an insight into Pernicious Anemia...

Hi All, It has been a while, mainly because I have been feeling so rotten. I t...

•10 years ago

Anyone had neuro damage attributed to b12 deficiency?

I was just wondering if anyone had actually managed to get any permanent neurological damage attributed to their b12 deficiency?

I was just wondering if anyone had actually managed to get any permanent neurolo...

•10 years ago

Advice on testing for B12

Hi. I'm in the process of getting my B12 tested privately, but would like some advice. The Thyroid UK website recommends the active B12 test...

Hi. I'm in the process of getting my B12 tested privately, but would like some ...

BrecklandRanger

•10 years ago

B12 petition update

Thought people might be interested in this update on a petition to make B12 available over the counter...

Thought people might be interested in this update on a petition to make B12 avai...

Administrator•10 years ago

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Newly diagnose PA

Hi my new GP has diagnosed me with PA but another GP at practice stated I didn't have as I have immature red blood cells. He also stated breathlessness was in...

Hi my new GP has diagnosed me with PA but another GP at practice stated I didn't...

•10 years ago

Possible PA in pregnancy

Hi, I'm new here. I saw my doc today who thinks vit b12 deficiency a possible cause for my severe fatigue. She's sent me for follow up blood test to check vit...

Hi, I'm new here. I saw my doc today who thinks vit b12 deficiency a possible ca...

•10 years ago

PAIN WHEN GETTING OUT OF BED.

Do any of you have difficulty getting out of bed with pain and stiffness, also difficulty turning over in bed?

Do any of you have difficulty getting out of bed with pain and stiffness, also d...

•10 years ago

Hope someone can help......

have had many problems since birth including constipation, poor concentration, bad short term memory, easily fatigued. One of my earliest memories is being sat...

have had many problems since birth including constipation, poor concentration, b...

•10 years ago

New Response on BMJ Article!

Linky http://www.bmj.com/content/349/bmj.g5226/rapid-responses

Linky http://www.bmj.com/content/349/bmj.g5226/rapid-responses

•10 years ago

Hydroxocobalamin causing Acne?

Hi everyone, this is my first post. I was diagnosed with PA about 9 months ago. After my loading dose my skin broke out really badly with spots on my face,...

Hi everyone, this is my first post. I was diagnosed with PA about 9 months ago....

Strawberry_Dream

•10 years ago

Having a Conversation about B12

Maybe a little bit deep for a Sunday evening I know but I just realised what I yearn for: A proper conversation about how b12 impacts our lives. Don't get me...

Maybe a little bit deep for a Sunday evening I know but I just realised what I y...

•10 years ago

Pernicious Anaemia misdiagnosis

Hi i was diagnosed with PA at the age of 5. Ive been on iron, folic acid and vit B12 injections on and off since then. Ive been going down hill for the last 15...

Hi i was diagnosed with PA at the age of 5. Ive been on iron, folic acid and vit...

•10 years ago

B12 advise

Hi just a bit of advise these are my sons results had bloods done his B12 was 329ng/l (150-620). Know this is within range but still think low, Serum folate...

Hi just a bit of advise these are my sons results had bloods done his B12 was 32...

•10 years ago

Advice on B12, MCV and MCH please...

These are my sister's results and I'd appreciate advice please. Despite low serum B12 she wouldn't supplement because GP said result was 'fine'. She forgot...

These are my sister's results and I'd appreciate advice please. Despite low se...

•10 years ago

Do doctors cause more problems ....

Do doctors cause more problems than they solve? I know it's a bit of a broad sweeping statement, but I have always been aware that I would have been better...

Do doctors cause more problems than they solve? I know it's a bit of a broad sw...

•10 years ago

Another Forum if anybody is interested

http://b12supportgroup.boards.net/ It's new, but thought it might be of use to some people

http://b12supportgroup.boards.net/ It's new, but thought it might be of use to ...

•10 years ago

A few issues...

I have a few issues that have started since self-injecting and I wondered if anyone had any insights. I started injecting daily - 1mg of Rotexmedica...

I have a few issues that have started since self-injecting and I wondered if any...

•10 years ago

Frustration of the UK system

Since my last post I've had my blood tests but one of them which was my back up (homocystine) wasn't done properly as it has to be done put on ice and...

Since my last post I've had my blood tests but one of them which was my back up ...

•10 years ago

Memory Problems, tingling hands and loss of sensation in finger tips and toes

I was ill for years with most of the classic symptoms of PA ( stomach gastritis, heart palpitations, tingling , balance issues,muscle weakness and fatigue,...

I was ill for years with most of the classic symptoms of PA ( stomach gastritis,...

•10 years ago

Box 3 Summary of treatment and management of #b12d Why Start folic acid 5 mg daily after B12 supplementation

what about the significance of B12 converting to B12 analogues when folate low. Why have loading doses when B12 analogues will decrease active cobalamin. It...

what about the significance of B12 converting to B12 analogues when folate low....

•10 years ago

B12 and Neuropathy - confused

Hi, I've been a vegetarian for 20 years. I ate mostly at home. My past live-in-partner for 14 years suffered from chronic fatigue and fibro and burning in her...

Hi, I've been a vegetarian for 20 years. I ate mostly at home. My past live-in-...

•10 years ago

Cyanocobalamin Pricing

Anyone else feeling gouged on price lately? I used to be able to buy a 10ml vial of injectable cyanocobalamin for about $15. The price seems to have...

Anyone else feeling gouged on price lately? I used to be able to buy a 10ml vial...

•10 years ago

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

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All things Pernicious Anaemia Society(75)

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