It has been a while, mainly because I have been feeling so rotten.
I thought I would share this with you all, as an insight into Pernicious Anemia untreated and also how other countries (other than the UK) deal with Pernicious Anemia:
a couple of weeks ago my father called me to let me know my cousing ( father's, brother's son) had been rushed to hospital and diagnosed with Pernicious anemia.
He was rushed in due to him collapsing
( Uk ref: I have collapsed dozens of times and my NHS GP is aware of this and has done nothing)
His blood was taken and tested - they advised him of his pernicious anemia within 1 hour
(UK ref: my NHS GP knew for 3 years I had PA and did nothing, not even telling me)
He was kept in hospital for a week with daily visits frot he haematologist
(UK ref: my doctor to this day refuses to refer me to a haematologist, I have asked and begged many times, the nurses at the GP surgery have asked on my behalf also, my neurologist has asked he refer me, and my physio)
He was given B12 injections every day and his blood was taken every evening to measure iron, blood count etc. He has NO neurological symptoms.
He was also given potassium and folate.
(UK ref: I have had 2 blood tests in 6 months, I was given 3 injections / week for a while, NHS GP then decided WITHOUT doing any tests tht I was "FULL" and stopped this. I had and still have neurological symptoms. My NHS GP denies that any suppliments will help me, so I have to buy my own potassium, magnesium, zinc, selenium and folate)
He was let out of hospital after a week and has weekly appointment with the doctor for a check up, and weekly appointments at the hospital to have the injections and other check ups.
(UK ref: I am allowed one injection every 2 MONTHS, and my doctor has not scheduled any check ups at ALL, and i have not seen him in nearly 3 months - just the monthly telephone call to renew my sick note for work)
My cousin is already starting to feel better, more energy, clearer head, producing a good level of new red blood cells with plenty of iron.
(I still fell awful, exhausted and run down, brain fog, tinitus, tingling in lips, fingers, and numb in my feet, cannot walk, etc etc)
My cousin lives in Berlin, Germany.
I live in the UK.
I hope this is of interest and anyone who can afford to move abroad might consider germany
Big Hugs to everyone,