Hi i was diagnosed with PA at the age of 5. Ive been on iron, folic acid and vit B12 injections on and off since then. Ive been going down hill for the last 15 yrs only on folic acid and ferrous fumarate as the GP's kept saying that my pernicious anaemia had gone. I have been having so many worsening neaurological problems, falling over, shaking, poor concentration so bad now i can fill in forms and remember words or know what day it is most of the time! IIm repeating things over and over in conversations. I feel like a dementia patient.
I am like a recluse as my temper is out of control but i dont know why. I feel that if i go out people will think im losing the plot and call the men in white coats!
I used to be the life and soul of the party. My hair is falling out in handfulls. I am yet again anaemic on ferrous fumarate and folic acid. Am i ok to insist on the GP doing tests for Pernicous anaemia again cos i now understand that when you have it its with you for life??????