So for about a year I've had a mystery illness that pretty much no one has been able to figure out. At first I thought it was my liver but I had some scans that ruled it out so I'm looking into this as well.
Basically over the past year I have:
-waves of dizziness
-slight motor problems
-head pressure/cotton ball feeling
-really bad anxiety
-altered levels of consciousness (derealization?) and memory problems
-sometimes my pupils dilate, around the same time I have ‘migraine auras’
-muscle twitching, sometimes involuntary
-cramps/pressure on right side of my ribs
- (This one is the worst!) BURNING sensation in my hands and feet.
Nothing worked for a solid year. Then, as a hail mary, my doctor gave me a B12 injection.
What. A. Difference. I woke up feeling amazing. I'm not 100% but it's been two weeks now, only had two B12 injections but also taking sublingual B12 and honestly all of my symptoms have greatly improved.
My GP dismisses this - my B12 was never officially 'low' (between the 200-300 mark) but I can't help but just feel the difference. It's bounced around from 180 to a high point of 350, and never seems to be consistent. He says 'its placebo' and even the neurologist I saw dismissed it - but I feel what I feel!
Shoddy labwork the past year also is pointing to *some* form of anemia - my MCH is -always- high (the one constant in every single lab test) and my MCHC and MCV are usually right along with it. I had high bilirubin once (which led me to believe liver was indeed the culprit) alongside high ferritin and low vitamin D.
Another thing to note - I had labwork done twice within 48 hours about a month ago (GP referred me to specialist, both did labs) and noticed that within a day, my B12 had dropped a good 80 points. A curious find.
I'd love any input you guys have. Could this be the culprit? I have read that B12 is a bit of a tricky thing, and I certainly don't understand a lot of the science behind it, but it's definitely doing something beneficial. I feel warmer, my circulation is better and my balance issues are better. I took oral B complex pills for years and they had literally zero effect. Are there additional tests/better tests than serum B12 I could run?
Thanks a lot, and looking forward to sharing/hearing.