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PMRGCAuk

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GCA and Ocular TIA (mini stroke)??

I was diagnosed with GCA four and a half years ago , am on my third relapse and am tapering (now 10mg prednisolone and weekly Actemra). At the onset I had...

I was diagnosed with GCA four and a half years ago , am on my third relapse an...

JulietPotion

•11 days ago

18 Replies

I’m having a GCA flare

hi, I started by taking 60 mg of Prednisolone March 2023 for GCA, I have take 1mg for the last 6 weeks and .50mg for the last 6 days, I am now having a flare,...

hi, I started by taking 60 mg of Prednisolone March 2023 for GCA, I have take 1m...

Grey7

•19 days ago

12 Replies

I'm being left in limbo

I'm 69 year old male who was in good health or so I thought. I'm having many vague symptoms for 4 months now. Headaches mostly mild that come and go. A few per...

I'm 69 year old male who was in good health or so I thought. I'm having many vag...

mantonnicola

•2 months ago

5 Replies

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GCA and Vision update

As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very...

As you all may recall, I was started in 60 mg. Prednisone in October. I am curre...

Lenore58

•5 months ago

15 Replies

Visual disturbance

Went to the cinema yesterday and had this type of visual disturbance (left eye only) about half way through the film. It lasted about 15 mn and then...

Went to the cinema yesterday and had this type of visual disturbance (left eye o...

Dochaz

•5 months ago

80 Replies

GCA - Mums current condition

We have finally made contact with both a Neulogogist - Dr. Ignaccio Garcia Bassterre and Rheumatologist Dr. Anna Nieto near Malaga. Dr. Bassterre through Dr....

We have finally made contact with both a Neulogogist - Dr. Ignaccio Garcia Basst...

DianaAdshead

•6 months ago

4 Replies

Emergency treatment for GCA blindness

I have just joined this forum, so excuse me as I am relatively new to this, My Mother has been dealing with GCA for over 5 years, and generally doing very...

I have just joined this forum, so excuse me as I am relatively new to this, My M...

DianaAdshead

•6 months ago

21 Replies

New Insights to GCA

This is from FB forum...interesting, sorry if it has already been posted......

Joseph14612

•6 months ago

14 Replies

GCA Study Article

Hi all, In all my research and scouring of the Internet, I found this article (below my update) which is quite informative and also recent. I don’t know if...

Hi all, In all my research and scouring of the Internet, I found this article (...

Lenore58

•6 months ago

14 Replies

My GCA Update

My Rheumy just called to say that my temporal artery biopsy came back positive. She put me on 60 mg. prednisone and submitted a request for approval of Actrema...

My Rheumy just called to say that my temporal artery biopsy came back positive. ...

Lenore58

•7 months ago

21 Replies

Possible GCA?

Hi, I’m at my local ER, because for the past 3 or 4 days I have had a chronic headache, severe neck ache and significant fatigue. In addition, my left...

Hi, I’m at my local ER, because for the past 3 or 4 days I have had a chronic h...

Lenore58

•7 months ago

18 Replies

Migraine or GCA?

About half an hour ago my eyesight began to behave as if I had been dazzled by a bright light. This is obscuring my eyesight a little. I have a dull prickling...

About half an hour ago my eyesight began to behave as if I had been dazzled by a...

SheffieldJane

•9 months ago

43 Replies

GCA with Lupus

I was first diagnosed with PMR first about 10 years ago. That was quickly followed by diagnosis of lupus. After complaining of headache in right temple area...

I was first diagnosed with PMR first about 10 years ago. That was quickly follo...

Gluten

•9 months ago

1 Reply

Follow up to my “what does GCA feel like”…….

Hi everyone, as usual, I’m awake! I asked the other day if people could describe their GCA. Reason being, I was lying down the other day trying to have a...

Hi everyone, as usual, I’m awake! I asked the other day if people could descri...

Bramble2000

•9 months ago

9 Replies

Can anyone describe….

Hi, can anyone describe what a GCA headache feels like and also scalp plain please? Thanks

Hi, can anyone describe what a GCA headache feels like and also scalp plain plea...

Bramble2000

•9 months ago

33 Replies

cool packs

I thought I’d share the fact that I have found great relief from the pain in my head from GCA using gel cool packs. This has helped me from having to use as...

I thought I’d share the fact that I have found great relief from the pain in my ...

Garden__lover

•9 months ago

2 Replies

CRP and ESR

I am in US and on Actemra 24 weeks and prednisone 12.5 and having right temple pain and right eye pain ...started at 60 mg prednisone in August-Sept 2022...

I am in US and on Actemra 24 weeks and prednisone 12.5 and having right temple p...

Joseph14612

•11 months ago

38 Replies

GCA relapse

I am currently having a bad GCA relapse and have put my steroids up from 3.5 to 7.5 mg. What always surprises me is that if I have a hot bath, one where I am...

I am currently having a bad GCA relapse and have put my steroids up from 3.5 to ...

christine2715

•1 year ago

16 Replies

GCA-Prednisolone withdrawal

I've posted recently about my PMR and GCA. Now I am going to run out of my prednisolone. Because my GP wanted me to reduce I did for about 10 days and then...

I've posted recently about my PMR and GCA. Now I am going to run out of my pred...

pomeranion

•1 year ago

17 Replies

Crohn's, GCA and PMR...want to have my cataracts removed

I am currently on prednisone, started in October at 60 mgm and now down to 20 mg. My eyesight is getting worse, and it sounds like I will be on prednisone for...

I am currently on prednisone, started in October at 60 mgm and now down to 20 mg...

Solstice85

•1 year ago

25 Replies

Causes of GCA

What causes GCA and why is it related to PMR? How does Prednisone work for GCA? I would like to hear from people who have developed this condition.

What causes GCA and why is it related to PMR? How does Prednisone work for GCA? ...

christi48

•1 year ago

4 Replies

GCA and sore lumpy tongue

I've managed to get to 5.5mg with the help of Actemra over the last 16 months, not as fast my my Rheumy would like but she accepts some folk are slower....

I've managed to get to 5.5mg with the help of Actemra over the last 16 months, ...

Happyexplorer

•1 year ago

16 Replies

Reporting back from Dr after tongue necrosis

So, my Rheumatologist looked at the brown and black areas on my tongue (way in back) and she said it is very rare. She had one patient that had it before, I...

So, my Rheumatologist looked at the brown and black areas on my tongue (way in b...

potterylady

•2 years ago

4 Replies

Is there a cure for GCA and PMR

suffering from GCA for six years with symptoms of PMR arriving later. All the posts I have read seem negative as to cures. So I will ask the question. Does...

suffering from GCA for six years with symptoms of PMR arriving later. All the po...

astley123

•2 years ago

3 Replies

The life of GCA

It is no wonder doctors have such a hard time with this disease. My journey started in 2017. I have not been off steroids since then. Twice now I have got...

It is no wonder doctors have such a hard time with this disease. My journey sta...

shazstep

•2 years ago

3 Replies

New here! GCA advice please...

To cut a long story short, newly diagnosed with GCA. I've been on 60mg Prednisolone for nearly a week and although it's taken the edge off the awful pain I was...

To cut a long story short, newly diagnosed with GCA. I've been on 60mg Prednisol...

Carer1976

•2 years ago

16 Replies

TCZ 7 months in, and tapering Pred,- update.

Hello friends ! Long post, hope it’s of use to someone…! Since early April I’d been intending to write an update on my progress at my 6-months-on -TCZ- point...

Hello friends ! Long post, hope it’s of use to someone…! Since early April I’d ...

Jonimoroni

•2 years ago

34 Replies

GCA symptoms once treatment has started

I started on Prednisone 3 months ago after a biopsy confirmed GCA. Gradually reducing the amount, month by month. But whereas I never experienced the usual...

I started on Prednisone 3 months ago after a biopsy confirmed GCA. Gradually red...

Dochaz

•2 years ago

23 Replies

Wired cramping feet and hands 😬

These cramps are wired hands and feet, or should I say finger and toes , It pulls my fingers Then this evening ,it felt as something was reaching my toes...

These cramps are wired hands and feet, or should I say finger and toes , It pull...

Ronzy

•2 years ago

11 Replies

New to GCA

Hi. I'm new here. Been reading your posts and so helpful. I'm newly diagnosed with temporal arteritis although I have my biopsy coming up this monday. Was...

Hi. I'm new here. Been reading your posts and so helpful. I'm newly diagnosed wi...

Cobalt2sister

•2 years ago

27 Replies

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

GCA Symptoms posts

GCA and Ocular TIA (mini stroke)??

I’m having a GCA flare

I'm being left in limbo

GCA and Vision update

Visual disturbance

GCA - Mums current condition

Emergency treatment for GCA blindness

New Insights to GCA

GCA Study Article

My GCA Update

Possible GCA?

Migraine or GCA?

GCA with Lupus

Follow up to my “what does GCA feel like”…….

Can anyone describe….

cool packs

CRP and ESR

GCA relapse

GCA-Prednisolone withdrawal

Crohn's, GCA and PMR...want to have my cataracts removed

Causes of GCA

GCA and sore lumpy tongue

Reporting back from Dr after tongue necrosis

Is there a cure for GCA and PMR

The life of GCA

New here! GCA advice please...

TCZ 7 months in, and tapering Pred,- update.

GCA symptoms once treatment has started

Wired cramping feet and hands 😬

New to GCA

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