Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,214 members • 23,384 posts

All posts for June 2024

Folic acid and digestive issues

Has anyone suffered loose bowel after starting folic acid? Only been on it a week and started getting loose bowel since then, wondered whether this is the...

Has anyone suffered loose bowel after starting folic acid? Only been on it a wee...

Chickens44

•21 days ago

13 Replies

An Interesting Survey

Dear All, I found this really helpful piece of work. Obviously, the Research Design was flawed, the Sample size is minuscule, there was a language barrier...

Dear All, I found this really helpful piece of work. Obviously, the Research D...

Narwhal10

•21 days ago

9 Replies

Nerve pain

Can people tell me thier experience about how their nerve pain normally manifests and where in the body they feel it?

Can people tell me thier experience about how their nerve pain normally manifest...

Popcorn12345

•21 days ago

11 Replies

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EOD may not continue...

I have had 2 loading doses of B12. Before the 3rd set of loading doses began, the nurses queried the reason for such frequency...This started the drs querying...

I have had 2 loading doses of B12. Before the 3rd set of loading doses began, th...

La2016

•21 days ago

8 Replies

revering out symptoms from beef

hello, I had not had an injection for 2 1/2 weeks and started to eat beef, I felt so energized and strong I even started to walk for exersice again, I gained...

hello, I had not had an injection for 2 1/2 weeks and started to eat beef, I fe...

JesusMercy60

•22 days ago

3 Replies

self-inject intramuscular vitamin B12

Hi all,I often read these posts but not very often write in. I was diagnosed with PA in 2000 using the schillings test. I have been having IM injections every...

Hi all,I often read these posts but not very often write in. I was diagnosed wit...

Tonyworks

•22 days ago

5 Replies

Women’s Health article about B12 deficiency popped up on msn homepage earlier

https://www.msn.com/en-gb/health/familyhealth/9-signs-you-re-not-getting-enough-b12-that-you-should-be-aware-of/ar-AA11mgCu?ocid=entnewsntp&pc=LCTS&cvid=7c97406

https://www.msn.com/en-gb/health/familyhealth/9-signs-you-re-not-getting-enough-...

J972

•22 days ago

2 Replies

I just popped this on Thyroid Uk but thought I would lift your day too.

I sure did put the cat amongst the pigeons with my letter to my endocrinologist. I just recieved this email from my surgery.......... Thank you for...

I sure did put the cat amongst the pigeons with my letter to my endocrinologist....

Jillymo

•22 days ago

14 Replies

Causes of lower Active B12

Hi - what are the reasons for Active B12 being low or rather lagging behind serum B12 for some people? I am, very fortunately, currently getting 3x a week...

Hi - what are the reasons for Active B12 being low or rather lagging behind seru...

GW1000

•22 days ago

8 Replies

B12 deficiency and night sweats query

Hi - I don't have a diagnosis but I hope you don't mind if I pick your expert brains 🙏 I (Female, 45) have fairly regular blood tests due to medication I...

Hi - I don't have a diagnosis but I hope you don't mind if I pick your expert br...

rmros

•22 days ago

15 Replies

Losing my worms

I struggle to find my words and it feels like it's getting worse. I'm really hoping that it's reversing out. Has anyone else felt their mental symptoms (fog,...

I struggle to find my words and it feels like it's getting worse. I'm really hop...

debra_bill

•22 days ago

19 Replies

B1 Thiamine.

30+- days of Thiamine trial. It has been life changing. (At the dosage I administered) See Elliot Overton for result based research not unproved projections...

30+- days of Thiamine trial. It has been life changing. (At the dosage I adminis...

WIZARD6787

•22 days ago

2 Replies

Delivery from Versandapo today with excellent dates

ordered Friday, dated 1/27 😀

Showgem

•22 days ago

15 Replies

JUNE 2024 B12D SUPPORT GROUP COFFEE AND ZOOM (GUEST SPEAKER DR ANDREW KLEIN)

The B12D support group have Dr Andrew Klein as a guest speaker - if you are not a member of B12D you could join (it’s free) as this is definitely a meeting not...

The B12D support group have Dr Andrew Klein as a guest speaker - if you are not ...

Wwwdot

•22 days ago

14 Replies

JUNE NEWSLETTER

our June newsletter will be coming out soon. If you are not already a member then sign up to the Pernicious Anaemia Society...

our June newsletter will be coming out soon. If you are not already a member th...

PAScomms

•23 days ago

3 Replies

Interesting study on higher doses of Hydroxocobalamin

https://onlinelibrary.wiley.com/doi/10.1002/jmd2.12087 I'm in the US. I've been trying to find a better option for my Hydroxocobalamin prescription. I've...

https://onlinelibrary.wiley.com/doi/10.1002/jmd2.12087 I'm in the US. I've been...

lb9999

•23 days ago

86 Replies

What is an optimal pmol\L level for ACTIVE B12.

Thank-you.

Diana49

•24 days ago

3 Replies

Not feeling any better.

I have being taking, Liquid Drops 3000 mcg Methylcobalamin + Adenosylcobalamin. From Natures Way. It is in 3000 mcg per dropping under the tongue. I have tried...

I have being taking, Liquid Drops 3000 mcg Methylcobalamin + Adenosylcobalamin. ...

Natural1970

•24 days ago

5 Replies

My doctors won’t investigate

Typically I suffer with chronic symptoms of low B12 but all my results seem to be ignored by GP. My ferritin is 35 ug/L (indeterminate), vitamin b12 is 157ng/L...

Typically I suffer with chronic symptoms of low B12 but all my results seem to b...

Lorynne

•24 days ago

12 Replies

Daughters bloods, saga continues and I'm Not Happy

Following on from previous posts , many posts think I can absolutely without doubt or hesitation say I am absolutely F&%@ing fuming. Gp's had asked for repeat...

Following on from previous posts , many posts think I can absolutely without dou...

Polo22

•24 days ago

13 Replies

yay!!!

My GP agreed to go from monthly injections to weekly! I had taken in my symptom diary/tracker and she asked a few questions about how I was feeling, had...

My GP agreed to go from monthly injections to weekly! I had taken in my symptom...

PlatypusProfit8077

•24 days ago

9 Replies

feeling desperate.

Ok so I am hopefully going to be starting injecting every other day soon (possibly end of this week), but can’t just yet and I don’t know how to cope. I ain’t...

Ok so I am hopefully going to be starting injecting every other day soon (possib...

Gobbozoid

•24 days ago

46 Replies

Case Report of PA with SACD in Japan

"Seventy-Three-Year-Old Man with Pernicious Anemia Complicated by Subacute Combined Spinal Cord Degeneration and Cognitive Impairment"...

"Seventy-Three-Year-Old Man with Pernicious Anemia Complicated by Subacute Combi...

Technoid

•25 days ago

14 Replies

trying to get B12 SI schedule right for me

hi all Just trying to get my SI schedule right to feel my best. I live in the USA so tx protocol is once a month B12 injection. This doesn’t work for me. I...

hi all Just trying to get my SI schedule right to feel my best. I live in the...

Schpsych2414

•25 days ago

7 Replies

Does fear play a role with pernicious anemia?

Hey guys, I hope this message finds you well. It's good to have a place to come that someone has some understanding of what you're going through! I messaged...

Hey guys, I hope this message finds you well. It's good to have a place to come ...

25092

•25 days ago

4 Replies

Is it B12 anemia? I’m confused.

Hello all, I’m new here and not sure if I need to pursue some concerns I have with my health so wondered if anyone could possible give me some......

Hello all, I’m new here and not sure if I need to pursue some concerns I have wi...

BlueOkapi

•25 days ago

34 Replies

Magnesium supplements

Hi everyone, if you have low stomach acid is it wise to take magnesium supplements, just wondering 🤔 thanks

Hi everyone, if you have low stomach acid is it wise to take magnesium supplemen...

Helliborous

•25 days ago

5 Replies

iron infusion + b12 injection side effects

Had my iron infusion and first B12 injection yesterday and this evening I have diarrhoea. Anyone else had this side effect after?

Had my iron infusion and first B12 injection yesterday and this evening I have d...

Chickens44

•26 days ago

4 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2024

Folic acid and digestive issues

An Interesting Survey

Nerve pain

EOD may not continue...

revering out symptoms from beef

self-inject intramuscular vitamin B12

Women’s Health article about B12 deficiency popped up on msn homepage earlier

I just popped this on Thyroid Uk but thought I would lift your day too.

Causes of lower Active B12

B12 deficiency and night sweats query

Losing my worms

B1 Thiamine.

Delivery from Versandapo today with excellent dates

JUNE 2024 B12D SUPPORT GROUP COFFEE AND ZOOM (GUEST SPEAKER DR ANDREW KLEIN)

JUNE NEWSLETTER

Interesting study on higher doses of Hydroxocobalamin

What is an optimal pmol\L level for ACTIVE B12.

Not feeling any better.

My doctors won’t investigate

Daughters bloods, saga continues and I'm Not Happy

yay!!!

feeling desperate.

Case Report of PA with SACD in Japan

trying to get B12 SI schedule right for me

Does fear play a role with pernicious anemia?

Is it B12 anemia? I’m confused.

Magnesium supplements

iron infusion + b12 injection side effects

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