JUNE 2024 B12D SUPPORT GROUP COFFEE A... - Pernicious Anaemi...

Pernicious Anaemia Society

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JUNE 2024 B12D SUPPORT GROUP COFFEE AND ZOOM (GUEST SPEAKER DR ANDREW KLEIN)

Wwwdot profile image
14 Replies

The B12D support group have Dr Andrew Klein as a guest speaker - if you are not a member of B12D you could join (it’s free) as this is definitely a meeting not to be missed!!!

Subject to the weather I will be sitting outside with a mug of freshly bredwed coffee, headphones in - ready to listen to the only medic who would listen when I was diagnosed and on my knees unable to cope and sadly who is still the only medic in my expanding medical circle who will listen now.

He is definitely a rare gem, a rose amongst thorns as my grandmother liked to say!

🤗🤗🤗

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Wwwdot profile image
Wwwdot
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14 Replies
Chickens44 profile image
Chickens44

not overly impressed with the B12d website. Firstly I can’t open many of the links on there, despite registering. Also I read through a paper called ‘I feel terrible after my injection’, which was very informative, but there were loads of spelling errors! They need a good spell checker!

Wwwdot profile image
Wwwdot in reply toChickens44

Hi Chickens44

I have observed the same but in fairness it’s a voluntary support group and as always funds are limited, whilst the spelling is poor it at least shows provenance of info from genuine folks!

🤗🤗🤗

Chickens44 profile image
Chickens44 in reply toWwwdot

I thought it was great, just felt it would more impact with the powers that be if grammar was better. Just me being picky! Can you open any of the links on there?

MrsTuft profile image
MrsTuft

what’s the link to the group please?

Wwwdot profile image
Wwwdot in reply toMrsTuft

Hi MrsTuft

It’s b12.org. If you sign up as a member they send you the link to attend events.

🤗🤗🤗

Pa234aw profile image
Pa234aw

Hi Wwwdot,

Are you able to share details of the Zoom call please?

I’ve joined B12D but I can’t find anything on the website about it and I’ve obviously missed the June newsletter.

Thanks.

Wwwdot profile image
Wwwdot in reply toPa234aw

Hi Pa and Liz

I will

Phone them Monday and see if I can get a link to share.

🤗🤗🤗

LizWilsonpa profile image
LizWilsonpa

Hi

I would love to attend the event but I’m unable to find how to become a member. I tried to register on the members page but I can’t seem to submit after filling out my details? I didn’t know about this group so good to hear about it. Unfortunately quite a few of the links aren’t working on the website (for me anyway - I’m using a mobile). I’ll try emailing them.

I’m thinking of arranging a consultation with Dr Klein now my GP has removed my prescription (because I admitted SI eod) and because my symptoms are returning. It would be great to hear him speak.

The zoom details are on the website - I hope the group are ok with some of us just turning up. I’m happy to pay a donation.

Thanks for sharing.

Pa234aw profile image
Pa234aw in reply toLizWilsonpa

Liz, Do you have those Zoom details please? I can’t find them on the website. I’ve managed to join the group but it wasn’t straightforward! Thanks.

LizWilsonpa profile image
LizWilsonpa in reply toLizWilsonpa

Replying to myself - user error! I've managed to register as a member now!

Marlboro123 profile image
Marlboro123

I've joined as well but cannot find any link or info or newsletter unless it's a case of not seeing the wood for the trees, although I speak to the doctor in Cambridge in a few weeks it still would be nice to follow this.

LizWilsonpa profile image
LizWilsonpa in reply toMarlboro123

b12d.org/event

This should work - if not I have a screen shot of it - let me know.

Charlie27612 profile image
Charlie27612 in reply toLizWilsonpa

I would like a link to the zoom meeting too, the one above says 'not found '

Wwwdot profile image
Wwwdot in reply toCharlie27612

Hi Charlie

The meeting has happened. There should be a recording on the B12D website. It was an excellent meeting.

🤗🤗🤗

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