Losing my worms: I struggle to find my... - Pernicious Anaemi...

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Losing my worms

Enuffisenuf profile image
19 Replies

I struggle to find my words and it feels like it's getting worse. I'm really hoping that it's reversing out.

Has anyone else felt their mental symptoms (fog, confusion, memory, mood) get worse before getting better on B12 treatment?

I've been SIing eod for about 9 months and am also, much more recently, working on my under medicated hypo thyroid condition.

My mood has definitely improved, and the problems could of course be related to my thyroid, but........

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Enuffisenuf profile image
Enuffisenuf
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19 Replies
topazrat profile image
topazrat

To start with, I was always losing my worms. I also got words confused - strawberry and tomato, cucumber and cauliflower, swing and slide - much to the hilarity of my Granddaughter 🤣

Strangely enough, I had no problem with words until I started on jabs. I don't have the word confusion now, but I do occasionally forget words, but then I am on the wrong side of 60! Usually its only when I'm either tired or nervous.

Doc has always blamed it on a mini stroke that I had about 9 years ago, although I dispute that it was a stroke and firmly believe that it was untreated P.A.

I found it so frustrating. People looked at me like I was an alien from the planet Zog, who was sadly lacking in brain power when I forgot simple words or said the wrong word. 🙁

Enuffisenuf profile image
Enuffisenuf in reply totopazrat

I've had a few interviews recently for a job I'm pretty good at, but it's difficult to impress when you stop mid sentence because you can't think of a word!

Regenallotment profile image
Regenallotment

yes, I’m a teacher and would find myself unable to remember what lesson we were on next despite having written all the materials myself. Often have to play the guess which word I can’t remember game with my students 🙈 young people are great, so helpful and kind . I have Hashimoto’s, B12 is always low without daily supplements but untested, I SI too, and perimenopausal. Tiredness is often a factor for me 🌱

Enuffisenuf profile image
Enuffisenuf in reply toRegenallotment

Are you seeing any improvement?

Regenallotment profile image
Regenallotment in reply toEnuffisenuf

Definitely but perhaps more from sorting my thyroid (I take T4 and T3) and vitamins (ferritin especially) than from the B12 which stops me walking into door frames and waking up with numb arms/tingling fingers 🌱

Regenallotment profile image
Regenallotment in reply toRegenallotment

Oh and getting 9 hours sleep instead of 6 solves a lot more but that’s a challenge when working full time 🙈🙏

KBird01 profile image
KBird01 in reply toRegenallotment

My brain fog compleyely disappeared when I had the right balance of vitamins (I don't have a thyroid prob tho). GP insistent it was menopause. Nope! The last key for me was ferritin. Bang! I was right back on form. Currently struggling again as levels have once more dropped. But I know it's fixable now. Good luck, it's so frustrating. 🤗

Enuffisenuf profile image
Enuffisenuf in reply toKBird01

Time to push for full vit testing

Regenallotment profile image
Regenallotment in reply toKBird01

Ah interesting so ferritin is definitely a thing then with this 👏

KBird01 profile image
KBird01 in reply toRegenallotment

It's advisable to have an iron panel test before supplementing with iron though. It is possible to overdose with iron. There is a condition called Iron deficiency without anaemia. Rexz has posted on this previously. So yes, this was definitely a factor for me, but it seems just one part in the jigsaw. Definitely worth considering though and checking the articles Rexz shared. 😊

helvella profile image
helvella

Many years ago, someone made that exact mistake.

Thereafter, I have always called an instruction manual a "Book of worms". Though not being in contact with the people who might have understood, most often in my head rather than spoken.

Doris11 profile image
Doris11

I cook often with a green thing that looks like a cucumber? 🥒… courgette my brain is awful 😞 I’m only 59! Hypothyroidism and B12 deficiency 🙈😉

dollcat profile image
dollcat

Yes. I do that too. It's worse in the week leading up to my injection. It has been worse since I had Covid.

Maisiethedog profile image
Maisiethedog

When I was at my worst, I stammered, came out with random words or lost my words completely. I was eventually given 5 loading doses by the GP, but these basically didn't even touch the sides, and my speech got worse. It wasn't until I persuaded him to inject every other day for a couple of months that my speech (and the rest of my symptoms) started to improve. I now SI twice a week and still have some brain fog, but it's far less noticeable.

Enuffisenuf profile image
Enuffisenuf in reply toMaisiethedog

Sounds like there is some hope

ClaireWF1346 profile image
ClaireWF1346

I'm only six weeks in to EOB SI but I still lose my words, worse when I'm tired. I sometimes just completely lose track of what I was even talking about, especially if someone interrupts me, or sometimes will just substitute sandwich for sausages or something silly. I think this is why socialising is so draining because you become more conscious of it and try to be "on the ball" all the time! At home, my husband just laughs along with me!

Cherylclaire profile image
CherylclaireForum Support in reply toClaireWF1346

Yes - nothing can be done on autopilot now. Very tiring to have to concentrate so hard all day long. And so much worse when tired !

B12life profile image
B12life

try taking 250 mg of benfomax a day.

Also ask in a new thread about your thyroid issue, you might get more answers.

Enuffisenuf profile image
Enuffisenuf in reply toB12life

Thanks. I'm working on my thyroid under medication, but it's a slow process.

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