Misdiagnosis

[WIZARD6787]

I have written here often that I was misdiagnosed many times since 1962.

I have come to understand it is more accurate to say I was given a diagnosis as I did not meet the criteria for the diagnosis given. It was not they did not understand rather they made something up to avoid facing they did not know.

[Narwhal10]

Sorry to read WIZARD6787,

61 years is a long time. It must have had a great impact upon your life. Unfortunately, doctors do not always know and have answers. They are not maliciously making things up. P.A./B12 D has vague symptoms which mimic other conditions. It also gets forgotten about. So, I feel it is beneficial to educate and use it as a learning opportunity. Whether that is giving doctors research or as yours spans decades maybe writing a book.

✨

[Wwwdot in reply to Narwhal10]

Hi Wiz

Narwhal is right. You could consider a novel on how to navigate the unknown. I doubt many will have your insight.

🤗🤗🤗🤗

[WIZARD6787 in reply to Narwhal10]

I am writing a book. It is in installments here. 🙂

I am good with we all live with what fate has given us and there is no way to understand what might have been.

I don't think I implied maliciousness although harm was done beyond giving me a diagnosis that was not medically sound rather then ethically state they did not know. I professionally do that all the time. In fact it is part of me being a professional.

I do not find B12 decency difficult to diagnose due to symptoms being vague rather the symptoms are not ethically evaluated.

Should I find a medicial professional that shows any sign of being able to be educated I will do so. Until then I will as best I can deal with the unethical behavior and the feeling that I am enabling their behavior by paying them.

[Narwhal10 in reply to WIZARD6787]

Gosh no you did not imply any ill feeling in the slightest. I totally understand the ethical and moral aspect. In other industries, there is time that allows us to work things out, make a phone call, send an email, look up in a book or hang on, I’ve got some scribbling on a piece of paper pinned on a notice board or an exercise book from a couple of decades ago.

Great to hear you are writing a book. I bet it will extremely interesting.

I know the P.A.Society works very hard at trying to educate medical professionals on the illness plus, it has a huge amount of international connections.

Little old me loves Maths and with that came Physics. On my health journey, my little cheeky mind has thought Planck, Planck, yes Planck’s constant. It is seen in quantum mechanics and quantum information science and is denoted by h. None of my family realise that I think like this though. 🤷‍♀️

[WIZARD6787 in reply to Narwhal10]

>>Great to hear you are writing a book. I bet it will extremely interesting.

I was being tongue and cheek. I meant my writing here was a book.

I know the work that PAS does and find that wonderful. One GP is trained and every patient that has B12 will benefit. Hopefully it spreads the way moderate exersize and not complete bed rest came into being. The heart attak paticients that did not accept complete bed rest thrived and eventualy that became the norm.

[Narwhal10 in reply to WIZARD6787]

WIZARD6787,

You devil. I send a couple of rambling emails people have no idea that they are part of my book. There are encryptions in them to amuse me though.

Yep that bed rest malarkey for lots of things is rubbish. It has been proved otherwise. However, the flip side is people do not convalesce adequately with illnesses because of 24/7 environment. The ideology of must do, must do, work, work. Fools the lot of them. 😆

[WIZARD6787 in reply to Narwhal10]

What is important to me is it was patients that proved that bed rest was not the best. The physicians just followed.

I find it worthy of note that the Dr constant is they were confident that bed rest was best and anyone who did not follow their mistake were substandard. And the Dr never faced they made a mistake. Same with when they killed so many people taking out their tonsils. This is not to day physicians are useless rather often wrong and do not have the humility to face it.

[MorningMist]

I find it illogical that hospital capacity is expressed in terms of beds, when some patients don’t need a bed at all, except maybe to sleep in, & if they have to stay in hospital at all.

The inertia in medical thinking and practices is inexplicable and not fit for purpose. And lack of humility is part of the problem.

Medical students should study some literature and philosophy to show them that there is no one size fits all version of reality.