Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,084 members • 23,232 posts

All posts for February 2023

Hydroxycobalamin injections

Hi everyone I’m so new to all this. Had undiagnosed low b12 since my symptoms started a year ago . Went to a private doctor and received an iron infusion and...

Hi everyone I’m so new to all this. Had undiagnosed low b12 since my symptoms st...

Kiz20

•1 year ago

40 Replies

HELP PLEASE

hi guys it’s been awhile since I have posted, I’m in desperate need of some clarification, it’s my son he’s been so poorly for quite awhile, reoccurring...

hi guys it’s been awhile since I have posted, I’m in desperate need of some clar...

Steph0077

•1 year ago

14 Replies

Can anybody point me in the right direction for buying b12 ampoules, everywhere out of stock!

Hi, went to my normal german pharmacist but it appears they are out of stock and have tried others, all saying the same which is a big worry as nearly out of...

Hi, went to my normal german pharmacist but it appears they are out of stock and...

Worksop1

•1 year ago

13 Replies

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First Post. Uniquie Symptoms?

I have read now for 2 years and 3 months. At first I could barely follow. I wanted to thank you all. A heartfelt thank you. The information has been critical...

I have read now for 2 years and 3 months. At first I could barely follow. I wa...

WIZARD6787

•1 year ago

6 Replies

Liquid B12 (oral)

I have upped my bi-weekly injection to weekly for now. Also it may not be effective but I'm thinking of getting a bottle of liquid B12 (methylecobalamin) for...

I have upped my bi-weekly injection to weekly for now. Also it may not be effect...

Erainy

•1 year ago

7 Replies

B12 Injections

Hi. I used to be on B12 injections but when the Covid Pandemic happened my GP switched me to having aB12 tablets. I had side effects from taking the B12...

Hi. I used to be on B12 injections but when the Covid Pandemic happened my GP sw...

Pollyanna23

•1 year ago

16 Replies

B12 INJECTIONS not on my prescription

Hello, hope everyone is feeling OK, or not too bad. I have been self injecting since Covid and still doing that. Buying my B12 injections and the kit. I need...

Hello, hope everyone is feeling OK, or not too bad. I have been self injecting s...

briarhillcat

•1 year ago

20 Replies

Still trying for a diagnosis

Hi everyone, I'm shortly on my way to yet another health care appointment. This has been a long journey... My current symptoms are: •Tiredness and slowness –...

Hi everyone, I'm shortly on my way to yet another health care appointment. This...

KBird01

•1 year ago

17 Replies

Co factor advise 39 year old female.

Hey all, can anyone please advise on the important co factors to go along with b12 supplementation for a deficiency level of 149. Many thanks

Hey all, can anyone please advise on the important co factors to go along with b...

Louis2345

•1 year ago

1 Reply

Apohealth

Hi I have just managed to order Hydroxocobalin from Apohealth. It goes very quickly !

Hi I have just managed to order Hydroxocobalin from Apohealth. It goes very qui...

Chocolate41

•1 year ago

6 Replies

Where to purchase B12 ampoules from?

Hi, I am running low on B12 ampoules for injecting - where are people buying theirs from. Ive sent of a few requests for quotes to german pharmacy's and...

Hi, I am running low on B12 ampoules for injecting - where are people buying th...

B12-118

•1 year ago

5 Replies

Vertigo, heart palpitations after 4th shot of Neurobion.

I found out my b12 was low after having neurological symptoms such as tingling and nerve pain. The doctor prescribed me neurobion shots 1 per week for four...

I found out my b12 was low after having neurological symptoms such as tingling a...

Louis2345

•1 year ago

44 Replies

From PA to CIPD - but a Big Thank You .. .

Hellow lovely PA folks and mods/ forum leaders. With the classic set of symptoms of peripheral neuropathy burning / tingling hands, feet, brain fog, carpel...

Hellow lovely PA folks and mods/ forum leaders. With the classic set of sympto...

Treesong2023

•1 year ago

12 Replies

Vitamin blood test

Please would someone tell me how long before a vitamin blood test should I stop taking supplements? Thank you.

Please would someone tell me how long before a vitamin blood test should I stop ...

Everdean

•1 year ago

2 Replies

Out of date vials of B12 how strong are they?

I have been SI B12 for nearly 5 years and got so much stronger considering how terrible and weak I was. I bought extra when Brexit was becoming a reality half...

I have been SI B12 for nearly 5 years and got so much stronger considering how t...

jointpain

•1 year ago

14 Replies

Query re. folic acid dosage and related issues

I’m still confused with regard to correct amounts of folic acid and B6 when injecting B12 EOD or ED, assuming it’s for life. Is there a danger of overdosing...

I’m still confused with regard to correct amounts of folic acid and B6 when inje...

Yervaud

•1 year ago

14 Replies

Panpharma B12

the Panpharma B12 ampoules are back in stock at versandapo.de...

blood_orange

•1 year ago

16 Replies

Vitamin B12 in Foods, Food Supplements, and Medicines—A Review of Its Role and Properties with a Focus on Its Stability

Apols if posted already: long open access review from the pharmacological viewpoint, but covers e.g. different forms, with plenty of references...

Apols if posted already: long open access review from the pharmacological viewpo...

dot-dash

•1 year ago

2 Replies

Unable to order B12 online anymore.

Anyone else got this problem? I can't seem to find any German site that will accept orders from the UK for injectable B12 thats Hydroxocobalamin based rather...

Anyone else got this problem? I can't seem to find any German site that will acc...

Silverfox2

•1 year ago

32 Replies

Iron and B12 deficiency

Had a massive realisation after getting a diagnosis of ME and not feeling like it fit/refusing to accept it. As we all are, I'm just trying to piece together...

Had a massive realisation after getting a diagnosis of ME and not feeling like i...

Hidden

•1 year ago

31 Replies

How long after the expiry date

hi Ihave got some Hydroxcobalmin that expires April 2023 how long is it safe to please. I am getting very short on ampoules now and am beginning to...

hi Ihave got some Hydroxcobalmin that expires April 2023 how long is it safe t...

Chocolate41

•1 year ago

12 Replies

MMA Test - Worth Doing if on supplements?

Hi Folks - quick question - I have been taking Multi-Vit and supplements ( no injections) since the 13th Jan, just after i was tested for serum b12 which...

Hi Folks - quick question - I have been taking Multi-Vit and supplements ( no in...

Treesong2023

•1 year ago

5 Replies

b12=999 but low folate

I’ve just had bloods and my folate came back as low but my b12 was 999. My white blood count was also high along with neutrophils monocytes eoisenophils and...

I’ve just had bloods and my folate came back as low but my b12 was 999. My white...

Tiredguy94

•1 year ago

1 Reply

had b12 results and called in to discuss

hello… I’ve just had my b12 levels done and they are >2000 (range 200-900) I started my supplement with oral b12 and decided to trial SI after much reading...

hello… I’ve just had my b12 levels done and they are >2000 (range 200-900) I s...

Delilahmy

•1 year ago

34 Replies

Burning Mouth Syndrome?

Hello, My first time here, searching for help and info. I have what seems to be "burning mouth syndrome" though it should be called Burning Tongue syndrome as...

Hello, My first time here, searching for help and info. I have what seems to be...

minxabroad

•1 year ago

26 Replies

Doctor has taken me off monthly injections; symptoms have not gone away. Any help or advice appreciated.

Hi I've gathered lots of useful information from this site over the last couple of years since being diagnosed, so hoping for a little help/clarity. My...

Hi I've gathered lots of useful information from this site over the last couple...

JohnBabyJohn

•1 year ago

30 Replies

Vitamin D Plays a Crucial Role in Immune Function and Inflammation

The excellent Dr John Campbell explains the conclusive evidence : https://youtu.be/x5sc7G4s4CY

The excellent Dr John Campbell explains the conclusive evidence : https://yout...

Polaris

•1 year ago

28 Replies

Gastritis attacks and PA

I get attacks of gastritis a few times per year and I was wondering if others with PA get gastritis as well. I will have sharp burning pain right below my rib...

I get attacks of gastritis a few times per year and I was wondering if others wi...

Purplegirl2

•1 year ago

14 Replies

More Test Results ...any advice very warmly welcomed..

Hello lovely PA Folks - Well, after some hectic Facebook marketplace efforts, and delay for holidays till next year - my private blood test results are in....

Hello lovely PA Folks - Well, after some hectic Facebook marketplace efforts, ...

Treesong2023

•1 year ago

46 Replies

Musings on the Krebs Cycle

How the Krebs cycle powers life and death – with Nick Lane https://m.youtube.com/watch?v=vBiIDwBOqQA B12 is not discussed specifically in the talk but is a...

How the Krebs cycle powers life and death – with Nick Lane https://m.youtube.co...

Technoid

•1 year ago

11 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All posts(77)

All things Pernicious Anaemia Society(77)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2023

Hydroxycobalamin injections

HELP PLEASE

Can anybody point me in the right direction for buying b12 ampoules, everywhere out of stock!

First Post. Uniquie Symptoms?

Liquid B12 (oral)

B12 Injections

B12 INJECTIONS not on my prescription

Still trying for a diagnosis

Co factor advise 39 year old female.

Apohealth

Where to purchase B12 ampoules from?

Vertigo, heart palpitations after 4th shot of Neurobion.

From PA to CIPD - but a Big Thank You .. .

Vitamin blood test

Out of date vials of B12 how strong are they?

Query re. folic acid dosage and related issues

Panpharma B12

Vitamin B12 in Foods, Food Supplements, and Medicines—A Review of Its Role and Properties with a Focus on Its Stability

Unable to order B12 online anymore.

Iron and B12 deficiency

How long after the expiry date

MMA Test - Worth Doing if on supplements?

b12=999 but low folate

had b12 results and called in to discuss

Burning Mouth Syndrome?

Doctor has taken me off monthly injections; symptoms have not gone away. Any help or advice appreciated.

Vitamin D Plays a Crucial Role in Immune Function and Inflammation

Gastritis attacks and PA

More Test Results ...any advice very warmly welcomed..

Musings on the Krebs Cycle

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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