Gastritis attacks and PA: I get attacks... - Pernicious Anaemi...

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Gastritis attacks and PA

Purplegirl2 profile image
14 Replies

I get attacks of gastritis a few times per year and I was wondering if others with PA get gastritis as well. I will have sharp burning pain right below my rib cage and in my chest, distension, sharp upper back pain, and widespread mid abdominal pain. It will get worse after eating. I wonder if it is connected to my PA. It can last a few days and I’ll have to take pepcid (anti acid medicine). It feels like a hole is burned through my stomach to my back.

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Purplegirl2
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14 Replies
Thrones12 profile image
Thrones12

I can sympathise with you,I have P.A and I’ve had the worst week ever with gut pain,I can’t seem to get it right with anything I’m eating so I’ve been watching channel 4s Know your s..t programme and def learned a few things from it and I like the sound of the low residue diet ,I’m as gluten free and as lactose free as I can get but I still have errors and this type of diet I think will help the gut rest if not heal so I’m trying it now,it’s obvious things to omit like seeded jam and porridge oats and nuts and I must admit I do suffer pain because my digestions def not working properly and doesent fully process what goes in and comes out without being too detailed.

There’s an excellent U.K. charity called Guts U.K. you might like to take a look at they might have a few tips for you but I know it’s not easy it’s a constant battle through pain with even just one slip up. I’ve started on a probiotic,it’s just a 7 day sachet I’m hoping it’ll help settle things down a bit and I’ve found a nice kefir yoghurt Greek style with honey it’s very creamy and pleasant as I’m not a yoghurt fan

If nothing else these things do help to distract me from focussing on the pain I also did an extra b12 shot last night as I find that helps with my stress,I hate pain lol.

I hope you get a better night tonight it will settle eventually but I think like me you want to know more on how to prevent it flaring so have a google at the above recommendations.best of luck

Nackapan profile image
Nackapan in reply to Thrones12

My daughter had terrible problems

She is now diary, gluten and Fructose, caffeine and alcohol free.

She started with fodmap .

It took a long time learning

what she could eat . How much if that food ect .

She eats much better now and introduces foods back.

Alot of effort paid off.

She's very restricted but digests better rarely pain now.

Hope you find a diet that suits you

Thrones12 profile image
Thrones12 in reply to Nackapan

thank you Nackapan I’m pleased she’s managed so well it’s really difficult when we have so much intolerance and allergies to the same foods but different days it drives me nuts,I’d love so much to go to greggs and have a bacon and sausage baguette then an apple danish and even a steak bake lol it hurts me just thinking about them though. I’m having a very weary night tonight and keep hoping when I waken next day the pain will be gone,I really do feel for anyone suffering this.x

Collywobbles43 profile image
Collywobbles43

I certainly do yes. When I have "flare ups" or "attacks" it really knocks me.off .y feet. I've even been hospitalised on a few occasions because of this. I have particularly bad erosions in my stomach requiring I.v medication to bring it under control.

indywindy profile image
indywindy

I can relate to your pain and trouble, especially some years ago. After having introduced HCL betaine capsules at every breakfast and lunch and digestive enzymes (amylase, proteinase, lipase etc) to help breaking down protein, fats and carbs, I have had much less difficulties. Plus I have gone completely off dairy and mammal protein, only eating white and light protein from fish, poultry and beans, plus oats, flaxseed, ryebread and loads of greens That's just my experience after a lot of trial and error, so it could be that your story is quite different.

All the best 💫

wedgewood profile image
wedgewood

I’ll just add my experience . After being told by a gastroenterologist that P.A.patients have low or no stomach acid -Hypochlorhydria/ Achlorhydria ( due to destruction of parietal cells ) I started taking Symprove , a water based probiotic . Also lots of probiotic foods , organic sauerkraut , kimchi , kefir yoghurt. Smaller meals more often , and chewing very thoroughly . Within 3 months my gut problems, stomach pain , bloating .etc had gone .I now have no gut problems . I do not need probiotics anymore . I assume that my stomach flora has normalised and goodb bacteria has established itself.

Polaris profile image
Polaris in reply to wedgewood

My experience too: after switching to kefir every morning, organic sauerkraut with smaller meals and no gluten = no more gut problems 🤗

Carlosdoug profile image
Carlosdoug

hi, just an aside, have you had your gallbladder checked? Symptoms very similar.

Littlelodge123 profile image
Littlelodge123

Yes I have these problems and I have Amtrak gastritis diagnosed by endoscopy. However the gastritis does not cause those symptoms as advised by my gastro. I was tested for SIBO and that was found to be the cause. I had this treated but it dies relapse and may need treating several times. You may want to be tested for this. A low FODMAP Diet will reduce the symptoms but not the underlying issue.

Onlyme75 profile image
Onlyme75

Yes! I have IBS all the time it's Crippling!

I'm under a Gastriologist and he is putting me through many tests.

Also he got a Dietitian to contact me and he has put me on a fodmap diet.

It's fantastic !!

I can eat now without cramps and dashing to the loo 7 times a day.

I also have stopped taking a PPI called lansoprazole. I don't get a Acid reflux now due to the Fodmap, and any PPI are bad for PA if you take tablets, as it reduces the Acid in your stomach. We need that Acid to help Digest vitamins.

Good luck 👍

scnuke profile image
scnuke

I certainly do have atrophic gastritis with hemorrhage. It would cause a dull ache constantly and severe pain and bleeding several times/year. I would end up in the ER for blood transfusions or hematologist's office and have to get iron infusions. In my case I stopped all coffee, alcohol, carbonated beverages, and hot and spicy foods. I also started a very aggressive B12 injection routine of twice per day. After almost year of this, I have returned to normal Hgb, Hct, and iron levels, the pains have almost gone away and I can now tolerate coffee in the mornings and one drink of alcohol per week. I no longer have to have regular doses of GI Cocktail to numb the pain and my debilitating energy crashes have gone from once or twice a week to less than once per month. This routine certainly is not for everyone, but I am continue until I see a reason to stop. I do not want to cut back on injections just to see what will happen.

Showgem profile image
Showgem

I had IBS for years before my PA diagnosis, this could be extremely painful and sometimes quite debilitating, I would also often suffer from gastric reflex especially at night.

I now take either Betaine HCI, kefir, cider apple vinegar with the mother or lemon or lime juice in a little water with every meal. I also eat smaller meals and avoid too many fatty foods.

I now suffer very much less, mostly it’s only really bad if I eat dinner out. Perhaps it’s the effect of eating a little more, forgetting to take a Betaine tablet with me, eating later in the day and sitting for a longer period than I would at home, I don’t really know.

Bambigal83 profile image
Bambigal83

I have chronic atrophic gastritis and get 3 yearly endoscopies to make sure it hasnt turned cancerous. I dont recall having those issues but i did have intolerances which eased once i followed Medical Mediums Celery Juicing. Its not very nice we have to all go through this.

expatkerry profile image
expatkerry

Hi there, I too suffer from gastritis, I manage to avoid the worst attacks by avoiding certain foods which seem to trigger it for me. When I am in the throws of a painful attack I find the best thing for it is camomille, not the teabags but the stuff you get from a herbalist. The bitter tea smooths the stomach muscles and eases the pain ( it goes through to my back too). The problem with antacids is that you get rebound acid so it's not effective in the long term. Good luck with this

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