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Pernicious Anaemia Society

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All posts for August 2022

Self-injecting B12 1000mcg/2ml ampoules

I've sourced a ready supply of Hydroxocobalamin 1000mcg (brand name Hevert), but instead of coming in (what is for me) the usual 1ml ampoules, they come in the...

I've sourced a ready supply of Hydroxocobalamin 1000mcg (brand name Hevert), but...

CyclingDog

•2 years ago

11 Replies

latest rant !!

Well my latest visit to the GP was interesting !!! Diagnosed with PA 2 years ago, recent diagnosis of hyperthyroidism, plus u related cardiomyopathy. Over...

Well my latest visit to the GP was interesting !!! Diagnosed with PA 2 years a...

Jason_h123

•2 years ago

21 Replies

Extremely frustrated and angry

My life 7 years ago I went to my GP to ask for blood tests to be done cos I wasn’t feeling well, I was tired, weight gain (ive always been under 6st) I...

My life 7 years ago I went to my GP to ask for blood tests to be done cos I was...

Queeniz

•2 years ago

4 Replies

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letter just recieved

Thank you for the many replies. I'm trying to work out now the best way to deal with it. The letter had shot itself in the foot' in so many ways. In...

Thank you for the many replies. I'm trying to work out now the best way to de...

Nackapan

•2 years ago

8 Replies

Could B12 deficiency cause astigmatism?

I know that blurred vision is a symptom of B12d/PA but could astigmatism be possible as a result? I have been diagnosed with it and it seemed a curious...

I know that blurred vision is a symptom of B12d/PA but could astigmatism be pos...

Pickle500

•2 years ago

21 Replies

update on postural hypertension

I have had a letter from the Consultant Physician Dept of Medicine for the Elderly(!) When I mentioned my PA he appeared to understand and agree that my...

I have had a letter from the Consultant Physician Dept of Medicine for the Elde...

jaybirdxNHM

•2 years ago

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Paper: elevated b12 bound to immunoglobulins masking B12 deficiency

Latest paper from Wolffenbuttel of "The many faces of cobalamin deficiency" fame. Fascinating! https://casereports.bmj.com/content/15/1/e247660.long (full...

Latest paper from Wolffenbuttel of "The many faces of cobalamin deficiency" fame...

jade_s

•2 years ago

16 Replies

INTRINSIC FACTOR ANTIBODY TEST . Has any member with P.A. had to have more than one IFAB test to get a positive reading ?

Is it a fact that the Intrinsic Factor antibodies come and go continually ? Or do they not appear when the patient has had P.A. untreated for a long period...

Is it a fact that the Intrinsic Factor antibodies come and go continually ? Or...

wedgewood

•2 years ago

104 Replies

How can I handle chronic sleeplessness associated with b12 deficiency

Hi everyone l have been treatingb12 deficiency for about 5 months now with cyanocobalamin injections. Though I have been having insomnia, it is...

Hi everyone l have been treatingb12 deficiency for about 5 months now with c...

Agala

•2 years ago

13 Replies

Help with Self Injecting US

I'm from the US and struggling to get access to my B12 injections. I used to go to my clinic each week to get them but now I'm out of state and am trying to...

I'm from the US and struggling to get access to my B12 injections. I used to go ...

Purplegirl2

•2 years ago

15 Replies

b12 and covid

I found this a little worrying. Has anyone else heard of a relation between high B12 levels and covid morbidity?...

I found this a little worrying. Has anyone else heard of a relation between high...

Lurcher-lady

•2 years ago

17 Replies

Ferritin low - is this enough to flag PA?

Hi all, Quick question - HB and B12 seem ok - but Ferritin is only 15 with a 13-150 u/gl range. Is this the flag I’m looking for as my grandmother had PA...

Hi all, Quick question - HB and B12 seem ok - but Ferritin is only 15 with a ...

Blaaland

•2 years ago

12 Replies

letter just recieved

we are looking at all our patients on B12 Injections; hence it is necessary that we check your current B12 levels and check for for Pernicious Aneamia which...

we are looking at all our patients on B12 Injections; hence it is necessary tha...

Nackapan

•2 years ago

92 Replies

Mild pins and needles..

Hi..I’ve been on strict gluten-free diet since my celiac diagnose in august 2021 I’ve started my strict gouten free diet in December and so have on and off...

Hi..I’ve been on strict gluten-free diet since my celiac diagnose in august 2021...

Saba82

•2 years ago

22 Replies

Insomnia

I am having terrible trouble getting to sleep, sometimes awake most of the night. Could this be down to b12 deficiency? I am shortly to see a neurologist re...

I am having terrible trouble getting to sleep, sometimes awake most of the night...

Trish

•2 years ago

12 Replies

I am not sure if I have pernicious or if I am just B12 deficient due to gas and air but I inject B12 and find it very helpful.

However I have polycycstic overys and although \\I have avoided it in the past think I might need to start taking metformin due to my weight issues which are...

However I have polycycstic overys and although \\I have avoided it in the past t...

Hectorsmum2

•2 years ago

8 Replies

b12 supplements gave me horrible depression

i started taking b12 because im low , I became severely depressed, its been about a week now and its not going away, its really bad, ,I can barley function...

i started taking b12 because im low , I became severely depressed, its been abou...

Alana98

•2 years ago

22 Replies

Interesting article POTS & PA

I Came Upon this article I thought was interesting . This person was found to have POTS which then led to PA diagnosis. They were only low b12 200-400...

I Came Upon this article I thought was interesting . This person was found to ...

EllaNore

•2 years ago

8 Replies

Greetings

Diagnosed with PA at the end of 2021, followed by 6 injections and now 1 injection every 3 months. Considerable relief of symptoms, complicated by heart attack...

Diagnosed with PA at the end of 2021, followed by 6 injections and now 1 injecti...

piperatpda

•2 years ago

3 Replies

Hi. I know I haven’t posted anything in awhile. I do keep up with posts daily.

I’ve been diagnosed with PA in 2012. Well I’ve been on B-12 injections since then. For the past 7-8 months I’ve been in a lot of pain. I have pain throughout...

I’ve been diagnosed with PA in 2012. Well I’ve been on B-12 injections since th...

Mono21

•2 years ago

16 Replies

iron or not?

hii all so I've just had my last b12 jab last week. I could fel I needed it.corners of mu mouth stinging , tiredness,that funny being on a boat sensation...

hii all so I've just had my last b12 jab last week. I could fel I needed it.cor...

Darcey14

•2 years ago

4 Replies

help needed please

hi all I’m sitting in A&E at the moment, I had a angiogram CT scan, they pushed through two lots contrast, which made me feel so ill, I then developed a...

hi all I’m sitting in A&E at the moment, I had a angiogram CT scan, they push...

Steph0077

•2 years ago

28 Replies

Advice regarding my mums bloods please

Can someone please advise on these blood tests please. My mum is 75, was diagnosed many years back with fibromyalgia for which she is on morphine. However...

Can someone please advise on these blood tests please. My mum is 75, was diagno...

Lincsangel1

•2 years ago

23 Replies

Off balance

Does anyone get off balance feeling when walking? Not dizzy or feeling faint. Its difficult to describe. Like an off balance feeling on the left side of my...

Does anyone get off balance feeling when walking? Not dizzy or feeling faint. It...

Adb8

•2 years ago

30 Replies

Stomach issues

Hello everyone, I'm almost 2 years in now with PA diagnosis. I get b12 injection once every 4 weeks. Things have gotten better but I still suffer from...

Hello everyone, I'm almost 2 years in now with PA diagnosis. I get b12 inject...

25092

•2 years ago

14 Replies

sub-cutaneous vs. intra-muscular

I am going to check in again here about sub-cutaneous vs. intramuscular injections. My PCP is insisting I need todo IM injecting (“hydroxy should always be...

I am going to check in again here about sub-cutaneous vs. intramuscular injectio...

EiCa

•2 years ago

19 Replies

Can feeling cold in feet and hands be symptoms of 12 deficiency?

Hi everyone I have been on cyanocobalamin injections for 5 months now. Recently, I noticed that my feet and hands feel very cold among other symptoms....

Hi everyone I have been on cyanocobalamin injections for 5 months now. Rec...

Agala

•2 years ago

5 Replies

william

ihav e improved havein g national health b12every 12weeks since I have paid inbetween to have private injection six weeks inbetween worrying .I'm havein g to...

ihav e improved havein g national health b12every 12weeks since I have paid inb...

Wllliam

•2 years ago

12 Replies

cold toes

I wondered if anyone suffers with cold toes, even in the heatwave I’ve had socks on the toes to keep them warm. Sometimes they look purple. I have PA and B12...

I wondered if anyone suffers with cold toes, even in the heatwave I’ve had sock...

FlorencePocket-Owl

•2 years ago

8 Replies

pain after b12 jab

hi , I had my 3monthly jab at the surgery yesterday. It was in my arm. Since then I have had bad muscle pain all up side ofmy neck and across my shoulder....

hi , I had my 3monthly jab at the surgery yesterday. It was in my arm. Since...

Mrsmr

•2 years ago

2 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2022

Self-injecting B12 1000mcg/2ml ampoules

latest rant !!

Extremely frustrated and angry

﻿letter just recieved

﻿Could B12 deficiency cause astigmatism?

﻿update on postural hypertension

﻿Paper: elevated b12 bound to immunoglobulins masking B12 deficiency

INTRINSIC FACTOR ANTIBODY TEST . Has any member with P.A. had to have more than one IFAB test to get a positive reading ?

﻿How can I handle chronic sleeplessness associated with b12 deficiency

Help with Self Injecting US

b12 and covid

Ferritin low - is this enough to flag PA?

﻿letter just recieved

Mild pins and needles..

Insomnia

I am not sure if I have pernicious or if I am just B12 deficient due to gas and air but I inject B12 and find it very helpful.

﻿b12 supplements gave me horrible depression

﻿Interesting article POTS & PA

Greetings

Hi. I know I haven’t posted anything in awhile. I do keep up with posts daily.

﻿iron or not?

help needed please

﻿Advice regarding my mums bloods please

Off balance

﻿Stomach issues

sub-cutaneous vs. intra-muscular

﻿Can feeling cold in feet and hands be symptoms of 12 deficiency?

﻿william

cold toes

﻿pain after b12 jab

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive

letter just recieved

Could B12 deficiency cause astigmatism?

update on postural hypertension

Paper: elevated b12 bound to immunoglobulins masking B12 deficiency

How can I handle chronic sleeplessness associated with b12 deficiency

letter just recieved

b12 supplements gave me horrible depression

Interesting article POTS & PA

iron or not?

Advice regarding my mums bloods please

Stomach issues

Can feeling cold in feet and hands be symptoms of 12 deficiency?

william

pain after b12 jab