Greetings: Diagnosed with PA at the end... - Pernicious Anaemi...

Pernicious Anaemia Society

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Greetings

piperatpda profile image
3 Replies

Diagnosed with PA at the end of 2021, followed by 6 injections and now 1 injection every 3 months. Considerable relief of symptoms, complicated by heart attack and operation.

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piperatpda profile image
piperatpda
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3 Replies
wedgewood profile image
wedgewood

Would be good to have extra injection whilst your body is under stress . Mental or physical stress necessitates extra injections . If your GP refuses , self injection is easy and cheap . Information is available here if required . Best wishes .

Sleepybunny profile image
Sleepybunny

Hi,

I'm pleased to read that you're getting relief from your symptoms.

Do you have neurological symptoms?

If yes to neuro symptoms, I would expect you to get injections every 2 months.

See BNF link below.

BNF Hydroxocobalamin

bnf.nice.org.uk/drug/hydrox...

PAS membership is separate to membership of this forum.

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

Unhappy with Treatment (UK info)?

Letters to GPs about B12 deficiency

b12deficiency.info/b12-writ...

I am not medically trained.

Sleepybunny profile image
Sleepybunny in reply to Sleepybunny

I left a lot of B12 info in the thread "Insomnia" a few above your thread.

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