Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for June 2022

Can B12 make you a bit snappy?

Since I've been taking the B12 I've seen nothing but massive improvements in my neuro symptoms and energy but it's also making me snappy too. Is this normal or...

Since I've been taking the B12 I've seen nothing but massive improvements in my ...

SKYROCKET123

•2 years ago

18 Replies

B12 sublingual powder

I was just having a poke around Helios Homeopathy website and they sell a sublingual B12 powder - interesting. Not sure why I never thought of looking on...

I was just having a poke around Helios Homeopathy website and they sell a sublin...

rogergee

•2 years ago

8 Replies

Vitamin b12 vitamin b9 anaemia

Hi everyone, i hope you are all doing well. I was diagnosed with pernicious anaemia in 2013 and was having B12 injections every month. A few years ago my GP...

Hi everyone, i hope you are all doing well. I was diagnosed with pernicious anae...

Amelia0710

•2 years ago

22 Replies

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B12 and brain fog?

I don't post very often as it has seemed up until now that my 1mg, self-administered monthly B12 injection seems to have been enough. My recent health has...

I don't post very often as it has seemed up until now that my 1mg, self-administ...

CyclingDog

•2 years ago

12 Replies

advice re needle size

this must be a regular question, bother we go: I bought some ampules of Vit B12 cyanocobalamin. I am now unsure of which needle size to use draw from the...

this must be a regular question, bother we go: I bought some ampules of Vit B12 ...

holyshedballs

•2 years ago

3 Replies

SUPPORT THE PERNICIOUS ANAEMIA SOCIETY AT NO COST TO YOURSELF !

If buying from Amazon , use Amazon smile.U.K. and choose The pernicious Anaemia Society as your charity . Amazon will then donate to the PAS . “ Every little...

If buying from Amazon , use Amazon smile.U.K. and choose The pernicious Anaemia ...

wedgewood

•2 years ago

2 Replies

Do Doctors ever listen?

So did private bloods, had been SI so knew B12 would be high. Last year was B12, 354 197-771, lots of neuro symptoms, Folate 2.7ug/L 3.9-26.8....

So did private bloods, had been SI so knew B12 would be high. Last year was B...

Polo22

•2 years ago

16 Replies

I have my 5th shot today🤞🏻

Hey everyone. I have my 5th shot due today. I dont feel much difference but because I'm not working (just started 4 weeks off sick) I do feel marginally more...

Hey everyone. I have my 5th shot due today. I dont feel much difference but bec...

Peppermints

•2 years ago

15 Replies

Complaints

I am just interested in your point of view ! We are in a position where we could make a complaint... Stressful for both Doctors and the Individual. I have...

I am just interested in your point of view ! We are in a position where we coul...

Hidden

•2 years ago

44 Replies

Lab Work Preparation

This isn’t really regarding B12 but you all seem to be so helpful and more research based than other groups, so I’m hoping you can help me. I am having routine...

This isn’t really regarding B12 but you all seem to be so helpful and more resea...

lambuth_eagle

•2 years ago

9 Replies

Autoimmune gastritis Vs AMAG/PA

https://pernicious-anaemia-society.org/b12deficiencyandperniciousanaemia/ This first article describes one cause of B12 deficiency (other than PA) as gastritis...

https://pernicious-anaemia-society.org/b12deficiencyandperniciousanaemia/ This f...

Clare_1_2_3

•2 years ago

12 Replies

Benign Paroxysmal Positional Vertigo

So after months of being very ill I found out my B12 level was 140. I feel it was probably slowly declining for a very long time. This was 2 years ago. I...

So after months of being very ill I found out my B12 level was 140. I feel it w...

Ctadds1

•2 years ago

12 Replies

An interesting petition to sign

If you’re interested, there is a petition that’s still open for signatures here - 'stop gaslighting chronic illness patients'. It doesn’t mention PA patients...

If you’re interested, there is a petition that’s still open for signatures here ...

rogergee

•2 years ago

4 Replies

PAS meeting Bridgend.

This morning I attended the PAS meeting in Bridgend and I’d like to thank all involved for an interesting talk and helpful discussion over B12 issues moving...

This morning I attended the PAS meeting in Bridgend and I’d like to thank all in...

Menna88

•2 years ago

4 Replies

First visit to Consultant Neurologist

Hi there I have been referred to neurologist for investigation into my symptoms. I was diagnosed with PA 20 years ago and have been receiving 12 weekly...

Hi there I have been referred to neurologist for investigation into my symptoms....

Tuppence22

•2 years ago

4 Replies

Can you take too many sublinguals?

So I know that you can't take too much b12 but I keep wimping out of self injecting and need to get myself through the few weeks before my next injection so...

So I know that you can't take too much b12 but I keep wimping out of self inject...

Clare184

•2 years ago

18 Replies

Absorption issues

If my stomach can't absorb B12 does that mean it's not absorbing the oral supplements that I take daily such as multivitamins? Thanks for any and all input.

If my stomach can't absorb B12 does that mean it's not absorbing the oral supple...

Nana321

•2 years ago

5 Replies

accord v GEROT LANNACH

Happy Jubilee Celebrations Everyone! I just wanted to ask if anyone else has had problems with the GEROT LANNACH ampoules? I have no problem opening the...

Happy Jubilee Celebrations Everyone! I just wanted to ask if anyone else has had...

HKAnne

•2 years ago

4 Replies

Dry Mouth.

For those of you suffering are you doing anything that’s helping you produce more saliva? Not temporary like Biotene products and xylitol. I’m desperate. I...

For those of you suffering are you doing anything that’s helping you produce mo...

Haveitall

•2 years ago

40 Replies

Fighting back

I have now decided it's time for me to write our story and try to get it published. I will not be silenced or bullied anymore. Everyday you read of millions...

I have now decided it's time for me to write our story and try to get it publish...

Hidden

•2 years ago

19 Replies

Phew - a diagnosis! Plus a weird change.

Recent nerve conduction studies concluded that I have no nerve damage, which is good. So, my diagnosis? I have the placebo effect. Woohoo, lucky me! It’s...

Recent nerve conduction studies concluded that I have no nerve damage, which is ...

rogergee

•2 years ago

63 Replies

source for B12 ampules

I am having trouble sourcing the above. Tried Veranapo - get so far and then full stop, contacted them, followed advice and still no joy. Tried another, my...

I am having trouble sourcing the above. Tried Veranapo - get so far and then ful...

islandlass

•2 years ago

22 Replies

So I posted on here for the first time the other day....

You were all so helpful and I've had a lot reading to do. This has opened up so many avenues that I'm now a little confused and have some questions or actually...

You were all so helpful and I've had a lot reading to do. This has opened up so ...

Peppermints

•2 years ago

14 Replies

Newly diagnosed possible Autoimmune gastritis and B12 deficiency

I've recently started B12 injections under the care of a private doctor. He gave my first injection and I'm doing self injections at home (1mg...

I've recently started B12 injections under the care of a private doctor. He gave...

Clare_1_2_3

•2 years ago

14 Replies

Blood test advice

Morning, I've been having B12 injections every 10 weeks since August but my tingling feet symptom hasn't ever improved. Its got worse over the last few months...

Morning, I've been having B12 injections every 10 weeks since August but my ting...

AngelaWoo

•2 years ago

20 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2022

Can B12 make you a bit snappy?

B12 sublingual powder

Vitamin b12 vitamin b9 anaemia

B12 and brain fog?

advice re needle size

SUPPORT THE PERNICIOUS ANAEMIA SOCIETY AT NO COST TO YOURSELF !

Do Doctors ever listen?

I have my 5th shot today🤞🏻

Complaints

Lab Work Preparation

Autoimmune gastritis Vs AMAG/PA

Benign Paroxysmal Positional Vertigo

An interesting petition to sign

PAS meeting Bridgend.

First visit to Consultant Neurologist

Can you take too many sublinguals?

Absorption issues

accord v GEROT LANNACH

Dry Mouth.

Fighting back

Phew - a diagnosis! Plus a weird change.

source for B12 ampules

So I posted on here for the first time the other day....

Newly diagnosed possible Autoimmune gastritis and B12 deficiency

Blood test advice

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive