Benign Paroxysmal Positional Vertigo

[Ctadds1]

So after months of being very ill I found out my B12 level was 140. I feel it was probably slowly declining for a very long time. This was 2 years ago. I self inject about every 9 days. I am so much better than I was but not 100 percent. I believe I may be suffering from Benign Paroxysmal Positional Vertigo. My lingering symptoms seem to fit this condition. I believe the low B12 for a long time is what set this off in the first place. Just wondering if anyone has any insight or experience with this.

Thank you

[Sleepybunny]

Hi,

When I searched online for "B12 deficiency benign paroxysmal positional vertigo" I found a few articles.

I also searched for "B12 deficiency vertigo" .

For anyone reading this thread from UK, there is a UK charity that supports people with vestibular problems.

menieres.org.uk

menieres.org.uk/

Not sure about similar organisations in US.

[Nackapan]

Yes . My finale too was a collapse and snd a diagnosis of benign paroxysmal.........vertigo Also had symptoms of fatigue, falling over ,visual problems, constipation, muddled thinking,headaches hit on thd heD after fsll before findl one, paranoia ect all posy menopause .

My first ever b12 done after vertigo snd inability to walk. 106

I'm left with a debilitating vestibular disturbance .

I also inject b12 weekly .

Collapse 3.75 yrs ago.

Still making progress.

Nowhere near my 'norm' yet.

Aims are to

Read a book

Have alight on in the housd

Ride my bike

Travel more without illness painkillers.

Drive more

Go town shopping

Vestibular physiotherapy may help you.

I'm on my second 'round'

3 years apart

Hope yoh continue to make improvements

[Pickle500]

No experience with this, apart from general dizziness from time to time as part of recovery.

The condition you reference seems to relate to a problem with the inner ear. And if it is a consequence of b12d, I feel it's very unlikely any Dr would make the link. In my experience, mentioning b12 makes most doctors angry, defensive and uncomfortable.

So, if it is the condition is what you think it is, you could make a separate appointment for them to investigate the dizziness and if they investigate your ear and check for vertigo then you'll know if its what you think it is.

Otherwise keep injecting and getting your vitamins in.

All the best

[Cookiedough2022]

If you think it is BPPV you need to get the Epley manoeuvre done, it’s a series of changes in head positions performed at speed to try to reposition the otoliths which can become displaced in the semi circular canals. I have done some training in this. You can see a practitioner- check they have some experience in this or try going on you tube and performing it yourself! You can feel dizzy going through the stages but will feel better after if that is the cause of your dizziness.

[jade_s]

I had BPPV once, pre b12, and it was terrible - my head was constantly spinning, nystagmus, nauseous... i couldn't move my head in certain positions else it would all start up. I couldn't walk at all let alone work. Thought I was having a stroke. This was nothing at all like the dizziness and vertigo I had with B12D. After the epley maneuver and doing it at home it took a week to get better, they say the loose crystal has to be absorbed.

I'm not medically trained but I would say that if it didn't come on suddenly, isn't positional, and isn't 10x worse than typical symptoms, it may just be residual b12 deficiency symptoms for which you need continued alternate day injections.

[Nackapan in reply to jade_s]

I can totally relate to that

[jade_s in reply to Nackapan]

Did you also have loose crystals, or only all the symptoms?

I'm sorry I hadn't realized you still have vestibular disturbances - my heart goes out to you!

[Nackapan in reply to jade_s]

I'm really not sure. Had 3 epley manoeuvres in total and did settle it .

My fuall may have disturbed thd crystals??

The falls caused by undiagnosed low b12

So much was going on at the time with symptoms.

Having vestibular pysio agsin .

Had if 3 yests ago paying .

Had to stop as triggered migraines.

This time NHh referral. Amazingly by chance seeing thd same woman as outsourced.

So useful she's notes on me .

A sort of brain retraining

[jade_s in reply to Nackapan]

Interesting. Like jkiron said maybe the fall dislodged the crystals.

I hope you don't get the migraines again. Small world Good luck with it Nackapan!

My first bppv was 3 years before b12d but i woke up with it, no falls that i remember. A few times after starting b12 i woke up a few times with a very mild version... i lay very still in bed for a few hours and seemed to have fixed it. Not happened again the last few years. I sometime sleep with ear plugs, maybe from that?

[jkiron]

I have BPPV and PA -- but they're not related. You should see a neurologist to have the vertigo formally diagnosed. They can do several different maneuvers to clear the crystal(s) in your inner ear. But you also must see a vestibular physiotherapist if you do have BPPV, as they can give you numerous exercises to retrain your brain and end the dizziness and balance issues after several months. I've had several vertigo attacks -- the first was the worst that brought me into the ER, subsequent ones have been less severe but best checked out by the neurologist to rule out stroke. Good luck!

[Nackapan in reply to jkiron]

For me

They were related

I'd never had vertigo before

I also thought I'd had a stroke as last collapse ( back in 2018) I was stuck...like a force to the ground and simply couldnt get up.

Neurological .

I think Bppv was the outcome or wrong term for my body hitting an all time low of b12

[jkiron in reply to Nackapan]

A fall or whiplash can bring on BPPV as the crystals can become dislodged, so if you fell from weakness due to PA then the fall could have then caused the BPPV at the same time. Hope you don't have it again!