Development of Epilepsy while PA?

[RoseFlowerDew]

Hi,

I’ve had PA with neurological symptoms for nearly 9 years now and am just about to be referred to neurology at last for some of the symptoms. I have recently started having small fitting of sorts (both day and night) and I am wondering if it’s my brain trying to heal from demyelination or if should I pushed to be investigated outside of PA.

Has anyone here developed epilepsy after being diagnosed with pernicious anaemia?

[Nackapan]

Definitely get more investigations done.I had 'strange ' episodes.

Went on to have a brain ct scan snd brain mri scan.

They should speed up your neurologist referral.

If in any doubt go to a snd e to get checked out.

You are right it could be your nervous system 'rebooting'

It's vrsgvyo rule other things out too

[Narwhal10]

Hi RoseFlowerDew,

I’m sorry to hear. Like Nackapan said please go to Emergency Department if necessary. You could ring out of hours or 111. Definitely push for more investigations done as soon as. I’m sorry I don’t know about epilepsy and vitamin B12/PA

I had dreadful hypnic jerks - so the shudders you may experience once or twice before going to sleep. I’d count right that’s 56 tonight. That’s 62.

I noticed that you have ‘sticky blood’ medically known as AntiPhosholipid Syndrome - APS (which is autoimmune) which is also called Hughes syndrome. Am I correct ?

Best wishes

[Seth12345]

What other symptoms do you have? Get checked for Lyme and other infections

[Nackapan in reply to Seth12345]

I still have had nothing else found .Some tests were refused. Hope youvare doing well.

[Hidden]

I know someone who had epilepsy then diagnosed with b12 deficiency, have seen him walking about. Seems fine.

Have you had a folic acid test recently ?

Folic acid/epilepsy

Hope you find a solution/help soon.

[RoseFlowerDew]

Hi everyone, Thank you everyone for your help …..Yes I have APS but refused treatment. I’ve started taking folate recently but it hasn’t changed the frequency of episodes. I thought I should have been investigated properly by now or be seen by someone other than a physiotherapist for triage. I’ve started grimacing during the episodes so it’s alarming. I don’t have the courage for A&E though…..last time they left me literally on the floor when I couldn’t walk from PA symptoms. I haven’t a clue how to push my GPs.