Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for June 2017

GP visit following B12 retest

You may recall I had a low B12 of 129 (range 180-914). I stopped taking reflux meds but after 6 weeks the B12 had only risen to 143 which is clearly deficient....

You may recall I had a low B12 of 129 (range 180-914). I stopped taking reflux m...

Megluka

•7 years ago

7 Replies

self injecting

Hi Everybody, well i've finally decided enough is enough and been online this morning and ordered everything I need to S I (apart from a sharps box which I...

Hi Everybody, well i've finally decided enough is enough and been online this m...

pitney

•7 years ago

10 Replies

Should I keep investigating B12 deficiency or just give up

Hi Everyone, I'm looking for advice and help on whether I should keep investigating B12 deficiency or just give up on it. I had a GP appointment yesterday and...

Hi Everyone, I'm looking for advice and help on whether I should keep investigat...

Cn13

•7 years ago

10 Replies

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Quick question please

after posting my results here,one of you lovelies suggested I need an intrinsive factor test I started supplements the day after my blood was taken should I...

after posting my results here,one of you lovelies suggested I need an intrinsive...

donnabrain

•7 years ago

2 Replies

Official changes in B12 reference levels?

My son had his B12 tested on 27th March and the reference range was given as 190 to 660 ng/L. Had it tested again on 1st June by the same lab and the reference...

My son had his B12 tested on 27th March and the reference range was given as 190...

Cankita

•7 years ago

8 Replies

Ms diagnosis

Has any body reading this post been wrongly diagnosed with MS? I have read that b12 deficiency can cause lesions like in MS and look very similar on an MRI...

Has any body reading this post been wrongly diagnosed with MS? I have read that ...

toph

•7 years ago

6 Replies

I'm a B12 Crack-Wh*re - says my doctor.

WARNING – ANGRY, SARCASTIC VENTING FOLLOWS! Hello fellow B12 crack-wh*res. I went to my doctor today, armed with the names of two simple tests: MMA &...

WARNING – ANGRY, SARCASTIC VENTING FOLLOWS! Hello fellow B12 crack-wh*res. I w...

Chancery

•7 years ago

40 Replies

Folate Deficiency - 2 Months into treatment....Improvement limited

Hello everybody, this is my 1st post on this forum. I thought it would do me some good to join this community and gain from shared experiences than endless...

Hello everybody, this is my 1st post on this forum. I thought it would do me som...

Aaron804

•7 years ago

4 Replies

Need help

Anyone having trouble with there Thyroid and feeling so tired and week no energy sick feeling ,doc said it was a low thyroid anyoNE no what should do raise it...

Anyone having trouble with there Thyroid and feeling so tired and week no energy...

sherry1

•7 years ago

2 Replies

B12 info please

Hi all! i have just head my active B12 bloods done thru Medichecks as GP really unhelpful and refused to test!!! results are 38 pmol/L and says this is normal...

Hi all! i have just head my active B12 bloods done thru Medichecks as GP really...

jackyA

•7 years ago

1 Reply

Got my blood results back

Got my blood results back today from the 3 months after the 6 loading doses, B12 has gone up to 689 from 117 but my iron is low so been given iron tablets, I...

Got my blood results back today from the 3 months after the 6 loading doses, B12...

mand82

•7 years ago

4 Replies

Low vb 12 levels.

I have just been diagnosed with low thyroid and low vb12 after reading all the symptoms I realised I had them all I have just started with vb12 injections last...

I have just been diagnosed with low thyroid and low vb12 after reading all the s...

Winney

•7 years ago

8 Replies

GP

Hi. Long story short, I had a bowel resection 20 years ago. I was given no advice or guidance from hospital or GP on how to cope with possible consequences....

Hi. Long story short, I had a bowel resection 20 years ago. I was given no advic...

stumpnme1

•7 years ago

4 Replies

New member - what should I expect from injections

Following a long bout of flu, sinus infection, tooth extraction and post viral fatigue at Christmas I have continued to feel run down. I then noticed several...

Following a long bout of flu, sinus infection, tooth extraction and post viral f...

Auntieglitterball

•7 years ago

5 Replies

Vitamin B12-I am new here :)

I have been told that I have a folate deficiency but that my B12 levels are "within the normal range" , I have read that the blood tests for B12 are inaccurate...

I have been told that I have a folate deficiency but that my B12 levels are "wit...

syl123

•7 years ago

3 Replies

Gp is useless

Had blood test last week so went in today to find out if my results were back etc and the receptionist said they was back and marked as "no further action...

Had blood test last week so went in today to find out if my results were back et...

mand82

•7 years ago

18 Replies

Gamma globulins

Hi have been told I have increased physiological gamma globulins, I have a low B12 but the doctor will only give tablets even though they have all my symptoms...

Hi have been told I have increased physiological gamma globulins, I have a low B...

Cakes7

•7 years ago

1 Reply

How did she do it?

News item from PAS website about member who did a long distance walk to raise money. https://pernicious-anaemia-society.org/fundraising/well-done-rhona/ For...

News item from PAS website about member who did a long distance walk to raise mo...

Sleepybunny

•7 years ago

6 Replies

Urgent advice needed - update from my appointment with endo

Hello all, I had a great a great app with endo. He will write to my GP to prescribe iron and b12 supplements, based on recent tests. He had prepared a plan...

Hello all, I had a great a great app with endo. He will write to my GP to pres...

Jellyfish_1

•7 years ago

7 Replies

Blood test

hi I just collected my blood test results from gp they told me on phone they were" normal" so I requested a copy they seemed surprised that i wanted them,but...

hi I just collected my blood test results from gp they told me on phone they wer...

donnabrain

•7 years ago

9 Replies

Hello I am new to this Forum

I have just received my blood results from medichecks. I am on your associated Thyroid forum and had posted the results on the site and been directed to you...

I have just received my blood results from medichecks. I am on your associated T...

Cleobear

•7 years ago

4 Replies

Pregabalin and B12....

Hi – I’m not really sure how to ask about this but I have been on Lyrica (Pregabalin) 100mg - 300mg since 2010 – prescribed after years of testing and trials...

Hi – I’m not really sure how to ask about this but I have been on Lyrica (Pregab...

Monimoni04

•7 years ago

13 Replies

Shin pain : is this B12 related?

Since last week, I've been having a lot of deep pain in both shins, but because it's deep, I can't honestly tell if it's muscle, bone or veins. Hot and...

Since last week, I've been having a lot of deep pain in both shins, but because ...

Cherylclaire

Forum Support•7 years ago

18 Replies

I can't get my gp practise to take my blood test results seriously or is there nothing to worry about

Advice please, I can't seem to get my gp to take me seriously. I am 61, I have some neurological symptoms and numbness in lower right leg diagnosed food...

Advice please, I can't seem to get my gp to take me seriously. I am 61, I ha...

1776monkey

•7 years ago

4 Replies

Does the NHS measure holotranscobalamin?

Hi, I've been looking into tests for Functional B12 Deficiency. I know the NHS will measure MMA, and maybe Homocysteine if you beg, but does anyone know if the...

Hi, I've been looking into tests for Functional B12 Deficiency. I know the NHS w...

Chancery

•7 years ago

20 Replies

Where can I get the most modern Intrinsic Factor test so I don't have to stop self-injecting?

Hi all, I thought my b12 deficiency was dietary as I've been vegetarian 22 years but I started self injecting with 1mg hydroxycobalamin alternate day loading...

Hi all, I thought my b12 deficiency was dietary as I've been vegetarian 22 years...

supersezzie

•7 years ago

1 Reply

Low folate high b12 after injections

Hi my b12 level was 155 so doctor give me injections, after that i felt really good for about a month, then feeling lik dizzy but no vertigo, i asked for b12...

Hi my b12 level was 155 so doctor give me injections, after that i felt really g...

Themost1ted

•7 years ago

8 Replies

How and where can I get B12 injections in the UK?

I know that I am B12 deficient but the NHS will not do the correct testing and I believe they have misdiagnosed me with multiple sclerosis and as such I've...

I know that I am B12 deficient but the NHS will not do the correct testing and I...

toph

•7 years ago

10 Replies

Blood Test Results

Hello I have had blood tests done and as far as I can see I seem to be ok - no B12 level ....... But I need a repeat of CRP in 6 weeks <5.00mg/l ? Related...

Hello I have had blood tests done and as far as I can see I seem to be ok - no...

Debbiscott16

•7 years ago

5 Replies

Taking biotin before testing can give false high b12 and thyroid results apparently.

https://endo.confex.com/endo/2016endo/webprogram/Paper24687.html

Steap

•7 years ago

3 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2017

GP visit following B12 retest

self injecting

Should I keep investigating B12 deficiency or just give up

Quick question please

Official changes in B12 reference levels?

Ms diagnosis

I'm a B12 Crack-Wh*re - says my doctor.

Folate Deficiency - 2 Months into treatment....Improvement limited

Need help

B12 info please

Got my blood results back

Low vb 12 levels.

GP

New member - what should I expect from injections

Vitamin B12-I am new here :)

Gp is useless

Gamma globulins

How did she do it?

Urgent advice needed - update from my appointment with endo

Blood test

Hello I am new to this Forum

Pregabalin and B12....

Shin pain : is this B12 related?

I can't get my gp practise to take my blood test results seriously or is there nothing to worry about

Does the NHS measure holotranscobalamin?

Where can I get the most modern Intrinsic Factor test so I don't have to stop self-injecting?

Low folate high b12 after injections

How and where can I get B12 injections in the UK?

Blood Test Results

Taking biotin before testing can give false high b12 and thyroid results apparently.

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