Tiredness

[bevvick1964]

After having two nasty falls on face, I'm so very tired to the point of exhaustion . I went to A&E and I have post concussion syndrome

Anyone heard of this ?

[wobblybee]

Hi bevvick1964😊

That looks nasty, I hope you feel better soon😊

Log onto nhs.uk and put 'post concussion syndrome' in the search box.

It gives an explanation of symptoms etc.

Many of the symptoms actually struck me as being similar to those I experience

with Ataxia🤔

The good news is, unlike Ataxia, most cases resolve within 3-6 months😊xB

[bevvick1964 in reply to wobblybee]

Hi B. I'm kinda hoping it isn't the Ataxia getting worse. I'm just so tired and everything is an effort and I ache all over. I'm sleeping for hours and then feel tired for the rest of the day. Hope you're ok xx

[wobblybee in reply to bevvick1964]

After a stressful experience my ataxia also seemed harder to deal with😏 Last summer I had a fall and knocked myself out on the kitchen floor. It shook me up but I'm still here to tell the tale😊

Last week I fell again in the kitchen but the units broke my fall. I'd bent down and stood up too quickly, without holding onto anything,

why🤔

It's not easy keeping yourself safe, a few seconds lack of concentration is all it takes. Constant intense concentration is exhausting, we need to remember to have regular rest breaks, even if we're not actually 'working 9 -5'.

Some people still work and have to cope with ataxia at the same time.

I did this myself, until I finally arrived at the conclusion that something had to give.

Be kind to yourself, try and relax as much as you can. 😊xB

[bevvick1964 in reply to wobblybee]

I feel guilty not doing anything just relaxing 😟

I don't know what to do for the best. Charlie tries to let me do as much as I can one minute and the next he's wrapping me in cotton wool !!

Then I feel guilty just relaxing plus I've put on about 3 stones cos I've got no motivation for exercise or dieting then I feel low and I don't want to end up so depressed again.

I'm so angry B and still can't accept this bloody Ataxia. There's so much I wanted to do.😩😩😩

Sorry, self pity rant xx

[wobblybee in reply to bevvick1964]

Everybody needs a rant😊 Myself included.

I often feel 'guilty' for 'not pulling my weight', my husband also carries a big load, he still works full time although well past retirement😏

I know what you mean about being wrapped in cotton wool. It's a fine line to walk, trying to be independant as much as possible but erring on the right side of safety. It's a natural instinct to 'do' if you can.

Adjusting, and accepting change is never easy. I went through torment myself. At some point I came to realise that no matter how much I fought against the 'new me', things wouldn't go back to the way they were. I focused on doing my best with a bad situation😏 I'm stubborn, it helped😏

Years ago I went to a slimming class. I couldn't see it at the time but I ended up looking almost anorexic. My weight has yo-yo'd too, 3st sounds very familiar😊 I've got a variety of sizes in clothes, some I've had since the slimming class days😏 Vintage now.

This should make you smile. I found a pair of jeans I hadn't worn for ages. I squeezed into them today. Leaning back to force the zip up, I almost overbalanced into the toilet😁

There are things that frustrate me, forgetting I have a pan boiling etc😁 My concentration has suffered badly. Housework gets done 'as and when'. But, on the whole I've become more tolerant and easygoing, so it seems 😏

You can still achieve things, let your imagination run wild, see where it takes you😊 Take a leap😏xB

[bevvick1964 in reply to wobblybee]

Thanks B

I'm trying very hard to accept it and see the "new me" but it's a big struggle. Charlie is the househusband and has been for 16 years so it's 24/7 which can be stressful 😡😡😡

Still, he loves and cares deeply for me and I know he struggles with seeing me ill like this so I understand how he feels.

I'm thinking of going to New Orleans and Graceland in November with a friend it's just confidence

A coach tour so no driving but I'll have to take my wheelchair which I don't like but a necessity

Not sure

Xxx

[eileen200271 in reply to bevvick1964]

Go for it!!!! The USA and Canada are SO much better at catering for the less abled body. Having said that, they have a lot more space to work with than UK!😀😀😀

The buildings are bigger, pavements wider. We went in the summer. Did Toronto, Vancouver and Seattle. Tiring, but we now have memories. Took 2 week to get over it, but wonderful experience.

Do research on the places you are visiting and email them to ask questions, facilities and amenities etc. We finished up with three private tours - 2 breweries (husband loves real ale - doesn't go well with ataxia, but hey ho!!!) and a fully escorted, private tour of the Boeing plant in Seattle. Everyone is so kind and helpful. Everyone we met offered to help, in any way. At the minute we are on the Costa del Sol for 5 weeks. Research, again. Found a wonderful apartment. Loads of space, kids been to visit. 3 bed, 2 walk in showers, reasonable price. Missed the floods and snow. And more memories. 😎😎🌞🌈😎🌞🌈

Sending best wishes 💙💜💙👍👍

[wobblybee in reply to eileen200271]

What an adventure😊 and now a fantastic holiday😊 It's a fact, from what I've seen there's a totally different attitude towards helping people in the US. Wheelchairs are commonplace. An accompanied tour sounds great, go for it😊xB

[neta in reply to bevvick1964]

Dear "Bevick1964"

I must have missed this but I feel alot like you--- sad and worried. I dont know if this helps but taking a break and siting and feeling normal is helpful. It's a way to regain your original sense of self. GoodLuck N

[nigelrheath]

Hi Bevvick & Beryl

I feel like an eavesdropper on your conversation!

Beryl, you are a real stalwart on this site and always have something useful and positive to offer, plus your obvious kindness.

Bevvick, any knock that rattles the brain inside the skull will take a bit of time to heal. Because it affects the brain it's going to seem very much like ataxia. Use your imagination to tell your healing system to repair things in a new order, bypassing those brain cells which are misfiring in the cerebellum and causing messages about balance etc to get mixed up.

I remember as a child being told a knock on the head might knock some sense into me! Perhaps I should do that now!

Beryl, enjoy your hols. I write this from the Caribbean coast of Mexico, where we are in our 2nd week of avoiding chilly England!

Nigel.

[Hidden]

Don't often write on here but just have to say that reading all the positive things on here makes me feel better and has put a smile on my face. Enjoy the Caribbean Nigel .

Chris