Hi i am 41 and have just been diagnosed with episodic ataxia type 1

[anihol]

Anyone give any advice. Have been told it's quite rare

[wobblybee]

Hi anihol😊

Log onto ataxia.org.uk for information. You can contact them and request an information pack, it includes notes for a GP. It also includes the well known Ataxia card 'I am not drunk - I have ataxia'.

😊xB

[HarryB Administrator]

Hi anihol

Beryl's (wobblybee) advice above is spot on. Do phone the helpline at Ataxia UK and become a Friend, which is free and has a number of benefits.

Best wishes

Harriet

[anihol]

Thanks guys. will do that.

[David2015 in reply to anihol]

Have some type myself. Rather almost be dead. Makes me totally dependent. How did you get a diagnosis. Have you heard of the dancing program by the Dr. That had ataxia to recharge the memory of that area of brain to get your balance back?

[David2015 in reply to David2015]

I sent a comment back!!

[David2015]

I cannot walk. Have some type? Horrible! Almost ratherbe dead! Did anyone get my text! Heal love! Did anyone get my text about the dancing program?