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PMRGCAuk

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Study offers clues as to how exhaustion could arise in people with ME/CFS—and potentially other conditions (like PMR/GCA?)

Interesting paper....

LIVEORDIEHEREIAM

•8 months ago

10 Replies

Never mind the adrenals, what about vitamin D?

Following my last post about trying to coax the adrenals out of their deep slumber and trying to stop Celcoxib, I saw the endocrinologist last week. Good and...

Following my last post about trying to coax the adrenals out of their deep slumb...

Cyclo5

•1 year ago

11 Replies

Adrenal fatigue - very low Cortisol

Hello fellow companions on the PMR/GCA journey. If anyone has had experience with very very low Cortisol levels I would appreciate hearing from you. I will be...

Hello fellow companions on the PMR/GCA journey. If anyone has had experience wi...

Surrie

•2 years ago

18 Replies

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Need Advice please

I was instructed to reduce pred by my GP some time ago, dispite the fact that I've had 2 flares of the illness in the past due to reducing below 5mg. I've...

I was instructed to reduce pred by my GP some time ago, dispite the fact that I'...

pats555

•2 years ago

10 Replies

How to get from 1mg to 0 pred

I was diagnosed with PMR in Oct 20 on 15mg and in April 21 told it was highly unlikely I ever had PMR and just needed to now getting off steroids . At that...

I was diagnosed with PMR in Oct 20 on 15mg and in April 21 told it was highly un...

Sydney0503

•2 years ago

10 Replies

PMR and COVID

Sorry if I've missed recent posts but got Covid last Sunday. Still testing positive. early symptoms gone but today, Day 7, absolutely exhausted. been on Pred...

Sorry if I've missed recent posts but got Covid last Sunday. Still testing posi...

Gostick

•2 years ago

17 Replies

struggling with fatigue

Hi, Having been diagnosed with PMR in early summer 2020, and reducing smoothly from 30mg of pred, to 12mg I'm really struggling to reduce any lower, and would...

Hi, Having been diagnosed with PMR in early summer 2020, and reducing smoothly f...

Ann1A

•2 years ago

15 Replies

Pred dose doesn't seem to have worked. What would you do?

I'm 88 and am into my 4th year with PMR. Started at 20mg Prednisalone and many times have gradually reduced dose, even getting down to 4mg, but always had to...

I'm 88 and am into my 4th year with PMR. Started at 20mg Prednisalone and many t...

Purple-Owl

•2 years ago

21 Replies

SYMPTOMS MUCH WORSE AFTER JUST 1MG DROP

SYMPTOMS WORSE PMR since Spring ( diagnosed 2 weeks after Covid jabs!) Started on 15mg Prednisolone, recently dropped to 8mg. But, since then have joint pain...

SYMPTOMS WORSE PMR since Spring ( diagnosed 2 weeks after Covid jabs!) Started o...

asoth

•2 years ago

10 Replies

Pain control and depression

I have had PMR for 10 years. I am on 5 mg of Prednisone. I haven't ever gone into complete remission. My symptoms now are classic- hip and shoulder pain...

I have had PMR for 10 years. I am on 5 mg of Prednisone. I haven't ever gone i...

Judyroo

•3 years ago

12 Replies

Quality of life.

I have just seen my GP and she agrees that at my age QOL is the key so tomorrow I'm going up from 6.5 mg to 12mg and I'll let you know how I get on. My GP...

I have just seen my GP and she agrees that at my age QOL is the key so tomorrow ...

jayemmemm

•3 years ago

5 Replies

Confused newbie...

August 2019, I suddenly with diffuse body pain (the most excruciating located at the base of my thumbs). I was transported to the ER. 3 times in 6 days, was...

August 2019, I suddenly with diffuse body pain (the most excruciating located at...

CO_mtnLady

•3 years ago

4 Replies

TIA

I suffer with GCA I've never got lower than 20mg of pred I've just come out of hospital after having a TIA I'm 71yrs old such a shock , I'm nervous all the...

I suffer with GCA I've never got lower than 20mg of pred I've just come out of h...

Touting

•3 years ago

15 Replies

Im still confused!!

Happy New Year! Even if its a PMR year. Seems I reduced pred a bit too speedily for me, so having read lots of great supportive info on here (thank you!!) I...

Happy New Year! Even if its a PMR year. Seems I reduced pred a bit too speedily ...

Fergyfish

•4 years ago

18 Replies

Aunty Bees PMR, GCA and Chronic Pain Sufferers Advent Calendar . Dec 7. The Christmas Spoon , and how it is the perfect gift for us All.

So , a week into Advent and I hope that the tips in ' Our' Calendar are helping you cope with whichever Winter Festival you are preparing for. I must admit , I...

So , a week into Advent and I hope that the tips in ' Our' Calendar are helping ...

Blearyeyed

•4 years ago

32 Replies

Auntie Bee is falling apart! Not just POTTY but a case of the SANRTs!! Anyone else with this tachycardia , or just me and the Bin of Doom!

Hello Folks , just thought I'd send you an update from a very wet and windy North Wales. I finally received a letter from the Cardiology Department this...

Hello Folks , just thought I'd send you an update from a very wet and windy Nort...

Blearyeyed

•4 years ago

82 Replies

No Wonder I’m Lacklustre

Wow!...

Hidden

•4 years ago

32 Replies

Weakness 3 years post PMR diagnosis. Adrenal problems?

Can anyone please help me. I am a fit 61 years old. 3 years ago I was diagnosed with PMR and started on 20mg prednisoline. I have been trying to slowly...

Can anyone please help me. I am a fit 61 years old. 3 years ago I was diagnosed...

StaffsJM

•4 years ago

13 Replies

Is my mind playing tricks on me???

I'm sure this has been addressed, but thought I would just go ahead and ask since I'm on anyway. I was diagnosed with GCA last November. I started on 60 mg...

I'm sure this has been addressed, but thought I would just go ahead and ask sinc...

luv2read

•5 years ago

19 Replies

So tired!

Thanks to all you wonderful people for keeping me going for these past three years of PMR! Early this year, I started feeling that maybe PMR was loosening its...

Thanks to all you wonderful people for keeping me going for these past three yea...

judyb100

•5 years ago

39 Replies

I’m New Here

I was diagnosed with PMR about 18 months ago and am now down to a low dose of 3.5 mg Prednisolone. I did try to come down too fast a few months ago and...

I was diagnosed with PMR about 18 months ago and am now down to a low dose of 3....

Jamie751

•5 years ago

32 Replies

Feeling disconnected from the Universe because of your GCA/ PMR and Chronic Pain ? Need a pick me up? Try looking up at the sky tonight!

I think that there is a beauty and poetry in the fact that the partial eclipse of the Moon tonight is on the 50 the Anniversary of the Launch of "Mans'" first...

I think that there is a beauty and poetry in the fact that the partial eclipse o...

Blearyeyed

•5 years ago

128 Replies

Returning polymyalgia

After taking prednisone for two years I stopped last Christmas after doing the very slow method - all has been well except a couple of weeks ago it started to...

After taking prednisone for two years I stopped last Christmas after doing the v...

23Jackie

•5 years ago

6 Replies

Does increasing pred dose reduce fatigue (exhaustion) for some people?

I'm increasing my dose of pred for a week from 7.5mg to 8mg as an experiment just to see if it will provide any relief from the horrible exhaustion I've been...

I'm increasing my dose of pred for a week from 7.5mg to 8mg as an experiment jus...

Ozark

•5 years ago

14 Replies

Need a Bit Of Help

I'm new and feel blessed to find a chat room for PMR and GCA! When I had breast cancer 18 years ago, I was wonderful to partake in a chat room. It was...

I'm new and feel blessed to find a chat room for PMR and GCA! When I had breast...

Cutesparrow

•6 years ago

6 Replies

Is there any help out there?? It feels like I'm suffering in silence!

I have been suffering for over 7 -8 years with weak bones in my knee and acid problems and bowel problems. It took Drs a while to diagnose me, they started me...

I have been suffering for over 7 -8 years with weak bones in my knee and acid pr...

PurpleG

•6 years ago

11 Replies

Interstitial lung disease

Hello After weaning prednisone from40mg to 20mg in 5 months I am now at 18 mg during 8 days suffering only fatigue and 3 or four dayly cough episodes with...

Hello After weaning prednisone from40mg to 20mg in 5 months I am now at 18 mg du...

Chanquete

•6 years ago

6 Replies

Am I just being a wuss?

Glorious Bank Holiday weekend greetings to one and all. Boy doesn't some sunshine make you feel better even if you've no energy to do anything in it! :-) I'm...

Glorious Bank Holiday weekend greetings to one and all. Boy doesn't some sunshin...

Mike1964

•6 years ago

61 Replies

Muscle Weakness and NO Stamina

I've just come in from our communal garden of the building, and I'm again, upset and frightened. ALL I was doing tending to few potted plants== no big flower...

I've just come in from our communal garden of the building, and I'm again, upset...

billinSurbiton

•6 years ago

28 Replies

Was it Worth it?

On Saturday March 24 we (my husband and I) embarked on a road trip from Brighton to York; a trip that was estimated at about 5.5 hours by car. We had rented...

On Saturday March 24 we (my husband and I) embarked on a road trip from Brighton...

Hidden

•6 years ago

105 Replies

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Fatigue posts

Study offers clues as to how exhaustion could arise in people with ME/CFS—and potentially other conditions (like PMR/GCA?)

Never mind the adrenals, what about vitamin D?

Adrenal fatigue - very low Cortisol

Need Advice please

How to get from 1mg to 0 pred

PMR and COVID

struggling with fatigue

Pred dose doesn't seem to have worked. What would you do?

SYMPTOMS MUCH WORSE AFTER JUST 1MG DROP

Pain control and depression

Quality of life.

Confused newbie...

TIA

Im still confused!!

Aunty Bees PMR, GCA and Chronic Pain Sufferers Advent Calendar . Dec 7. The Christmas Spoon , and how it is the perfect gift for us All.

Auntie Bee is falling apart! Not just POTTY but a case of the SANRTs!! Anyone else with this tachycardia , or just me and the Bin of Doom!

No Wonder I’m Lacklustre

Weakness 3 years post PMR diagnosis. Adrenal problems?

Is my mind playing tricks on me???

So tired!

I’m New Here

Feeling disconnected from the Universe because of your GCA/ PMR and Chronic Pain ? Need a pick me up? Try looking up at the sky tonight!

Returning polymyalgia

Does increasing pred dose reduce fatigue (exhaustion) for some people?

Need a Bit Of Help

Is there any help out there?? It feels like I'm suffering in silence!

Interstitial lung disease

Am I just being a wuss?

Muscle Weakness and NO Stamina

Was it Worth it?

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