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Pernicious Anaemia Society

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good morning, question on iron supplement when I start injection

well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how...

well for now I'm on liquid b12 methyl 720 per day and next week my injections c...

JesusMercy60

•10 hours ago

2 Replies

Benfotiamin

Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including...

Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3m...

WIZARD6787

•15 hours ago

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New to PA and need info and support

Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to...

Hi, for nearly 10 years I have been returning blood tests with low b12 levels, r...

Sailing63

•17 hours ago

5 Replies

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Panpharma ampoules from Versandapo

Good morning This is my second post on here. I have just ordered my first ever ampoules for S.I.........saw someone post Versandapo had Panpharms in stock...

Good morning This is my second post on here. I have just ordered my first ever...

edeuweed

•19 hours ago

2 Replies

Slump?

Hi, I am, seemingly, just exiting a slump I had not experienced before to that degree since injecting. I was experiencing many of the symptoms I suffered pre...

Hi, I am, seemingly, just exiting a slump I had not experienced before to that d...

B12again

•20 hours ago

2 Replies

folate injection Australia

does anyone know how to get the above in Australia?

Inquiringmind12

•22 hours ago

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One more question about folate

If the body, due to methylation problems, cannot process regular folate, but can process methyl folate, does the non- methylated folate build up in one's...

If the body, due to methylation problems, cannot process regular folate, but can...

ndodge

•1 day ago

4 Replies

Folder levels high

Hi all! It's been awhile since I posted anything. I've been doing about 5 injections of methylcobalamin a week, for several years now. I take a food based...

Hi all! It's been awhile since I posted anything. I've been doing about 5 inje...

ndodge

•1 day ago

2 Replies

Cyanocobalamin

Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to...

Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, w...

Syuri

•2 days ago

20 Replies

Panpharma back in stock at Versandapo

Just managed to order some. My body has decided that it needs two jabs a week now instead of one for some reason, so I was getting a bit low.

Just managed to order some. My body has decided that it needs two jabs a week no...

topazrat

•2 days ago

2 Replies

Help with blood test results, please.

I was diagnosed with B12 Deficiency with Pernicious Anemia in 2018. I was given the six loading doses and injections every 12 weeks. After about two years I...

I was diagnosed with B12 Deficiency with Pernicious Anemia in 2018. I was given...

rubyone

•2 days ago

17 Replies

Muscle Damage

Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last...

Hi all. I’m wondering if any of you have experienced muscle damage from self-inj...

Cobalt1312

•2 days ago

8 Replies

The Role of Neurotropic B Vitamins in Nerve Regeneration

Interesting read for those that are interested in research ............... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8294980/

Interesting read for those that are interested in research ............... http...

Jillymo

•3 days ago

8 Replies

A weird dynamic.

When I make a positive change in my supplementation or activity there is a three day +- uptick as my body is getting more of what it needs. This is followed by...

When I make a positive change in my supplementation or activity there is a three...

WIZARD6787

•4 days ago

3 Replies

PA and Sjogren’s

I posted a few days ago about dry mouth and eyes, but since then my early sjogrens bloodwork has come back positive. I am terrified! Is there anyone else who...

I posted a few days ago about dry mouth and eyes, but since then my early sjogre...

Lhood08

•4 days ago

5 Replies

stomach polyps

Hi all I’ve addressed a thyroid issue - Hashimotos, with the help from the thyroid site. I’m still experiencing fatigue. I am in meno/post menopausal stage....

Hi all I’ve addressed a thyroid issue - Hashimotos, with the help from the thyr...

Bacca

•4 days ago

Be the first to reply

Fluttering and shaking

Hello my well informed PA society, I am recently experiencing fluttering in my body along with shaking. I have pernicious anemia and hypothyroid, gastritis....

Hello my well informed PA society, I am recently experiencing fluttering in my ...

25092

•4 days ago

4 Replies

some advice needed please

Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow...

Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he...

Windyway

•4 days ago

11 Replies

Risk of reversing out for A'levels

Hi everyone. I'm in a conundrum. My youngest daughter, 17, has low B12 (181ng/L, so not low enough for our GP to take any notice), inherited from me (141ng/L...

Hi everyone. I'm in a conundrum. My youngest daughter, 17, has low B12 (181ng/L...

Cotswolds23

•4 days ago

9 Replies

It’s ok to be deficient if you inflicted it upon yourself..

Has anyone sought an explanation from their gp as to why if you have caused b12 deficiency by the deliberate use of nitrous oxide that the NHS sanctions the...

Has anyone sought an explanation from their gp as to why if you have caused b12 ...

MorningMist

•4 days ago

21 Replies

Help please to understand blood test results a month after c vaccine

Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come...

Hi! I have no idea what is going on with me. I have been Si daily and twice dail...

brenanddave

•4 days ago

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Methyl or Hydro B12 injections - is it safe to switch between both each month?

Is it safe to switch between different types of B12 injections? For example, one month I take the hydroxocobalamin injection and the next month i take the...

Is it safe to switch between different types of B12 injections? For example, one...

LaraPA

•4 days ago

4 Replies

Work on healing balance

My balance is no longer a major issue. I am working on improving it. I do work on my core. I consider my balance issues to be a neurological issue. I balance...

My balance is no longer a major issue. I am working on improving it. I do work o...

WIZARD6787

•5 days ago

1 Reply

Folate and B12 levels recent blood test results

Hi everyone, I'd be most grateful for your thoughts on blood test results received yesterday, The background to my query: I have PA, diagnosed 18 months...

Hi everyone, I'd be most grateful for your thoughts on blood test results rece...

skylark25

•5 days ago

9 Replies

Please sign petition's if and when you can to bring change to mandatory training on identifying a B12 deficiency.

We read many stories on this forum of wrong diagnosis or simply being brushed aside. We fight lengthy battles to try and get adequate treatment for our...

We read many stories on this forum of wrong diagnosis or simply being brushed as...

Jillymo

•5 days ago

3 Replies

Cyancobalamin versus hydroxocobalamin

I have accidentally purchased ampoules of cyanobalamin instead of hydroxybalamin.Am I able to use this instead as at the moment can’t find a site with...

I have accidentally purchased ampoules of cyanobalamin instead of hydroxybalami...

Io1000

•5 days ago

21 Replies

How long will this last for?

Long story short, I’ve been feeling very tired for months (even years) to the point that I needed to take a nap in the afternoon on some days as my brain...

Long story short, I’ve been feeling very tired for months (even years) to the po...

Peacelily24

•5 days ago

11 Replies

dry eyes and mouth?

hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been...

hi again all! I am very depleted in ferritin and am awaiting an infusion. I als...

Lhood08

•5 days ago

7 Replies

Bad batch of B12

Hi I'm just adding to the posts about bad batches of B12 - there's been a couple in the last month. I have self-injected since 2020 - originally every...

Hi I'm just adding to the posts about bad batches of B12 - there's been a cou...

LizWilsonpa

•5 days ago

17 Replies

Problem with NHS policy - again!

Off on holiday soon. At my last injection appointment I told the practice nurse that my next scheduled jab would be 4 days into my holiday and there was no way...

Off on holiday soon. At my last injection appointment I told the practice nurse ...

Barneyboy48

•5 days ago

11 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

good morning, question on iron supplement when I start injection

Benfotiamin

New to PA and need info and support

Panpharma ampoules from Versandapo

Slump?

folate injection Australia

One more question about folate

Folder levels high

Cyanocobalamin

Panpharma back in stock at Versandapo

Help with blood test results, please.

Muscle Damage

The Role of Neurotropic B Vitamins in Nerve Regeneration

A weird dynamic.

PA and Sjogren’s

stomach polyps

Fluttering and shaking

some advice needed please

Risk of reversing out for A'levels

It’s ok to be deficient if you inflicted it upon yourself..

Help please to understand blood test results a month after c vaccine

Methyl or Hydro B12 injections - is it safe to switch between both each month?

Work on healing balance

Folate and B12 levels recent blood test results

Please sign petition's if and when you can to bring change to mandatory training on identifying a B12 deficiency.

Cyancobalamin versus hydroxocobalamin

How long will this last for?

dry eyes and mouth?

Bad batch of B12

Problem with NHS policy - again!

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive