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Pernicious Anaemia Society

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Fluttering and shaking

25092 profile image
8 Replies

Hello my well informed PA society, I am recently experiencing fluttering in my body along with shaking. I have pernicious anemia and hypothyroid, gastritis. Recently I stopped taking my iron pills because they were making me so extremely hungry and gaining weight. I've tried several brands to see if it would not increase my appetite but I haven't been too successful. So if you don't mind, I have three questions for the community 1. Has anyone here experienced this fluttering and shaking and 2. Do you know if it's coming from needing iron and 3. Anyone know of an iron supplement brand that doesn't increase your appetite? Thanks in advance to all that can give some much needed help on this! Have a peaceful day

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8 Replies
Nackapan profile image
Nackapan

I did shake when my ferritin levrks were low.I got on with ferrous fumarate 210

Alternating with spartone sachets 5mg

Gentle iron. Solgar 20mg

25092 profile image
25092 in reply toNackapan

Thank you Nackapan, I'm sorry it's taken me so long to respond but I'm struggling with this PAIt feels very dark and feels like no solution. EVEN with increased injections. I just want to be normal again. Thank you for always helping everyone in spite of you own battles.

Orchard33 profile image
Orchard33

I took Ferroglobin and will soon take a sub-lingual on instruction from my haematologist. The Ferroglobin didn't increase my appetite.I didn't have your other symptoms.

25092 profile image
25092 in reply toOrchard33

Thank you Orchard33 So sorry for late response. I appreciate your suggestion.

MarvelDC profile image
MarvelDC

Yes you can experience them symptoms with low iron. Try Three Arrows simply heme iron, it’s highly absorbable, doesn’t cause side effects and it’s absorption isn’t blocked by anything (except high doses of calcium), unlike non-heme, heme iron comes from meat, it’s used by alot of people so hopefully it’ll work for you.

threearrowsnutra.com/en-uk/...

25092 profile image
25092 in reply toMarvelDC

MarvelDC Thank you so much for the iron suggestion and the link. I will order from Amazon today. PS. Apologies for late response. Have a peaceful day

MuppDog profile image
MuppDog

Those, along with massive hair shedding, are my exact low ferritin symptoms. I wish I could offer you a supplement I have had total success with, but I am about to through in the towel and get an infusion.

25092 profile image
25092 in reply toMuppDog

I'm so sorry MuppDog! I pray everything goes well for you.

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