Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,580 members•23,921 posts

All posts for September 2024

Titrating down EOD to E3D?

Going from SI every other day to every three--who's done it? And why did you decide to? Was it a successful reduction for you? Did you feel ok and did your...

Going from SI every other day to every three--who's done it? And why did you dec...

a-wonderful-seed

•1 month ago

my daughters results

Hello, new here and hoping you can suggest a really good iron supplement that’s gentle on the tummy and vegan friendly. My daughter’s ferritin is 19.80 ug/L...

Hello, new here and hoping you can suggest a really good iron supplement that’s ...

•1 month ago

blood tests

doc won’t accept this active test as my serum test is 354. 191-663 b12 Folate 4.3. 3.89 - 26.8 Quite a difference I’m at a loss

doc won’t accept this active test as my serum test is 354. 191-663 b12 Folate ...

•1 month ago

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Severe B12 deficiency caused by N2O

If anybody doubts how severe a B12 deficiency can be - point them at this article....

If anybody doubts how severe a B12 deficiency can be - point them at this articl...

•1 month ago

Folic acid

If your folate levels are good, and you continue with EOD B12 injections, only taking folic once a week, what happens? Will you return to getting symptoms or...

If your folate levels are good, and you continue with EOD B12 injections, only t...

•1 month ago

confused about high b12 but now have PA

I started having small fiber neuropathy several years ago after being exposed to Lyme and Mold. Spent a lot of time treating with herbs to put both into...

I started having small fiber neuropathy several years ago after being exposed t...

•1 month ago

Advice for blood-test redo after loading doses

Hi you lovely lot! I posted in July regarding my symptoms and your kind words helped give me the motivation to continue pushing my doctor surgery before they...

Hi you lovely lot! I posted in July regarding my symptoms and your kind words h...

•2 months ago

recent blood tests

Gp serum b12 was normal 354. 191-663 but Medichecks active one says different my folate is 4.3 3.89-26.8 so gp says all normal no action and I feel really...

Gp serum b12 was normal 354. 191-663 but Medichecks active one says different my...

•2 months ago

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B12 defficiency and bad behaviour

I met my girlfriend 6 months ago. We have lots in common and are very compatible, in short we get on great together. She was prescribed to take B12...

I met my girlfriend 6 months ago. We have lots in common and are very compatibl...

•2 months ago

Is this normal after SI?

Hi. As previously mentioned, I've been SI 1000mcg Hydroxycobalamin every other day for just under 2 weeks. At the moment my neuropsychiatric symptoms are very...

Hi. As previously mentioned, I've been SI 1000mcg Hydroxycobalamin every other d...

•2 months ago

I didn't think it could get worse

Do you think I'm doing something wrong or it's reversing out?At night I used to be able to lay on my front so I could sleep as the burning in my buttocks would...

Do you think I'm doing something wrong or it's reversing out?At night I used to ...

•2 months ago

Stopping B12 before blood test?

S’mae pawb, happy September🫶🏻 Here’s one for you. Some say it takes weeks or months for B12 levels to drop, even in the case of those with poor absorption...

S’mae pawb, happy September🫶🏻 Here’s one for you. Some say it takes weeks or ...

a-wonderful-seed

•2 months ago

persistent tiredness

my active b12 reading is 128+ but i feel tired ,mostly in theafternoon but end up going to bed for 3 hours sometimes in early evening. my type 2 diabetes is...

my active b12 reading is 128+ but i feel tired ,mostly in theafternoon but end u...

•2 months ago

Extreme exertion-based fatigue even with normal levels + years of treatment?

Hi, friends. Just checking to see if I’m alone or if any of you have found solutions… I’m 34F, diagnosed with PA and IDA at 30. Though fixing my levels took...

Hi, friends. Just checking to see if I’m alone or if any of you have found solu...

still_elsewhere

•2 months ago

blood tests

When going for a private blood test, what should you ask to be tested? ie active , non active,liver,

When going for a private blood test, what should you ask to be tested? ie activ...

westwalessupport

•2 months ago

Sally Pacholok B12d Monday 9th September 2024

Hi All Another not to miss B12d Support Group Coffee and Zoom meeting with Sally Pacholok on Monday, 9th September at 7pm hosted byB12D...

Hi All Another not to miss B12d Support Group Coffee and Zoom meeting with Sall...

•2 months ago

Low mch and lowmchc

I’m wondering if I hzve some sort of anemia My Mchc is low. 298 320-370 Mch 24.7’ 27-32 Mcv...

I’m wondering if I hzve some sort of anemia My Mchc is low. 298 320-370 M...

•2 months ago

B12 deficiency or Carpal Tunnel Syndrome?

Hello, this is my first post but I have been reading posts on here, and replies, every day for the last two months, so I have learnt a lot! Thank you! My...

Hello, this is my first post but I have been reading posts on here, and replies,...

•2 months ago

Thundery weather affect?

Does anyone feel worse in this ‘close’ humid thundery weather in the Uk at the moment. I’m sure it heightens symptoms? ⚡️😵‍💫

Does anyone feel worse in this ‘close’ humid thundery weather in the Uk at the m...

•2 months ago

Thoughts on reducing frequency of injections

I have been SI EOD for three months now. Plus all cofactors. I have had the odd good day, but I have just reduced my injections to every two days in between...

I have been SI EOD for three months now. Plus all cofactors. I have had the odd ...

•2 months ago

advice pls....

do you know if there is a list of UK doctors that are B12 experts? I have parietal cell antibodies but not IF antibodies so not diagnosed with pernicious...

do you know if there is a list of UK doctors that are B12 experts? I have par...

•2 months ago

Flu and Covid jabs

My GP has invited me to have a flu and Covid vaccination. I suspect that this is due to me being registered as B12 deficient with PA as I’m not usually...

My GP has invited me to have a flu and Covid vaccination. I suspect that this is...

•2 months ago

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