Tracey Whitty...

[Myoldcat]

Hi All, I have seen several references to Tracey Whitty and Folly Lane, but can't find any link when searching. It clearly seems an informative and important item, so can anyone enlighten me or forward links? Thank you x

[Sleepybunny]

Hi,

She wrote a blog post about treatment of B12 deficiency in Gloucestershire, UK with a picture saying Folly Lane.

It's a UK area with a poor reputation on this forum for how B12 deficiency is managed.

Think this is the link you want.

b12info.com/gloucestershire...

A few other links that might be useful

Two useful B12 books

"What You Need to Know About Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper

Martyn Hooper is the former chair of PAS (Pernicious Anaemia Society).

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (US authors)

Very comprehensive with lots of case studies.

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

PAS membership is separate to membership of this forum. It's open to people worldwide and you do not need a PA diagnosis to join.

pernicious-anaemia-society....

If you have time, search online for this UK document "NICE CKS Anaemia - B12 and Folate deficiency" and compare it to the local B12 deficiency guidelines used by your ICB (Integrated Care Board) in England or Health Board in Wales/Scotland.

Unhappy with Treatment (UK info)?

How to write letters to GPs about B12 deficiency

b12deficiency.info/b12-writ...

Thread about Patient Safety, has useful links for those in UK having difficult health experiences with B12 deficiency

healthunlocked.com/pasoc/po...

Lots more B12 info in forum pinned post "Various B12D/PA resources".

Pinned posts are on right hand side of screen if on computer.

I'm not medically trained just someone who suffered for years with unrecognised and untreated B12 deficiency.

[Narwhal10 in reply to Sleepybunny]

Thank you Sleepybunny,

I had a quick look and there is absolutely no mention of malabsorption illnesses on this particular Care Pathway. There are many illnesses which fall under this category. Yet again, all I can say is Incompetencious Maximus.

[Myoldcat in reply to Sleepybunny]

Thank you for such a full reply Sleepybunny, I appreciate your time and will study those links.