Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,214 members • 23,384 posts

All posts for October 2022

Not Happy

I received notification from Versandapo that the Panpharma B12 Depot was back in stock so I ordered and paid immediately only for my order to be cancelled...

I received notification from Versandapo that the Panpharma B12 Depot was back in...

Catlover3

•2 years ago

1 Reply

diagnosis and symptoms

I was given a PA diagnosis based on IF and PCA testing. I was not told to remain off B12 for at least 2 weeks before testing so may have false positive. My...

I was given a PA diagnosis based on IF and PCA testing. I was not told to remain...

Bluebell7575

•2 years ago

8 Replies

exercise

hi still very new to this. I used to exercise a lot doing reformer pilates and treadmill( walking!) but for last 6 weeks not able to do much. On 4 th jab. How...

hi still very new to this. I used to exercise a lot doing reformer pilates and t...

smg1950

•2 years ago

5 Replies

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Advice needed- do I have pernicious anemia?

Hi everyone! So I was hoping to get some advice on whether it's likely I have pernicious anemia based on my symptoms and B12 readings. My symptoms started...

Hi everyone! So I was hoping to get some advice on whether it's likely I have pe...

apearson93

•2 years ago

11 Replies

After loading doses

Hello, I finished my loading doses about a month ago now and have been told to get injections every three months. Most symptoms have gone but some have...

Hello, I finished my loading doses about a month ago now and have been told to ...

Hidden

•2 years ago

2 Replies

Low B12/Folate Symptoms

I had just started taking B12 drops to help with low B12 levels - 249 when my consultant decieded to take another test - I requested a print out of this...

I had just started taking B12 drops to help with low B12 levels - 249 when my co...

Lemondrizz1

•2 years ago

5 Replies

To much folate to bad effect??

Short version: TOO MUCH FOLATE. Taking 5mg folate a day as advised by another group has been making me ill. Has this happened to anyone else? Long...

Short version: TOO MUCH FOLATE. Taking 5mg folate a day as advised by another ...

MrsTuft

•2 years ago

88 Replies

B12 advice

Hi all ive had my 2weeks of b12 loaded and for the past 5-6weeks felt really good in myself best I have been for a while and loving it after feeling so low...

Hi all ive had my 2weeks of b12 loaded and for the past 5-6weeks felt really ...

Green4me

•2 years ago

14 Replies

insomnia

hi on my 4 th loading jab snd having real problems sleeping. Will it get better? I’ve tried herbal and meditation but not a lot of success . I’ve never slept...

hi on my 4 th loading jab snd having real problems sleeping. Will it get better?...

smg1950

•2 years ago

3 Replies

Puzzling blood tests

As of this month, I’ve had 13 years of unexplained issues with balance and falls; POTS; weakness; cognition and memory; fatigue; joint pain; skin problems;...

As of this month, I’ve had 13 years of unexplained issues with balance and falls...

Woozy1

•2 years ago

10 Replies

Just wanted to comment on the excellent discussion following EllaNore’s post ‘Questions about Methyl mega dose v's daily cyano’

I don’t know about the rest of the forum members, but I always thought that b12 deficiency resulted from PA. The comment that PA is a late stage...

I don’t know about the rest of the forum members, but I always thought that b12 ...

MorningMist

•2 years ago

14 Replies

Pernicious anaemia?

I am a 60 year old male leading a healthy, low stress lifestyle. I have never had any medical conditions (apart from a bout of pancreatitis a couple of years...

I am a 60 year old male leading a healthy, low stress lifestyle. I have never ha...

Bobmanner

•2 years ago

19 Replies

B12 oral to fill in

Hi Ive had 3 loading jabs so far and not feeling great -sick dizzy but reassured on previous answers this is normal. Next dose Monday and Friday ( no Wednesday...

Hi Ive had 3 loading jabs so far and not feeling great -sick dizzy but reassured...

smg1950

•2 years ago

7 Replies

no MMA testing available

Hi guys I'll try and summarise this situation thats been going on since july and recent developments -neurological symptoms present -b12 found to be 150...

Hi guys I'll try and summarise this situation thats been going on since july a...

ozwald28

•2 years ago

6 Replies

low B12 - should I ask for injections?

I am 47 years old and suffer from dizziness (off balance and not able to walk for long distances and the heart races) and anxiety. After 15 years of being...

I am 47 years old and suffer from dizziness (off balance and not able to walk fo...

Arti094

•2 years ago

19 Replies

Providing advice on safe sources for self injection

As a charity our sponsors are not able to actively promote self injection without medical supervision. The PAS recognise that no medical procedure - including...

As a charity our sponsors are not able to actively promote self injection withou...

Gambit62

Administrator•2 years ago

Advuce please?

HI all, I've just had bloods due to gradually increasing fatigue,brain fog,exhaustion, dizziness on standing. I also have tinnitus. The tiredness has...

HI all, I've just had bloods due to gradually increasing fatigue,brain fog,ex...

Bertolli

•2 years ago

16 Replies

How soon do you get an improvement once you start receiving B12 injections?

Hi all, I got diagnosed with B12 deficiency (absorbtion issue, not diet) this summer and from what I understand my level on diagnosis was quite low (58). I...

Hi all, I got diagnosed with B12 deficiency (absorbtion issue, not diet) this s...

KatieG75147

•2 years ago

17 Replies

reactions?

hi I had my 3rd jab today (1 Monday /1 Wednesday ) and feel quite sick .and generally a bit off .I’ve eaten a banana plus taken folic acid. Is this quite...

hi I had my 3rd jab today (1 Monday /1 Wednesday ) and feel quite sick .and gene...

smg1950

•2 years ago

6 Replies

Causes of B12 def/anemia

Hello people, I had a follow up appointment with my doctor, I have finished my loading doses and have been off them for 3 weeks now. I went back to say about...

Hello people, I had a follow up appointment with my doctor, I have finished my ...

jacobwentworth

•2 years ago

7 Replies

Questions about Methyl mega dose v's daily cyano

Hello all you smart wonderful people, I can't tell you what a relief it is to have this place to come. One can feel very alone in this. So, jade_s thought I...

Hello all you smart wonderful people, I can't tell you what a relief it is to ha...

EllaNore

•2 years ago

87 Replies

cynocobalamin

I have used prescribed Hydroxocobalamin for eleven years, and now wonder if it is safe to use Cynocobalamin which I have ordered from Germany. I’m having...

I have used prescribed Hydroxocobalamin for eleven years, and now wonder if it i...

Nennie

•2 years ago

16 Replies

Vitamin B12 Injections

Hi all, I was wanting to know if anybody out there can recommend good quality/reliable vitamin b12 injections. I have been attending a local private clinic...

Hi all, I was wanting to know if anybody out there can recommend good quality/r...

Henbud

•2 years ago

12 Replies

Versandapo v Bodfeld

I know some have been asking about the difference of both and as I recently ordered from both thought I would give my opinion. Versandapo was really easy to...

I know some have been asking about the difference of both and as I recently orde...

Dragonfly1962

•2 years ago

10 Replies

? Pernicious anaemia with normal B12 and no anaemia?

Hello all, I may well be completely off mark here, but my dad (79 years) has deteriorated significantly over the last 6-9 months. He was a big long...

Hello all, I may well be completely off mark here, but my dad (79 years) has...

kreamtee

•2 years ago

30 Replies

Don't make me laugh ! No- really don't.

Well, I'm always saying "Don't feel tempted to stop self injecting, just to prove you will deteriorate." Yet, here I am, having deliberately stopped the...

Well, I'm always saying "Don't feel tempted to stop self injecting, just to prov...

Cherylclaire

Forum Support•2 years ago

38 Replies

Self injecting prescribed by GP?

Hi, Please can anyone advise me if you are currently self injecting B12 prescribed by your GP here in the UK for PA? Also, if you have been prescribed and...

Hi, Please can anyone advise me if you are currently self injecting B12 prescr...

karent75

•2 years ago

31 Replies

B12 levels

I was diagnosed with PA earlier this year and received a series of injections to start now it’s every 12 weeks. I’m due my second 12 wk injection in 2 weeks....

I was diagnosed with PA earlier this year and received a series of injections to...

Diamonds_

•2 years ago

1 Reply

intrinsic Factor

hi my IF antibodies are 36.4 (0-6). Is this particularly high? Do they vary with B12 treatment? My drs who won’t treat referred me to haematologist who...

hi my IF antibodies are 36.4 (0-6). Is this particularly high? Do they vary wit...

smg1950

•2 years ago

3 Replies

confused about symptoms even after loading dose b12

Hi there. I had a b12 deficiency last year June with levels of 126 . I was put on weekly injections of B12 and Co and then monthly for 6months. Lots of...

Hi there. I had a b12 deficiency last year June with levels of 126 . I was put...

Striveforhealth

•2 years ago

8 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2022

Not Happy

diagnosis and symptoms

exercise

Advice needed- do I have pernicious anemia?

After loading doses

Low B12/Folate Symptoms

To much folate to bad effect??

B12 advice

insomnia

Puzzling blood tests

Just wanted to comment on the excellent discussion following EllaNore’s post ‘Questions about Methyl mega dose v's daily cyano’

Pernicious anaemia?

B12 oral to fill in

no MMA testing available

low B12 - should I ask for injections?

Providing advice on safe sources for self injection

Advuce please?

How soon do you get an improvement once you start receiving B12 injections?

reactions?

Causes of B12 def/anemia

Questions about Methyl mega dose v's daily cyano

cynocobalamin

Vitamin B12 Injections

Versandapo v Bodfeld

? Pernicious anaemia with normal B12 and no anaemia?

Don't make me laugh ! No- really don't.

Self injecting prescribed by GP?

B12 levels

intrinsic Factor

confused about symptoms even after loading dose b12

Search posts

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Latest poll

How Often do you feel you actually need your B12 injection?

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2022

Not Happy

diagnosis and symptoms

exercise

Advice needed- do I have pernicious anemia?

After loading doses

Low B12/Folate Symptoms

To much folate to bad effect??

﻿B12 advice

insomnia

Puzzling blood tests

Just wanted to comment on the excellent discussion following EllaNore’s post ‘Questions about Methyl mega dose v's daily cyano’

Pernicious anaemia?

B12 oral to fill in

no MMA testing available

low B12 - should I ask for injections?

Providing advice on safe sources for self injection

﻿Advuce please?

﻿How soon do you get an improvement once you start receiving B12 injections?

reactions?

Causes of B12 def/anemia

Questions about Methyl mega dose v's daily cyano

cynocobalamin

﻿Vitamin B12 Injections

Versandapo v Bodfeld

? Pernicious anaemia with normal B12 and no anaemia?

Don't make me laugh ! No- really don't.

Self injecting prescribed by GP?

B12 levels

intrinsic Factor

﻿confused about symptoms even after loading dose b12

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive

B12 advice

Advuce please?

How soon do you get an improvement once you start receiving B12 injections?

Vitamin B12 Injections

confused about symptoms even after loading dose b12