cynocobalamin: I have used prescribed... - Pernicious Anaemi...

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cynocobalamin

Nennie profile image
16 Replies

I have used prescribed Hydroxocobalamin for eleven years, and now wonder if it is safe to use Cynocobalamin which I have ordered from Germany. I’m having second thoughts that perhaps they are not compatible. This is my first order from abroad, as I have until recently managed on my eight weekly injection, however I have been feeling very unwell of late and decided to supplement my intake of Hydroxocobalamin, but unfortunately the Company I used only supplied Cynocobalamin in ampoule form. I would be grateful for any advice you can give me.

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Nennie profile image
Nennie
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16 Replies
wedgewood profile image
wedgewood

I’m sure that Cynocobalamin will be fine for you . You might have to inject more often than with Hydroxocobalamin.

It is the most used Cobalamin in the USA .

Nothing to worry about at all . U.K. changed to Hydroxocobalamin because it was thought to stay in the system for longer , so necessitating fewer injections . Best wishes .

Nennie profile image
Nennie in reply to wedgewood

Thank you so much wedgewood for your reply, it is a relief to know that I can use Cynocobalamin. However, I don’t want to stop my repeat prescription for Hydroxocobalamin and would like to know if it is alright to use it, as well as the Cynocobalamin alternatively?

wedgewood profile image
wedgewood in reply to Nennie

There is absolutely no reason why you shouldn’t . 👍

Nennie profile image
Nennie in reply to wedgewood

Thanks again wedgewood, that’s great to know, you have been a big help to me. 👏🏻

wedgewood profile image
wedgewood

By the way , Nennie , if , in future , you want to use Hydroxocobalamin , you could try versandapo.de

bodfeld-apotheke.de

apotal.de

These are reputable German online pharmacies , which supply Hydroxocobalamin. ampoules . You need to look for vitamin 12 depot . “depot “ indicates that it is Hydroxocobalamin. The most popular ampoule is Panpharma ( 1mg x 1ml )

Hevert is 1mg x 2ml ,

Pascoe is 1.5 mg x 1ml .

Nennie profile image
Nennie in reply to wedgewood

Yes, I tried those suppliers, but unfortunately was unable to navigate the sites, I went so far then got stuck and couldn’t see any symbols for English. I bought mine from Amazon.de, as it was in English, I hope they are a reputable supplier, I know that Amazon U.K. is fine. However, a friend suggested this afternoon that they might be fakes! Which I hadn’t thought about, they are due to arrive next week, now I wonder if I should use them!!

wedgewood profile image
wedgewood in reply to Nennie

No reason to think that ! German online Pharmacies supply the B12 ampoules that they sell through Amazon . B12 ampoules are only allowed to be sold through pharmacies in Germany . You will see the names of the pharmacies mentioned when you purchase them from Amazon.de

You need to use google chrome for translation if you go on German sites .

Unfortunately, Amazon.de do not sell the popular Panpharma B12 depot ampoules .

Not all German pharmacies will sell B12 ampoules to U.K. . Many only sell to EU countries . It saves paperwork . So we b12 ampoule users were disadvantaged when Brexit occurred.

Nennie profile image
Nennie in reply to wedgewood

Thanks wedgewood, you are a wealth of knowledge about all things regarding PA. Injections. I’m delighted to hear that the ampoules I have ordered will be genuine. I expect my friend was being over cautious. I look forward to starting my new regime of more frequent injections.

Thank you so much for all the information, and for taking time to reply. 👏🏻

EllaNore profile image
EllaNore in reply to Nennie

I Usually use cyano, but feel perhaps it is not enough for me so I finally figured out how to order from Germany. I just bought some hydroxy for the first time from mycare.de. I am in the US and I could not navigate the site until I right clicked and translated to english. Then I was able to order 9, 10 packs of hydroxy. The shipping to the US was $33 and some change. I did not seem to need a prescription. The total was $97.00 This is what I bought. I hope it is OK to post this. If not I apologize.

mycare.de/online-kaufen/vit...

Nennie profile image
Nennie in reply to EllaNore

Thank you EllaNore no need to apologise, hopefully I will be able to find how to translate the German sites into English when I try again. It’s kind of you to help.

wedgewood profile image
wedgewood in reply to EllaNore

No need for a prescription for B12 ampoules in Germany . It is an “Over the Counter “ item there .

EllaNore profile image
EllaNore in reply to wedgewood

Thanks Wedgewood. I'm so excited try hydroxy.

clivealive profile image
clivealiveForum Support

I've been on cyanocobamalin for over fifty years and I'm still "clivealive" aged 81.

You may find you need to inject every 3 to 4 weeks but see how you feel between times. I started every four weeks in 1972 but now have them every three.

Personally when hydroxo was introduced in the mid 1980s I had an allergic reaction to one or other of the "excipients" (or ingredients) so have continued with the cyano.

I wish you well.

Nennie profile image
Nennie in reply to clivealive

Thank you clivealive, for the information which I will take on board.

Gambit62 profile image
Gambit62Administrator

the only contraindication to the use of cyanocobalamin that I am aware of is in patients who have family history or diagnosis of a rare genetic condition - leber's syndrome - (more common in males)

Nennie profile image
Nennie in reply to Gambit62

Thank you Gambit62, I have never heard of lever’s syndrome, if it was in my family I expect I would have known about it. However, it was so thoughtful of you to send me the information. Thanks.

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